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Female Question...


Mrs. Smith

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Mrs. Smith Explorer

I noticed that my "gluten" symptoms seem to come back when Im PMS-ing. For the whole week before my period I get D, muscle aches, eczema outbreaks, brain fog, hot flashes, bursts of energy followed by fatigue. What is going on? Is it my vitamin difficiencies? I am gluten free for sure now (Ive learned all the tricks...I think) Its been 5 mos. and this happens every month. Any suggestions? Advice? My periods are less heavy and crampy and always on time which is a benefit but once I start to feel good again...here it comes! Its just annoying, today Im sweaty and my ass muscles are sore but I cleaned my whole house top to bottom. What a rollercoaster!!


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MySuicidalTurtle Enthusiast

That sounds kind of just like PMS. Did you have different symptoms of it before going gluten-free?

samcarter Contributor
I noticed that my "gluten" symptoms seem to come back when Im PMS-ing. For the whole week before my period I get D, muscle aches, eczema outbreaks, brain fog, hot flashes, bursts of energy followed by fatigue. What is going on? Is it my vitamin difficiencies? I am gluten free for sure now (Ive learned all the tricks...I think) Its been 5 mos. and this happens every month. Any suggestions? Advice? My periods are less heavy and crampy and always on time which is a benefit but once I start to feel good again...here it comes! Its just annoying, today Im sweaty and my ass muscles are sore but I cleaned my whole house top to bottom. What a rollercoaster!!

After going gluten free, I noticed that my period was worse when I had eaten dairy the week prior. I tested my theory; I cut dairy out of my diet during one cycle and i had a cramp-free period. The next cycle I ate some dairy the day or two before my period, and it was horrible. If you haven't cut out dairy yet, you might try it--I think those of us with gluten sensitivities and celiac are also sensitive to dairy; like gluten, it's an inflammatory food.

Mrs. Smith Explorer
That sounds kind of just like PMS. Did you have different symptoms of it before going gluten-free?

The symptoms were also D and headaches. It just seems alot worse now, maybe Im just more concience of it now after having to pay so much attention to what my body is doing.

momof6incfl Newbie

It all sounds pretty familiar to me too. I would lose more,larger clots,last longer each month. I had fibroids so it made sense, last month I bled for a month and after intese stomach pain/vomititing coffee like grounds I went to the er and they kept me a week. I had 2 surgeries done, endometriol ablation, d&c,and hysteroscopy. Im 1/10 of a point from needing a blood transfusion and I need to get iron infusions weekly now and b-12 shots. If this doesnt work, I need a complete hystectomy.So far Ive not had any more bleeding at all. I dont know if I will ever even get another period or not, but I can still get pregnant, I wouldnt be able to carry the baby full term. Ive lost 2 in the past and Im rather done, Im too sick for more babies and Im almost 43. My biopsies are all abnormal, not cancerous but not normal either. I have Endometriosis in addition to the cysts and fibroids. I also have Hashimotos and am on steroids which gave me diabetes,in addition to the crohns and celiac. My 6 kids have celiac too. I let things go because theres too much going on. Dont do that. Make an appt. with your dr. as soon as you can. Write down your concerns and have them addressed.Dont let things go. Ask for specifics of when is such and such crossed over to be a concern,when is it normal and write it down. Keep track of your symptoms and what you see that makes them worse and better. I wish you well. Lynne

Mrs. Smith Explorer
It all sounds pretty familiar to me too. I would lose more,larger clots,last longer each month. I had fibroids so it made sense, last month I bled for a month and after intese stomach pain/vomititing coffee like grounds I went to the er and they kept me a week. I had 2 surgeries done, endometriol ablation, d&c,and hysteroscopy. Im 1/10 of a point from needing a blood transfusion and I need to get iron infusions weekly now and b-12 shots. If this doesnt work, I need a complete hystectomy.So far Ive not had any more bleeding at all. I dont know if I will ever even get another period or not, but I can still get pregnant, I wouldnt be able to carry the baby full term. Ive lost 2 in the past and Im rather done, Im too sick for more babies and Im almost 43. My biopsies are all abnormal, not cancerous but not normal either. I have Endometriosis in addition to the cysts and fibroids. I also have Hashimotos and am on steroids which gave me diabetes,in addition to the crohns and celiac. My 6 kids have celiac too. I let things go because theres too much going on. Dont do that. Make an appt. with your dr. as soon as you can. Write down your concerns and have them addressed.Dont let things go. Ask for specifics of when is such and such crossed over to be a concern,when is it normal and write it down. Keep track of your symptoms and what you see that makes them worse and better. I wish you well. Lynne

Im sorry to hear about all this! I am clear from the DR and Gyno so I should be ok. My actual periods have actually improved. As a teenager I had severe cramps and fainting spells. Now Im 29, gluten free and my periods are shorter and less heavy. Im just noticing many symptoms of PMS now. I am on b12, prenatals, cal/mag, and various digestion supplements. Lets hope in a few months everything clears up a little bit. I think a certain amount of PMS is normal for most women. I am now keeping a food and symtom diary everyday so I can see if I notice a pattern. Thankfully I have no other autoimmune disease that they can find and Ive been tested for EVERYTHING! They think I just have celiac and am on the road to wellness. Thank you for your concern. I hope things go better for you as well! Stay Heatlhy. :)

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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