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Weight Issues


prisca

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prisca Newbie

Just started using this site and learning how to use it. I just posted a poll about weight issues in celiac disease. I didn't think I had celiac because even though I have most of the symptoms (also Sjogren's, Renaud's, diabetes, arthritis, loss of hair, and skin disorders, as well as severe vaginal dryness resulting in embarrassing, painful, external rash with swelling [urticaria]- which has also vanished with diet- and what seemed to be herpes lesions for which my primary doctor prescribed acylovir- didn't help;eventually biopsied positive for lichen planus) I am seriously overweight. This did not seem consistent with celiac, but my endocrinologist said that since going gluten free my severe diabetes has almost normalized and the gas, bloating and irritable bowel return as soon as I cheat with gluten, that I might have celiac, so ordered a blood test for it.

I wondered if other normal or overweight folks have confirmed celiac.


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lovegrov Collaborator

Yes, not all people with celiac are skinny. That's one of the celiac urban legends, overweight people can't have celiac.

richard

jerseyangel Proficient

Welcome to the board, prisca!

Yes, it's true that you don't have to be underweight to have Celiac. I was always 15 or so pounds above my "ideal" weight while having symptoms for many years. Only in the year before diagnosis, when I got too sick to go to work, did I lose weight.

Literally, as soon as I started on the diet, I started to gain back the weight and at my 2 month appointment I had gained 10 pounds.

We come in all sizes :D

Salax Contributor

I too am an overweight Celiac. But when I started the gluten-free diet I started to drop the weight, feelings of hunger have come back to normal levels and I feel fuller when eating less. Some days I don't have any hunger..weird! So once your gluten-free and have been for a while it should help with the weight coming off. But don't for get to exercise. Now that I am gluten-free I have the energy to exercise again! WOOT! I use to be an athlete, so I miss my body. :D

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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