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Ige Numbers Still Sky High After 14 Months Gluten Free

Amyleigh0007

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Amyleigh0007 Enthusiast
Amyleigh0007
Posted

My son had his one year re-test last week. I had the office mail me the results and I am confused. I also have his original test results so I can compare.

His original IgE was 3904 with a ref range <OR=280.

His test done last week had his IgE at 1579 with a ref range <OR=304.

Both numbers are considered "high" according to this report.

He also had a Transglutaminase IgA Antibody. His original result was 52 with a ref range <5. It is noted on the report that is "extremely high".

His test done last week had this test as a 3. It is noted as "normal"

My question is should I be concerned with the still high IgE test? Is that the Celiac test? Does that mean he is getting gluten from somewhere? Or, should I be happy with the re-test results (both numbers did come down signifigantly). It has been about 14 months since he went gluten free.

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happygirl Collaborator
happygirl
Posted

The total IgE test is not a Celiac test. None of the Celiac tests are even IgE based. You may want to ask your doctor for further explanation, but I don't think its Celiac related.

The best part is that you said, "He also had a Transglutaminase IgA Antibody. His original result was 52 with a ref range <5. It is noted on the report that is "extremely high".

His test done last week had this test as a 3. It is noted as "normal" -------- This is GREAT!!!!!!!

Amyleigh0007 Enthusiast
Amyleigh0007
Posted
  • Author

What test would I request if I wanted to know if he was still getting gluten in his diet? Do you know what the IgE test tests for? Is it allergy related? I thought I was clear with my requests but I guess not. He does have many food allergies. I wonder if she tested him for that..... I will have to google IgE. Thanks for your reply. I knew I could count on the folks at celiac.com!

happygirl Collaborator
happygirl
Posted

You want the tTG test to be negative - that indicates his damage is healing/healed. If his numbers there were still high, then I would be concerned about still getting gluten.

You had the right test done - Open Original Shared Link However, you may want to talk to them about the other tests mentioned in this file from the Univ. of Chicago Celiac Center.

JennyC Enthusiast
JennyC
Posted

It's great that his tTG levels are normal, that's cause for celebration! :) His IgE is very high and I would speak to a doctor about this. IgE are related to "traditional" allergies, such as Hay fever or other food allergies, parasitic infections, and inflammatory responses. Does your son have environmental allergies or other food allergies? If it is other food allergies, he should have a reaction shortly after consuming the allergen. If he does not have any allergies that you are aware of, maybe an allergy test should be considered.

Allergy testing information:

Open Original Shared Link

There are many possible reasons for high IgE levels:

Open Original Shared Link

Hummingbird4 Explorer
Hummingbird4
Posted

A high IgE indicates an allergic reaction taking place in the body - not related to Celiac.

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