Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elimination Diet?

FMcGee

By FMcGee
in Coping with Celiac Disease

Recommended Posts

FMcGee Explorer
FMcGee
Posted

Hi, everyone! So, I'm over two weeks into the gluten-free diet and not feeling all better, which I know is not cause for concern. I've read a couple of places that celiacs tend to be lactose intolerant, so I'll cut out dairy, but I've also seen that people start out eating one thing (rice, maybe) and then add another thing, and then another thing, until they can pinpoint problematic foods. Is this the way to go? I haven't met with a nutritionist yet (I actually only got back the official biopsy results this morning, which were positive, no surprise). My doctor is going to set me up with a nutritionist in the next couple of weeks, but in the meantime, what's the way to go? I already eat a whole-foods, vegetable/fruit based diet, so I'm not a nutritional lost cause, but should I just cut out gluten and dairy and see how that goes? Should I start from scratch and work my way up? Any advice is welcome! I love this forum - thanks to all of you for being so supportive and helpful to me and to everyone else.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I would start by cutting out just the gluten and dairy and possibly soy. It does take a while to heal and there is much to learn about nonfood sources of gluten in the begginging. If you are still having severe issues freqently after that a good person to see is an allergist. They can do skin testing for actual allergies and then give you a nutritioanally sound starting point for the diet that will generally start with about 5 allowed foods. Welcome to the board and I hope you feel better soon.

Crayons574 Contributor
Crayons574
Posted
Hi, everyone! So, I'm over two weeks into the gluten-free diet and not feeling all better, which I know is not cause for concern. I've read a couple of places that celiacs tend to be lactose intolerant, so I'll cut out dairy, but I've also seen that people start out eating one thing (rice, maybe) and then add another thing, and then another thing, until they can pinpoint problematic foods. Is this the way to go? I haven't met with a nutritionist yet (I actually only got back the official biopsy results this morning, which were positive, no surprise). My doctor is going to set me up with a nutritionist in the next couple of weeks, but in the meantime, what's the way to go? I already eat a whole-foods, vegetable/fruit based diet, so I'm not a nutritional lost cause, but should I just cut out gluten and dairy and see how that goes? Should I start from scratch and work my way up? Any advice is welcome! I love this forum - thanks to all of you for being so supportive and helpful to me and to everyone else.

When I cut out gluten and dairy, it took me about 5 months for me to actually feel better, and about a year for my stomach to heal. If you are unsure about the need to cut out both, just start by cutting out gluten. But you have to really cut gluten out (and by that, I mean avoiding cross-contamination and hidden sources). Give it a month or so, and if you don't feel the least bit better, try cutting something else out. The most frustrating part about the elimination diet, is that it's no direct answer over night. It took me about a year of trying and avoiding certain foods, and you will eventually learn to tell what your body can and cannot tolerate. It's all process of elimination and trial & error. Good luck!

mattathayde Apprentice
mattathayde
Posted

2 weeks in dont even think about elimination diets. it takes AT LEAST a month for the gluten to clear from your body and then your body can start to heal. in a couple of months if you have no results then look into it.

personally i think elimination diets are a waste of time and put a lot of stress on you but i also have an alternative medicine person who does muscle testing to test for sensitivities and allergies so instead of wasting 3 weeks to figure out what makes me sick i can spend 3 hours to go down, get tested, get treated for it and wait a day before i can eat it again and am fine (the method is called Bio Set).

just eat simply, organic, etc and you should get more results pretty fast

-matt

FMcGee Explorer
FMcGee
Posted
  • Author

Thanks, everyone! I really appreciate your feedback. I'm already a pretty healthy eater, and I think I'm overthinking things a little. I'll give it two more weeks, and in that space of time hopefully I will be able to meet with a dietician who can do all the good evaluating stuff they do.

mattathayde Apprentice
mattathayde
Posted
Thanks, everyone! I really appreciate your feedback. I'm already a pretty healthy eater, and I think I'm overthinking things a little. I'll give it two more weeks, and in that space of time hopefully I will be able to meet with a dietician who can do all the good evaluating stuff they do.

o also get a good gluten free multivitamin if your not taking one yet (if you are taking one and have not yet checked into it make sure it is gluten free, i take a mix made by thorne). i found that helped me a whole lot, slept better, had less digestive issues even after being gluten-free for a while

pick up "1000 gluten free recipes" its a great resource.

have they put whole foods in where your at yet? if so they are awesome with the stuff they stock, their in house stuff is pretty bad over all honestly but they have a god amount of frozen meals, a whole isle of gluten free stuff, and mark basically everything that is gluten-free except drinks

-matt

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,372
    • Most Online (within 30 mins)
      7,748
    cianb4121
    Newest Member
    cianb4121
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      Coeliac UK Research Conference 2025

      By Russ H · Posted

      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Basic metabolic panel results - more flags

      By Rejoicephd · Posted

      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.