Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Glutnened


JBaby

Recommended Posts

JBaby Enthusiast

When you have or had been glutenend accidently, how long did your symptoms last? I am going on past 24 hrs. Stilll nauseated, irritable. Belly hurt last night but it diminished. IIn credibly tired, went to work 2 hours late and lft and hour and half early. I am hungry but feel too sick to put anything inmy tummy.

JBaby


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Salax Contributor

3 days for me. I feel ya. :( Hang in there. It will pass.

nutralady2001 Newbie

I'm on my third day atm.

I haven't been glutened for months even when out but got glutened by c/c when out on Monday night.......it's been really miserable. The D has passed but still stomach cramps and pains so another quiet day but might be able to manage some pottering around the house catching up on things like washing

caligirl2001 Newbie

At least 3 days, sometimes closer to a week. Hope you are better soon!

JBaby Enthusiast
When you have or had been glutenend accidently, how long did your symptoms last? I am going on past 24 hrs. Stilll nauseated, irritable. Belly hurt last night but it diminished. IIn credibly tired, went to work 2 hours late and lft and hour and half early. I am hungry but feel too sick to put anything inmy tummy.

JBaby

Glad I am not alone. I am feeling better. Went to bed at 7:30 last night, slept it off. Slept 11 hours. Mild headache but better than yesterday.

JBaby

ravenwoodglass Mentor

My symptoms have a definate progression. The gut issues resolve with in about 3 days but for full resolution of all the other issues takes about 3 weeks.

mysecretcurse Contributor

I react to gluten in a variety of unpleasant ways.

Gut reaction (bloating, gas, pain, constipation): about 2 days

Mental reaction (depression, anxiety, irritability): 2-3 days

Skin reaction (the WORST by far, I get big red extremely painful cystic acne/Dh(?) on my face and scalp)2-3 WEEKS and sometimes a month to go away completely. That is why I am always devstated when I get glutened, the skin reaction is bad and it leaves scars. :(

My worst reaction ever was one time I ate a lot of gluten by mistake (stupid, stupid me!). I had just started eating meat again after being veggie for 3 years and I ate a plateful of tyson chicken strips and rice. Being that I was a vegetarian before I had just assumed all non-breaded meat was gluten free. I had no idea, and God did I pay for it. I thought I was just dying or something until a day later my mom ran in and said that she found out the chicken I ate had wheat in it.

It was terrible, very bad mental issues, I couldn't even think my brain felt like mush, also it did something to my thyroid or something with my circulation, because my entire body felt like ice and I would just shiver and shiver. I had to take hot baths all throughout the day to try and stay warm. Also I broke out in the painful rash all over, it sucked. That time it took a month to go away and I will never be so careless ever ever again!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emcmaster Collaborator

It depends how often I've been glutened recently. If it's been a while and I've healed from the last time, it might only last a week and after that I'll feel completely fine. If it hasn't been a while, it's about a week of really bad symptoms and then I'll have a couple bad days a week for the next several weeks before it runs its course.

loco-ladi Contributor

Chalk me out of commision for a week most times, I cant even concider going to work for at least 3 days.

rubyred Apprentice

For me it's usually at least 2 days, sometimes up to 4 or 5 depending on how much I eat. Usually, I only get glutened from CC issues so it mostly only lasts a couple days. For me, the worst is the horrible gas and D. Sometimes the gas happens within a couple hours but sometimes it doesn't show up until the next day. Then every time I eat anything, my stomach rumbles and feels unsettled and I have to rush to the bathroom (usually at least 5-6 times by lunchtime). Also, I get depressed/irritable. Sometimes I bloat and get stomach pain. Sometimes I get really tired.

Does anyone else find that their reactions tend to be slightly different each time? I don't mean reaction time, but actual symptoms that come?

samcarter Contributor

For me it seems to depend on how much I ate. I had some Rice Dream frozen dessert that, after I ate it, I realized had barley malt sweetener in it. Within a few hours I had a nasty, horrible sinus headache. I hadn't had any dairy that day, so I know that wasn't it. The headache lasted all night and this morning was gone. Since the barley malt was only an ingredient int he carob chips in the ice cream, it probably wasn't a whole lot.

But I may wake up tomorrow with horrible constipation, so who knows.

If i ate a piece of bread, I'd be vomiting within an hour, and feeling horrible for a day or two.

mysecretcurse Contributor
If i ate a piece of bread, I'd be vomiting within an hour, and feeling horrible for a day or two

Dang. I think if I ate a piece of bread I'd honestly probably die.

emcmaster Collaborator
Dang. I think if I ate a piece of bread I'd honestly probably die.

What I find perplexing is that if I actually eat a piece of bread, my reaction is only slightly more severe than if I get glutened through CC. Strange.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

    2. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Have I got coeliac disease

    3. - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

    4. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

    5. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
    • JudyLou
      Oops! @Staticgypsy, I’ll get the book! Thank you! 
    • JudyLou
      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.