Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Sure If This Is A Symptom Of Celiac Disease Or Diabetes


The Fluffy Assassin

Recommended Posts

The Fluffy Assassin Enthusiast

nor quite how to describe it. Before I quit gluten, I often and increasingly had the sensation that my entire circulatory system was a big bruise. Everything hurt, but very slightly. It was ultra-odd. Does this make sense? Unfortunately, that sensation is now back. What I suspect is that I was on the verge of full-blown diabetes, and that the weight-loss and increased exercise after quitting gluten caused it to recede, but that now my genes have caught up to me. (My dad and one of my brothers are both sufferers.) Alternately, it might be a celiac-related symptom and I may have gotten some contaminated millet. (I ate millet couscous for each of the last five days and felt odder every day.) Has anyone experienced or even heard of such a symptom? Any suggestions on how better to word it? Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mimommy Contributor
What I suspect is that I was on the verge of full-blown diabetes, and that the weight-loss and increased exercise after quitting gluten caused it to recede, but that now my genes have caught up to me. (My dad and one of my brothers are both sufferers.)

What type of diabetes do your father and brother have? Diabetes and celiac can be connected, so you should be checked for both. Type I diabetics should be tested for Celiac. If you are Celiac your other family members may be, too. You are definitely taking a proactive approach, and I wish I could offer more insight into your symptom.

P.S. Your cat looks just like my husband's cat when he was growing up. Persian?

sarahk47 Newbie
Before I quit gluten, I often and increasingly had the sensation that my entire circulatory system was a big bruise. Everything hurt, but very slightly.

I had the same symptom before I went gluten-free the first time, and the symptom went away completely when I went gluten-free. I did a gluten challenge after that (not recommended!), and when I went gluten-free the 2nd (and final) time, that symptom lingered. It turned out that during my gluten challenge I had also become lactose intolerant, and as soon as I quit dairy the soreness went away again.

I hope you're able to figure it out!

The Fluffy Assassin Enthusiast
What type of diabetes do your father and brother have? ...

P.S. Your cat looks just like my husband's cat when he was growing up. Persian?

Both are adult onset, which apparently is Type 2. I believe that my late mom was celiac, and her brother died of intestinal cancer, so I'd call it a good chance that he was, too. I've told the diabetic brother that he's probably celiac and should be tested or at least try giving up gluten, but he's shown little interest so far. I'm going to offer to cook for him; I have a feeling he'll be surprised how good gluten free cooking can be; everybody else has been.

Amelia the monkey cat is officially a domestic longhair, though I like to claim that she's a Norwegian Forest Cat. The likeliest is that she's largely NFC or Maine Coon, with maybe a little Persian in there, too. Where she picked up the Nothing But Trouble gene, I don't know.

The Fluffy Assassin Enthusiast
I had the same symptom before I went gluten-free the first time, and the symptom went away completely when I went gluten-free. I did a gluten challenge after that (not recommended!), and when I went gluten-free the 2nd (and final) time, that symptom lingered. It turned out that during my gluten challenge I had also become lactose intolerant, and as soon as I quit dairy the soreness went away again.

I hope you're able to figure it out!

Yeah, I'd rather be unsure my whole life than go back on gluten again for a gluten challenge. Thanks for the information; it looks like the millet I got from the bulk bin must have been gluten-contaminated. Don't think I'll be getting anything from bulk bins again. As to lactose intolerance, as you can see in my signature, I got here from the opposite direction, realizing I was celiac after confronting lactose intolerance. After a year and a half gluten free, I'm not lactose intolerant anymore. Do you think it might be casein? Lactaid takes care of all the symptoms of lactose intolerance that I know of.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.