Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Possible To Have Celiacs & Not Have Symptoms Every Time You Eat Gluten?


terribeth07

Recommended Posts

terribeth07 Apprentice

I have had stomach problems for 5 years. A year ago my doctor determined my problem could possibly be my gallbladder. The HIDA scan I had showed abnormal which could or could not mean a problem. I decided to just have it taken out to be safe. That was last April. I was doing good until this December when I started to have nausea & diahrea on & off. Sometimes it would just last a day or two & other times it has lasted a week or two. Several people have suggested celiacs or a food allergy. My questions is, is it possible to have symptoms some of the time & other times be totally fine even if you're eating something with gluten?

Please help me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Welcome to the board!

Symptoms vary widely with celiac disease. There are many people who do not have any symptoms at all, but the antibodies are still being produced and doing damage to tissue. My own symptoms gradually got worse and worse over a period of about five years before my diagnosis.

Nausea and diarrhea can vary significantly with the foods being eaten, and may not necessarily be directly triggered by gluten. If there is damage to the villi, then the damaged digestive system can react to all sorts of foods--not just ones containing gluten.

miles2go Contributor

Hi and welcome! Yes, it's entirely possible that you have allergies and celiac, or something else that's causing this. I have never had nausea, have extreme allergies and have never been tested conclusively for the celiac, but prior to going gluten-free, I had that kind of pattern, perhaps in part because I was gluten-light for eight years. Now that I've been gluten-free for 3+ years, gluten causes problems every time after, like, 15 minutes. Do you have a celiac-literate medical facility nearby?

Margaret

terribeth07 Apprentice

I have an appointment with my GI doctor on May 20th & I'm going to have him run a blood test. Is it possible for gluten to make you sick sometimes & other times you eat it you're fine?

miles2go Contributor
I have an appointment with my GI doctor on May 20th & I'm going to have him run a blood test.

Awesome, have him run the full celiac panel, if you can. I had only the anti-gliadin blood test and an endoscopy that was too late. Keep in mind that there are false negatives.

Is it possible for gluten to make you sick sometimes & other times you eat it you're fine?

That's what I was experiencing before I went completely gluten-free.

Margaret

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.