Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Any One Experienced More Effects From Caffeine After Going gluten-free?

mattathayde

Recommended Posts

mattathayde Apprentice
mattathayde
Posted

Ok so ive started cutting out gluten about april 08, got strict with my self in july 08 and found i was using some glutened products in food still between jan-march of this year (not all the time but a few time here and there). any way ive noticed that i seem to be having some anxiety/feeling just "off" lately and was wondering if logically since im able to absorb more stuff now via intestine if maybe im picking up more caffeine causing me to feel weird?

-matt

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Billygean Apprentice
Billygean
Posted

I gave up caffeine when I gave up gluten in June 08. I tried to reintroduce it and every time I did I had basically panic attacks. It has a MAJOR effect on me!

mattathayde Apprentice
mattathayde
Posted
  • Author

it doesnt happen all the time (i drink a lot of loose leaf tea and dont feel like this all the time), but since i drank a gallon of sweet tea in basically 2 days a couple months ago it seems to hit me more this way but only some times.

i guess i did take in a good amount of caffeine yesterday (32 oz cup of sweet tea, 2 cups of hot tea, and one of the super extreme huge refillable big gulp things of a coke slurpee)

but a few days ago i was feeling weird and i dont think i had a whole lot of caffeine then, probably a quart of sweet iced tea and then a 2 cups of black tea and the rest was no caffine

-matt

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Before going gluten free I drank several POTS of coffee and at least 3 liters of coca cola daily. The caffeine didn't seem to bother me. Now that I'm gluten free if I drink 1 cup of regular coffee after 12 noon I'm awake all night.

Liveenjoylife Apprentice
Liveenjoylife
Posted

I know what you mean. After I diagnosed my self with celiac disease I noticed I was having an upset stomach after drinking caff. coffee. It made me want to vomit. Haven't touched it since. I thought it was all in my head so I am relieved to read that it wasnt, lol.

mysecretcurse Contributor
mysecretcurse
Posted

Yes, most definitely. Caffeine effects me a lot. In fact, since going gluten free it seems EVERYTHING effects me more than it used to.

ang1e0251 Contributor
ang1e0251
Posted

I had to give up coffee as it was causing tremors of my tongue and jaw. But I don't think it was the caffiene as I have more caffein now in tea than I used to. But there are certain teas that really make me feel bad, I don't know why. They don't appear to have gluten in them but made me really sick. I just had to stop drinking those kinds. And strangly the tea from McDonald's makes me gain weight! Sweetened or unsweetened! That's really weird...sigh

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mattathayde Apprentice
mattathayde
Posted
  • Author
I had to give up coffee as it was causing tremors of my tongue and jaw. But I don't think it was the caffiene as I have more caffein now in tea than I used to. But there are certain teas that really make me feel bad, I don't know why. They don't appear to have gluten in them but made me really sick. I just had to stop drinking those kinds. And strangly the tea from McDonald's makes me gain weight! Sweetened or unsweetened! That's really weird...sigh

hmmmm just goes to show that McD's is making america fat ;) thats weird though since tea should make you lose weight

i slept a lot better last night and had basically no caffeine so i guess i need to play with how much i can take in a day. i am pretty sure i can drink a good amount of it just need to remember if i get one of those slurpies to not have any other caffeine

-matt

  • 1 month later...
Kitface Newbie
Kitface
Posted

I was wondering if there was gluten in Relentless energy drinks. cos one can does me ALL day. I dont get how people can drink a can of red bull or wahtever in 10 minutes. if i do i go loopy and my heart races and i feel really anxious. so i figured they had gluten. i guess it could be the faster absorbing-ness-thing :)

boysmom Explorer
boysmom
Posted

It makes sense to me. I only drink coffee or caffeinated drinks (tea or dr pepper) a few times a week annd haven't noticed any issues yet, but I have noticed if I drink a glass of wine I start feeling really loopy for about an hour and had about decided to just take a couple sips of my dh's instead of my own glass.

rueyn Apprentice
rueyn
Posted
Ok so ive started cutting out gluten about april 08, got strict with my self in july 08 and found i was using some glutened products in food still between jan-march of this year (not all the time but a few time here and there). any way ive noticed that i seem to be having some anxiety/feeling just "off" lately and was wondering if logically since im able to absorb more stuff now via intestine if maybe im picking up more caffeine causing me to feel weird?

YES! I was drinking 3-4 cups of black tea a day before I went gluten-free, and now (four months later) if I had anything more than one small cup of green tea in the mornings I can't sleep at night. It's crazy, isn't it? I guess things it must just absorb more, plus you're probably not nearly as fatigued as you were before going gluten-free, so your body doesn't need all the caffeine?

ranger Enthusiast
ranger
Posted

I, too, have gone from 1/2 pot to one cup of coffee a day. Guess it's not all in my head. I'm thinking about just giving it up. My coffeepot went kapute and I'm seriously thinking of not replacing it!

cbear6301 Explorer
cbear6301
Posted

Very happy to see this.. I thought I was going crazy....coffee has a completely different affect on me than it did before... Thanks for this post.

taweavmo3 Enthusiast
taweavmo3
Posted

Just last week I gave up my beloved coffee! I only drank one cup a day, but man did I love that cup each day. Anyway, I think it was tearing up my stomach and causing my heart to race. My stomach over time has become more and more sensitive to things, and it was gettting to where I was scared to eat anything. One morning, after a new brand of coffee (which is gluten free, but maybe stronger?) my heart was in the 120's all day. I haven't had coffee since then, and I feel ten times better. I actually feel like I have more energy, and slowly my stomach is tolerating more foods. I still can't tolerate refined carbs, such as any baked goods :( , b/c they also make my heart race and kill my stomach, not sure what the deal is there, lol.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying...
    2. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    3. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    5. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748
    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.