Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Anyone Tell Me What Direction The Gi Is Going?


Magician

Recommended Posts

Magician Rookie

After gong through all sorts of blood tests, gut tests, etc. my GI doc said I do not have Celiacs but encouraged me to begin following a gluten free diet 'if it made me feel better'.

So I started and almost immediately I began feeling so much better! I faithfully took my chelated Calcium, Magnesium and Zinc and also my vegetable digestive enzyme pill each day.

Out of the blue, the gut dr's office phones and says my last blood tests (done two months ago)

indicated I was 'severely anemic' and how did I feel? Truth be known I don't feel healthy at all. Tired. Weak.

She has requested the following blood tests of me:

HB

WBC

Diff

LDH (never heard of this one)

Indices

Plt

Ferrin

Fe Sat

Haptoglobin

Is she still searching for the anemia cause or what is she looking for? Don't know what the Haptoglobin test is.

Thank you for your help in alleviating my mind.

Magic


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast

Most likely. She is probably trying to determine the type of anemia you have also.

Magician Rookie

Thanks, janetw. I still haven't had the requested blood tests taken. Probably at the end of the week I'll have them drawn and then go to my appt. to see her.

I haven't taken stayed true to following the celiac diet. I am such a sugar hog I feel ill if I do not eat any junk food. Can't get enough of the stuff.

ravenwoodglass Mentor
Thanks, janetw. I still haven't had the requested blood tests taken. Probably at the end of the week I'll have them drawn and then go to my appt. to see her.

I haven't taken stayed true to following the celiac diet. I am such a sugar hog I feel ill if I do not eat any junk food. Can't get enough of the stuff.

Your 'addiction' to gluteny junk food combined with the anemia is a good indication that your doctors advice to follow the diet despite the negative test results was a good one. Can you find a gluten free junk food, perhaps chocolate for example, to 'binge' on? To get healing from the gluten-free diet you have to follow it strictly. For some of us gluten is a very addictive substance which fires the opiate type of receptors in the brain. There is a lot of treat food available that is gluten free. I am making vanilla cupcakes with chocolate chips both inside and melted for frosting this afternoon.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748

    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.