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I'm G.intolerant - Son Has Diarrhea

2plustwins

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2plustwins Rookie
2plustwins
Posted

I am gluten intolerant - diagnosed about a year ago. One of my two year old twins has had diarrhea for over awhile. Awful smelling, very frequent (4-6 a day), mostly green . . . He is smaller than his twin and also has extreme tantrums. He used to have constipation really bad.

I had him tested a year ago (blood testing) and the results were fine. He was only 16 months at the time. I wonder if maybe he did not have enough gluten in him at the time OR if maybe I am just over-reacting.

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ang1e0251 Contributor
ang1e0251
Posted

I've read that testing in children is very inconsistant. I wouldn't believe the results unless they were positive. Have you tried a gluten-free diet for him? It would probably decide it for you if he responded to it.

daphniela Explorer
daphniela
Posted

16 months is probably too young to be tested. My son is 13 months and the doctor said he's too young. I cut out milk and his diarrhea went away. He still gets cheese though.

lizajane Rookie
lizajane
Posted

please try gluten free. who cares what the test says??? if he responds to a gluten free diet, you have your answer. my son also tested negative (at about 9 months old) but when we took him off gluten at age 4, he changed into a new happy guy in THREE DAYS. he started to sleep all night. he started to be sweet all day every day. his tummy went flat. please tr it! it changed out little guy's life, and therefore, ours!! no more crazy tantrums and all night sleep!!!!

2plustwins Rookie
2plustwins
Posted
  • Author
please try gluten free. who cares what the test says??? if he responds to a gluten free diet, you have your answer. my son also tested negative (at about 9 months old) but when we took him off gluten at age 4, he changed into a new happy guy in THREE DAYS. he started to sleep all night. he started to be sweet all day every day. his tummy went flat. please tr it! it changed out little guy's life, and therefore, ours!! no more crazy tantrums and all night sleep!!!!

thanks so much! He is gluten free, as of yesterday. I hope we have great results in a few days like you did!

:)

I'll let you know.

  • 1 month later...
fripp017 Apprentice
fripp017
Posted

Hi. I know this is off topic to your question, but I was wondering how you were diagnosed with gluten-intolerance. My kids seem to be showing signs of gluten-intolerance and/or Celiac Disease. They are in the process of being tested, but the doctor practically ignores the idea of gluten-intolerance. I was just wondering what it took to get the diagnosis. Thanks :)

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    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

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      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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