Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Loooonnnng Glutening-help? Veterans And Super-sensitive?

oceangirl

By oceangirl
in Coping with Celiac Disease

Recommended Posts

oceangirl Collaborator
oceangirl
Posted

Hi everyone,

I've been resisting posting because 1.) I don't want to complain when I've done so well for so long overall. ( 3 years) and, 2.) I've been desperately hoping things would get better, BUT, I'm really not well again and it's now lasting into 2 weeks! (It's not abating at all)

When I hear hoofbeats I think horses and these really are gluten symptoms: Big left side pain, bloating and abdominal pain, left hip pain- countless weird bowel symptoms on and on... and I CAN'T FIND THE GLUTEN! I'm starting to wonder if I'm just suddenly sick with some other hideous thing, but these symptoms have always been VERY specific to gluten for me.

The only processed foods I eat routinely are: Planter's almonds and cashews, Fage Greek yogurt and Cab cheddar cheese and McCormick spices. Does anyone know if these items are still safe or not? Or Tom's of Maine toothpaste?(I do NOT have a problem with dairy) I feel like I'm right back at the beginning and my food log is not shedding light right now. Eat only at home, cook ourselves, eat whole foods... any thoughts?

Is it possible that if wheat is outside (rabbit pellets in compost) that the wind could blow some gluten my way? I'm reaching..... HELP?

Thank you,

lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

My son and I have had problems with McCormicks spices. I have had more luck buying the whole spices and grinding them myself, and buying leaf spices fresh.

tarnalberry Community Regular
tarnalberry
Posted

If nothing has changed in your diet, you might consider going to the doc to get it checked out. Left side abdominal pain is why they stuck me in a CT.

oceangirl Collaborator
oceangirl
Posted
  • Author

Thank you both. Tarnalberry, I'm numb- what is a CT?

lisa

neesee Apprentice
neesee
Posted

It sounds a heck of a lot like diverticular disease. And it is diagnoced with a ct scan and a high white blood cell count.

jerseyangel Proficient
jerseyangel
Posted

Hi Lisa,

I'm so sorry you're going through all of this again :(

This is my experience with McCormick--I know they are generally considered safe for us and all, but they are made in a facility that processes wheat and do not use dedicated lines. That is not to downgrade them in any way, but it's a fact that I confirmed with the company. Like with any company, there will be some of us who just can't tolerate their products--for whatever reason. I used them exclusively, but twice now, I've noticed that their onion powder has affected me.

I use other things from them like cinnamon and garlic powder--but I'm certain that the onion powder is somehow problematic for me. Maybe I got batches made right after a blend with wheat (but, twice?), I don't know--but since stopping it, I have cut out the mystery D that would pop up for seemingly no reason.

I used it quite frequently, too. Now, I have taken to using fresh onion if I want that flavor--not as convenient, but I have most definitely seen a marked difference. I stick my neck out here, because so many regard it as safe, but I know how sensitive you are, as am I.

PS--Isn't Fage the most delicious thing? :D I've been able to tolerate dairy again (after cutting it out for 5 years!), and started with the Fage after reading here how much you liked it. Now I'm hooked! :lol: Thank you!! :D

oceangirl Collaborator
oceangirl
Posted
  • Author

Patti,

Thank you! I only use the ground sage, dill, basil and oregano but I'm going to stop all of it now thanks to you and see if I can turn this corner. Neesee, thank you- I have been rolling over the diverticulosis thing in my mind but yellow stool (lovely, I know) is a very specific gluten symptom for me and I have it in spades. I guess I'll have to succumb to the doctor soon.

Thank you all,

lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Lisa--I hope it's something as simple as cross contamination. Please let me know how you do :)

Lisa Mentor
Lisa
Posted

Lisa we all know our bodies, but keep out a keen eye on other possible issues as well Hope you feel better quickly.

Open Original Shared Link

Yellow Stool

Yellow stool can indicate that food is passing through the digestive tract relatively quickly. Yellow stool can be found in people with GERD (gastroesophageal reflux disease). Symptoms of GERD include heartburn, chest pain, sore throat, chronic cough, and wheezing. Symptoms are usually worse when lying down or bending. Foods that can worsen GERD symptoms include peppermint, fatty foods, alcohol, coffee, and chocolate.

Yellow stool can also result from insuffient bile output. Bile salts from the liver gives stool its brownish color. When bile output is diminished, it often first appears as yellow stool. If there is a greater reduction in bile output, stool lose almost all of its color, becoming pale or grey.

If the onset is sudden, yellow stool can also be a sign of a bacterial infection in the intestines.

oceangirl Collaborator
oceangirl
Posted
  • Author

Thanks, Patti, I really feel yucky and it's no fun at work! Yes, Fage is one of my all-time favorite things!

lisa

oceangirl Collaborator
oceangirl
Posted
  • Author

Thanks, Lisa- yes, I do know that yellow stool can be a symptom of other things, so I'll continue to monitor. It's just that it was a CLASSIC symptom of gluten for me and went away once gluten-free.

lisa

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,948
    • Most Online (within 30 mins)
      7,748
    Stephanie94
    Newest Member
    Stephanie94
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.