Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Glutnened

JBaby

By JBaby
in Coping with Celiac Disease

Recommended Posts

JBaby Enthusiast
JBaby
Posted

When you have or had been glutenend accidently, how long did your symptoms last? I am going on past 24 hrs. Stilll nauseated, irritable. Belly hurt last night but it diminished. IIn credibly tired, went to work 2 hours late and lft and hour and half early. I am hungry but feel too sick to put anything inmy tummy.

JBaby

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Salax Contributor
Salax
Posted

3 days for me. I feel ya. :( Hang in there. It will pass.

nutralady2001 Newbie
nutralady2001
Posted

I'm on my third day atm.

I haven't been glutened for months even when out but got glutened by c/c when out on Monday night.......it's been really miserable. The D has passed but still stomach cramps and pains so another quiet day but might be able to manage some pottering around the house catching up on things like washing

caligirl2001 Newbie
caligirl2001
Posted

At least 3 days, sometimes closer to a week. Hope you are better soon!

JBaby Enthusiast
JBaby
Posted
  • Author
When you have or had been glutenend accidently, how long did your symptoms last? I am going on past 24 hrs. Stilll nauseated, irritable. Belly hurt last night but it diminished. IIn credibly tired, went to work 2 hours late and lft and hour and half early. I am hungry but feel too sick to put anything inmy tummy.

JBaby

Glad I am not alone. I am feeling better. Went to bed at 7:30 last night, slept it off. Slept 11 hours. Mild headache but better than yesterday.

JBaby

ravenwoodglass Mentor
ravenwoodglass
Posted

My symptoms have a definate progression. The gut issues resolve with in about 3 days but for full resolution of all the other issues takes about 3 weeks.

mysecretcurse Contributor
mysecretcurse
Posted

I react to gluten in a variety of unpleasant ways.

Gut reaction (bloating, gas, pain, constipation): about 2 days

Mental reaction (depression, anxiety, irritability): 2-3 days

Skin reaction (the WORST by far, I get big red extremely painful cystic acne/Dh(?) on my face and scalp)2-3 WEEKS and sometimes a month to go away completely. That is why I am always devstated when I get glutened, the skin reaction is bad and it leaves scars. :(

My worst reaction ever was one time I ate a lot of gluten by mistake (stupid, stupid me!). I had just started eating meat again after being veggie for 3 years and I ate a plateful of tyson chicken strips and rice. Being that I was a vegetarian before I had just assumed all non-breaded meat was gluten free. I had no idea, and God did I pay for it. I thought I was just dying or something until a day later my mom ran in and said that she found out the chicken I ate had wheat in it.

It was terrible, very bad mental issues, I couldn't even think my brain felt like mush, also it did something to my thyroid or something with my circulation, because my entire body felt like ice and I would just shiver and shiver. I had to take hot baths all throughout the day to try and stay warm. Also I broke out in the painful rash all over, it sucked. That time it took a month to go away and I will never be so careless ever ever again!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


emcmaster Collaborator
emcmaster
Posted

It depends how often I've been glutened recently. If it's been a while and I've healed from the last time, it might only last a week and after that I'll feel completely fine. If it hasn't been a while, it's about a week of really bad symptoms and then I'll have a couple bad days a week for the next several weeks before it runs its course.

loco-ladi Contributor
loco-ladi
Posted

Chalk me out of commision for a week most times, I cant even concider going to work for at least 3 days.

rubyred Apprentice
rubyred
Posted

For me it's usually at least 2 days, sometimes up to 4 or 5 depending on how much I eat. Usually, I only get glutened from CC issues so it mostly only lasts a couple days. For me, the worst is the horrible gas and D. Sometimes the gas happens within a couple hours but sometimes it doesn't show up until the next day. Then every time I eat anything, my stomach rumbles and feels unsettled and I have to rush to the bathroom (usually at least 5-6 times by lunchtime). Also, I get depressed/irritable. Sometimes I bloat and get stomach pain. Sometimes I get really tired.

Does anyone else find that their reactions tend to be slightly different each time? I don't mean reaction time, but actual symptoms that come?

samcarter Contributor
samcarter
Posted

For me it seems to depend on how much I ate. I had some Rice Dream frozen dessert that, after I ate it, I realized had barley malt sweetener in it. Within a few hours I had a nasty, horrible sinus headache. I hadn't had any dairy that day, so I know that wasn't it. The headache lasted all night and this morning was gone. Since the barley malt was only an ingredient int he carob chips in the ice cream, it probably wasn't a whole lot.

But I may wake up tomorrow with horrible constipation, so who knows.

If i ate a piece of bread, I'd be vomiting within an hour, and feeling horrible for a day or two.

mysecretcurse Contributor
mysecretcurse
Posted
If i ate a piece of bread, I'd be vomiting within an hour, and feeling horrible for a day or two

Dang. I think if I ate a piece of bread I'd honestly probably die.

emcmaster Collaborator
emcmaster
Posted
Dang. I think if I ate a piece of bread I'd honestly probably die.

What I find perplexing is that if I actually eat a piece of bread, my reaction is only slightly more severe than if I get glutened through CC. Strange.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Me,Sue
      - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
    2. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    3. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,852
    • Most Online (within 30 mins)
      7,748
    LG2
    Newest Member
    LG2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.