Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Message For Jmd3- Weird Head Feelings- Can't Send Private Message For Some Reason


srthomas21

Recommended Posts

srthomas21 Explorer

Hi

If anyone can tell me why I can't send private messages that would be great. In the meantime if anyone knows jmd3 could you pass this message to her?

I read her post about the weird head feelings, feeling like there is pressure in your head and weird stiff neck symptoms as well as hearing a weird clicking cracking noise in my head. I have all of these symptoms she described in her post a couple years ago.

Dr. thinks I have celiac (waiting for biopsy) but this weird head feeling is driving me insane and I'm wonder what she did to fix the problem. I haven't gone on gluten free diet yet because I haven't been diagnosed....

My mom has Celiac so pretty good chance I have it as well. I also have Ulcerative Colitis and head my colon removed about ten years ago....yaaaay another potential disease :(

Any help from jmd3 or anyone else with weird head and neck issues would be greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srthomas21 Explorer

Could someone explain how to send private messages? I try to send and it gives me an error that says I'm not allowed to use the messanger service? How do I activate that?

psawyer Proficient

Due to a lot of recent problems with spammers, use of the personal messenger feature is restricted. New members have to have a minimum number of posts before they can use the pm feature.

Can you not simply post a reply to her in the topic where she posted about this. Although the topic is old, she is still an active board member, last seen a week ago.

srthomas21 Explorer

Thanks for the info, the old post was archived so I couldn't reply to it. I could post to one of her newer messages though. I will try that.

Thanks again

psawyer Proficient

Here is a link to the open thread by jmd3 about head feelings:

https://www.celiac.com/gluten-free/index.ph...c=32971&hl=

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.