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JBaby

Being Glutnened

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When you have or had been glutenend accidently, how long did your symptoms last? I am going on past 24 hrs. Stilll nauseated, irritable. Belly hurt last night but it diminished. IIn credibly tired, went to work 2 hours late and lft and hour and half early. I am hungry but feel too sick to put anything inmy tummy.

JBaby

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3 days for me. I feel ya. :( Hang in there. It will pass.


Salax
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Celiac Disease - Gluten Free since Feb 2009,
Cow Milk &  Corn free - June 2012,
Gall Bladder Failure - Removed July 2009,
Colitis, Hashimotos Disease, & Diverticulitis

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
( )_( )
(='.'=)
(")_(") Eat your vegetables!

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I'm on my third day atm.

I haven't been glutened for months even when out but got glutened by c/c when out on Monday night.......it's been really miserable. The D has passed but still stomach cramps and pains so another quiet day but might be able to manage some pottering around the house catching up on things like washing


Diagnosed Eczema 1964 aged 16 but with what I know now from research am sure it was Dermatitis Herpetiformis

Diagnosed Irritable Bowel Syndrome 1969 at age 21 but had it from age of 12 many painful episodes over the years( was probably Coeliac all along)

Diagnosed Hashimoto's Disease/Hypothyroid November 1994

Low B12 November 2006

Low B12 (still!) July 2007 Docs are happy with results just above low end of normal..*sigh*....still need to resolve it

Gluten free since October 2006 after failing gluten challenge

Diagnosed Hiatus Hernia and Los Angeles Grade A reflux via endoscopy October 2007

Diagnosed with Coeliac Disease via same endoscopy / biopsy October 2007 (took them long enough!) despite being gluten-free damage still evident although had been taking iron tablets for iron deficiency without realizing they contained gluten. Subsequent blood tests show :Positive Anti-Gliadin IgA EIA antibodies, Positive Endomysial antibodies ,Positive tTG IgA antibodies of 300 ("normal" range 0-15)

Auto-immune disease goes back at least 5 generations in my family (and counting) Mainly Type 1 diabetes and rheumatoid arthritis.

Number 1 Son has Type 1 diabetes ..diagnosed March 2007 at age 31, number 2 son aged 24 is A/I disease free so far ,daughter has lichen planus ( similar to psoriasis) diagnosed 2003 at age 17 am now wondering if it is DH but with flippancy of the young she won't get any testing done

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At least 3 days, sometimes closer to a week. Hope you are better soon!


Positive response to elimination diet November 2008

Gluten free since November 2008

Dairy free since March 2011

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When you have or had been glutenend accidently, how long did your symptoms last? I am going on past 24 hrs. Stilll nauseated, irritable. Belly hurt last night but it diminished. IIn credibly tired, went to work 2 hours late and lft and hour and half early. I am hungry but feel too sick to put anything inmy tummy.

JBaby

Glad I am not alone. I am feeling better. Went to bed at 7:30 last night, slept it off. Slept 11 hours. Mild headache but better than yesterday.

JBaby

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My symptoms have a definate progression. The gut issues resolve with in about 3 days but for full resolution of all the other issues takes about 3 weeks.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I react to gluten in a variety of unpleasant ways.

Gut reaction (bloating, gas, pain, constipation): about 2 days

Mental reaction (depression, anxiety, irritability): 2-3 days

Skin reaction (the WORST by far, I get big red extremely painful cystic acne/Dh(?) on my face and scalp)2-3 WEEKS and sometimes a month to go away completely. That is why I am always devstated when I get glutened, the skin reaction is bad and it leaves scars. :(

My worst reaction ever was one time I ate a lot of gluten by mistake (stupid, stupid me!). I had just started eating meat again after being veggie for 3 years and I ate a plateful of tyson chicken strips and rice. Being that I was a vegetarian before I had just assumed all non-breaded meat was gluten free. I had no idea, and God did I pay for it. I thought I was just dying or something until a day later my mom ran in and said that she found out the chicken I ate had wheat in it.

It was terrible, very bad mental issues, I couldn't even think my brain felt like mush, also it did something to my thyroid or something with my circulation, because my entire body felt like ice and I would just shiver and shiver. I had to take hot baths all throughout the day to try and stay warm. Also I broke out in the painful rash all over, it sucked. That time it took a month to go away and I will never be so careless ever ever again!

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It depends how often I've been glutened recently. If it's been a while and I've healed from the last time, it might only last a week and after that I'll feel completely fine. If it hasn't been a while, it's about a week of really bad symptoms and then I'll have a couple bad days a week for the next several weeks before it runs its course.


ELIZABETH

gluten-free (04.17.2006)

corn-free (03.27.2007)

xanthan gum-free

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Chalk me out of commision for a week most times, I cant even concider going to work for at least 3 days.


Just my .00000002 cents worth

If I knew what I was doing years ago I would have half a clue today!

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For me it's usually at least 2 days, sometimes up to 4 or 5 depending on how much I eat. Usually, I only get glutened from CC issues so it mostly only lasts a couple days. For me, the worst is the horrible gas and D. Sometimes the gas happens within a couple hours but sometimes it doesn't show up until the next day. Then every time I eat anything, my stomach rumbles and feels unsettled and I have to rush to the bathroom (usually at least 5-6 times by lunchtime). Also, I get depressed/irritable. Sometimes I bloat and get stomach pain. Sometimes I get really tired.

Does anyone else find that their reactions tend to be slightly different each time? I don't mean reaction time, but actual symptoms that come?

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For me it seems to depend on how much I ate. I had some Rice Dream frozen dessert that, after I ate it, I realized had barley malt sweetener in it. Within a few hours I had a nasty, horrible sinus headache. I hadn't had any dairy that day, so I know that wasn't it. The headache lasted all night and this morning was gone. Since the barley malt was only an ingredient int he carob chips in the ice cream, it probably wasn't a whole lot.

But I may wake up tomorrow with horrible constipation, so who knows.

If i ate a piece of bread, I'd be vomiting within an hour, and feeling horrible for a day or two.


Negative EMA test 8/08

Gluten free 8/08

Positive response to dietary change

Dairy free 3/09

Citrus free 5/09

Allergies: bananas, apples, green beans, mold.

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Dang. I think if I ate a piece of bread I'd honestly probably die.

What I find perplexing is that if I actually eat a piece of bread, my reaction is only slightly more severe than if I get glutened through CC. Strange.


ELIZABETH

gluten-free (04.17.2006)

corn-free (03.27.2007)

xanthan gum-free

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