Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

News About Cures For Celiac Disease Other Than Gf

Guest gliX

Recommended Posts

Guest gliX
Guest gliX
Posted

Hey, I've been gluten free for 2 years and am curious, is there any news about some possible cure to celiac disease? I read once that some vitamin was being developed, so when swallowed, gluten and wheat could be eaten. I haven't heard anything lately, does anyone know anything? I am not talking about the obvious cure: being gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

As far as I know the 'pill' is still a dream. No one knows if it will protect the intestine. They are doing a stem cell type research now. Hopefully something will come of that. But for now, you and the rest of us are stuck with a gluten free diet.

And you must admit ... considering some diseases out there, that's not so bad :P

KaitiUSA Enthusiast
KaitiUSA
Posted

Nothing so far...the only thing is the diet.

They are working on a pill that supposedly would allow us to eat gluten but I'm very skeptical of it. That's a ways off though.

I really don't find celiac to be bad at all...

Guest gliX
Guest gliX
Posted

same here its not that bad at all, but it would be nice to have papa johns

Rikki Tikki Explorer
Rikki Tikki
Posted

I went to the celiac conference at Stanford in October. They said a pill is on the way. But here's the catch, after taking it you can have one piece of bread a month!

I wouldn't do it. I just don't want to be somebody's lab rat. Plus, I am afraid of the damage it might do to my body, not just the pill but eating the gluten.

KaitiUSA Enthusiast
KaitiUSA
Posted

yeah im afraid it will stop a reaction but not the damage...I don't want it when it comes out...eating gluten free is better for my body anyway.

Guest Viola
Guest Viola
Posted

That's too funny ... why would anyone take a pill so they could have one piece of bread a month! Wouldn't be worth it even if they could garantee there would be no damage! :o:lol: Doesn't make much sense to me anyway.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


plantime Contributor
plantime
Posted

One piece of bread a month?!? And how much will we be expected to pay for the pill so we can eat that much bread? A whole lot more than it's worth, IMO!!!

KaitiUSA Enthusiast
KaitiUSA
Posted

Wow a whole piece of bread...we could nibble on a crumb everyday for a month :lol:

Guest gliX
Guest gliX
Posted

one piece of bread a month, that's strange

celiac3270 Collaborator
celiac3270
Posted

Dr. Green talked about 6 things they're researching...I'll make a post under the coping with section on the conference later.

plantime Contributor
plantime
Posted

I'll be looking for it!

celiac3270 Collaborator
celiac3270
Posted

The 6 things they're researching:

  • Gentically modify wheat -- go back to ancient wheat
  • Induce tolerance to gluten (in the way breastfeeding does)
  • Oral peptidases -- an enzyme that digests the gliadin. Must digest all, unlike with pills taken for lactose intolerance, which only need to digest some.
  • Block tTG
  • Block binding to the DQ groove
  • Block cytolcines

Sharon C. Explorer
Sharon C.
Posted

I breast-fed my son for his entire first year, but it didn't stop him from getting Celiac. Also, what angers me is that I followed the advice written in a baby book, that recommended spiking your infant's cereal with wheat germ for some extra nutrition.

Recently there was a radio talk show featuring celiac and I learned that in a country where Celiac was rampant, they realized a popular baby formula contained wheat gluten. When they changed the baby formula, the outbreak stopped. I think these "experts" writing these baby books should keep their advice to themselves. I also followed advice in a pregancy book that peanut butter was a nutritious snack, and I ate a lot of it. My son is also allergic to peanuts. Makes me think I should ignore the "experts".

Ruth Enthusiast
Ruth
Posted

Funny, It seems like it should be the other way around... find dietary solutions for diseases that currently require medication...

Although it's not easy, I'd rather change my diet than take a pill any day.

kactuskandee Apprentice
kactuskandee
Posted

Sharon--and then those baby formulas they are using soy in is proving to create thyroid disease in infants---then they have it for life. You were probably better off doing what you did, despite the out come..and how were you to know anyway?

celiac3270--interesting research..this is where we want our dollars going.

But right now? To eat one slice of bread a month? That is rather ridiculous. I've been allergic to wheat for over 25 years and after 8 years of strict adherence I managed to swing the equivalent of about 2 slices of bread a week without my throat starting to close. Since then I've been upgraded to gluten intolerant but was likely that way all my life and didn't know it because of not having the advanced testing methods they have today. Now that I can't have my 2 slices a week, nor barley or rye, do I miss it? Not one bit!

But I have to admit a normal slice of pizza would be nice to have in this lifetime.

Kandee

Rikki Tikki Explorer
Rikki Tikki
Posted

I agree, I am not going to chance taking a pill. Forget the piece of bread a month. The starnge thing is Sharon C, I breast-fed one of my children, and she is the only one that is positive for celiac. Think there is a connection?

celiac3270 Collaborator
celiac3270
Posted

That would by no means cause celiac disease--breast feeding is preventative.

Rikki Tikki Explorer
Rikki Tikki
Posted

I know celiac3270, that's what I always thought and why I did it. I just can't help but wonder now......

KaitiUSA Enthusiast
KaitiUSA
Posted

I wonder too...I was breastfed for a long time and intoduced to wheat late....didn't prevent celiac disease

Guest Viola
Guest Viola
Posted

If celiac disease is genetic, why would breast feeding-or not- make any difference? You are either born with the genes or not. :rolleyes: Just my thoughts :)

SharonF Contributor
SharonF
Posted

From my (incredibly limited) understanding, celiac isn't always triggered right at birth--it can come from stress, surgery, or what I suspect was my case, pregnancy.

So you breastfeed the kid and build up their immunity from those triggers causing celiac disease, among other diseases.

(I'm not a lactation consultant, but I'll play one on the internet.)

mommida Enthusiast
mommida
Posted

I moved in October and can't find the book I am trying to quote on breastfeeding.

A mother's breastmilk is ready at about 7 months of pregnancy. There is a seemingly constant change in the breastmilk itself to care for the infant.

Foremilk (the begining of a feeding) has less fat in it than hindmilk (the end of feeding time). More fat at the end of the feeding gives the infant the feeling of being full. They feel this related to the statistic that breast fed infantsare not as likely to be overweight as adults.

The fat Lipids that are in breast milk are trying to be simulated from fish in the new formulas.

Breastmilk antibodies killed every cancer cell the scientist tested it against.

Breastmilk is said to delay onset of Celiac because the stomach and intestines of a breastfed child is "stronger and healthier" than a formula fed child. The ph balance is correct and has no harmful bacteria in the ideal breastfeeding situation. (I am trying to carefull not to over generalize, and reality can be very different from scientist say is supposed to happen.)

The book was fascinating and I am trying to find it the moving boxes. It was not by LaLeche.

Laura

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,697
    • Most Online (within 30 mins)
      7,748
    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.