Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To gluten-free Diet


MaddieGsMom

Recommended Posts

MaddieGsMom Newbie

My DD was Dx in April and we have been gluten-free for a little over a month. She has been diagnosed with Failure to thrive, she seems very healthy, never complains about anything but is significantly smaller than her peers. We were using boost kids essentials which is gluten free, but expensive. Our celiac nutritionist told us to switch to Carnation instant breakfast. Just noticed that it is processed on equipment that processes wheat. It seems a little off. There are differing opinions on what is safe, and to go on to carnations site, they claim that their powder is gluten-free and their liquid only has 1ppm of barley gluten. Is it good enough to eat things with small chance of Cross contamination and see how it goes?? One of the things that my nutritionist said was that no one can be sure of cross contamination unless the government takes a stand and that if my DD blood tests were good I shouldn't worry. But I do. Any suggestions on topic of Cross Contamination would be great.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



taweavmo3 Enthusiast

Hi! Welcome to the board, this is a great place to be. Personally, we stay away from products that are made in the same facility as wheat. I've tried them, but my dd reacts every time. The nutritionist is correct that you never know 100% of the time if a processed products has contamination, but if it made in the same facility as wheat....that definately increases the chances. And since your dd is just now starting the diet and trying to heal, I would try to avoid those products.

My dd is super sensitive, so most of the time I just stick to a plain, whole foods diet with as little processed food as possible. We eat meat, veggies, rice, fruit and tinkyada pasta. I make my own salad dressings, hummus, dips and sauces, etc. You can trust the gluten free companies that are made in dedicated facilities, and we use those for a quick treat if I don't have time to make something ahead of time. Kraft is another great company that will clearly list any gluten in their products, we love Kraft!

Also, now that she is on the diet and retaining nutrients, she may not need calorie boosters anymore. My dd was failure to thrive too, she was the same weight at age 3 that she was at 12 months old. But 3 months into the diet, she had gained 10 pounds. There are other ways to add in healthy fat and calories too.....olive oil, avacados, coconut milk ( I use this in baking or mix with other milk) coconut oil, nut butters, and almond meal to bake with if nuts aren't a problem.

Hope that helps some! The first few months are hard and frustrating, but it does get easier. This is a great site for info, it was a lifesaver for me in beginning. Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,005
    • Most Online (within 30 mins)
      7,748

    Steven S
    Newest Member
    Steven S
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Exactly, everyone with celiac disease technically has an "intolerance" to these: Wheat: The prolamin is called gliadin. Barley: The prolamin is called hordein. Rye: The prolamin is called secalin. Around 9% of celiacs also should avoid oats (but around the time of diagnosis this may be much higher--some will have temporary intolerance): Oats: The prolamin is called avenin. I had to avoid this for 1-2 years after my diagnosis until my gut healed: Corn: The prolamin is called zein. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • trents
      I think your question needs clarification. Are you asking who gets sick from consuming some of these prolamins are all of them? Everyone in the celiac/gluten sensitive community will get sick from consuming gliadin, hordein and secalin. Some will also get sick from consuming avenin. Apparently, some don't do well with any of them.
    • Bebygirl01
      Prolamins are a type of protein found in cereal grains. Different cereal grains contain different types of prolamins, which are named based on the grain they originate from.  Here's a breakdown by grain:  Wheat: The prolamin is called gliadin. Barley: The prolamin is called hordein. Rye: The prolamin is called secalin. Corn: The prolamin is called zein. Oats: The prolamin is called avenin. Rice: The prolamin is called oryzenin. Sorghum: The prolamin is called kafirin. Prolamins are a major component of cereal storage proteins and are known for their high proline and glutamine content and can get celiacs and non-celiac gluten sensitive individuals sick.
    • DebJ14
      Our son was put on Minocycline for his acne.  It did not solve the acne problem.  He developed drug induced lupus and pericarditis from it and missed an entire year of high school.  He literally went from playing football to bedridden in a couple of weeks.  His PCP tested him for genetic antibiotic resistance and he cannot take any drug in the Tetracycline family.  His gut microbiome was totally destroyed.  In fact he had a stool test done and had no good bacteria, whatsoever.   What did fix his (and his brother's acne) years after the Minocycline debacle was when I was diagnosed with Celiac disease and the kids were tested.  They were both put on a Gluten Free/ Caesin Free diet and within a week both kids were totally free of acne.  The family has now been on the diet 18 years and no acne, except for a teenage grandson who will not adhere.  The big clue that he is eating gluten is that his face breaks out!
×
×
  • Create New...