Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Hidden Gluten


wildones

Recommended Posts

wildones Apprentice

I have been reading through some posts here, and thought I was aware of most hidden gluten foods, but maybe not ?

Would you please share some of the not so obvious things you have found to contain gluten ?

I don't know what we are going to do !

One of my boys has major challenges already nutritionally, he needs to eat MUCH more and more efficient foods than the average kid already because most of his small intestines are gone.

My other son is having a really rough night tonight, that's why I am on my computer very early in the morning (I have been up all night). He is having terrible diarrhea and has vomited about 10 x tonight. My kids went to a party Sun afternoon, and this started Mon. late afternoon. My husband took them, and is not as conscious as I am about foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

On of the common things that contain hidden glutens that most people don't realise is fresh meats, especially chicken, turkey and pork. The manufacturer adds broth and/or natural flavoring to them to make them taste better and be more tender when cooked. Many times these added ingredients have gluten in them.

Connie R-E Apprentice

Oohh! Parties are tough! Ususally they are full of gluten, and the kids just can't control themselves! It's really tough to not sneak a bite of cake, candy, cookie, or something... :(

I always make mini cupcakes to bring--and a beverage. That way we always have a yummy treat to eat! --and no one ever says no to more cupcakes! :P

"Would you please share some of the not so obvious things you have found to contain gluten"

How about glue, Gooze, slime, and playdough. They don't eat them, but if they don't wash their hands afterward, they are eating them!

We've had trouble with Purell hand sanitizer before--even though the company says it is gluten-free!

Cross-contamination with dropped wheat crumbs, or the same spoon used for many things, or anything made in a non-gluten-free kitchen....

Have you read the footnotes at the bottom of the Forbidden Foods list? It shows places where hidden glutens might be found (carmel coloring, flavoring, ect...)

https://www.celiac.com/cgi-bin/webc.cgi/st_...-07104050649.96

Hope your boys feel better soon!

Connie

wildones Apprentice

"We've had trouble with Purell hand sanitizer before--even though the company says it is gluten-free!"

yikes !!!!!

What kind of problems have you had ??

I use that stuff constantly !!! I am a fanatic about my kids keeping their hands clean, because of chronic health problems.

thank you for your responses :D

I have dealt with a LOT of medical problems with my triplets, especially one of my sons (32 surgeries, chronic horrible pain and many consequences from having most of his intestines removed, SID, ADHD, fine and gross motor problems, 12 different specialists ....)and chronic health issues myself, but for some reason, this one is kind of 'putting me over the edge'. I guess I am still in a little bit of 'denial' as far as the huge amount of changes/adjustments needed.

This is probably the key to almost all of the issues (except you can't get back your intestines :( ) so I need to start seeing it that way I guess.

lovegrov Collaborator

I must disagree about hidden gluten in meats. Every single chicken, turkey, and pork I've personally checked on has been gluten-free and so has every one I've seen others check on. I'm talking about plain meats, not ones that have been marinated or glazed or stuffed. They do add a lot of flavor enhancers and moisteners, but the "broths" are always made either from vegetables or from the juices of the meat itself. I do call about these meats when I see something's added. Just this past Thanksgiving somebody asked about gluten-free turkeys and by the time the dust settled the list included every major brand I could think of. Not a single turkey was on the "contains gluten" list. These enhancers do add a lot of sodium and some chemicals you might not want to eat.

I'm not telling anybody to not check, but I think the warning about gluten in meats is overblown. If somebody can name some brands of fresh turkey, chicken or pork that do indeed have gluten please do so.

richard

wclemens Newbie

Wildones, hello!

Have you eliminated all foods containing milk and dairy (including butter, milk chocolate, casein, whey), egg whites, and yeast? Maltodextrin also can be a problem. These are all problems for those of us in our family who have Celiac. Best wishes. Welda

lovegrov Collaborator

I don't know that this site completely explains the gluten in flavorings situation, but it looks like to me that wheat cannot be hidden in "flavorings" in meat and poultry. Every check I've ever made on plain meat would seem to bear this out.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Connie R-E Apprentice

wildones,

About the Purell, the second time I noticed it to be a problem for me, I was sitting at the computer first thing in the morning, put some on my hands (it was cold season) and, while thinking, put my fingers in my mouth... 20 minutes later I had my horrible "World's Worst 9-hour Stomach Ache"(my gluten reaction)....

I hadn't eaten anything--or anything! So....I believe it bothers me!

The first time, we were at the county fair and I took some with us so that I wouldn't get sick... ! I thought the stomach ache was from the cotton candy I couldn't help but eat and just discounted it!

Maybe I'm just sensitive to something else in it, but so far only gluten gives me the same reaction!

Anyone else have trouble when they eat Purell? :blink:

Connie

gluten-free since 1-'98

wildones Apprentice

Thanks for your responses. I guess I will just have to be as passionate about learning everything I can about this, as I have been about my kids' other medical issues.

I did know about meats and most of the sources of hidden gluten (I think) already, but hadn't thought about playdough. I always make my kids wash their hands after they create their masterpieces anyways :D , but it is good to know that they need to be more aware of it too.

Lorraine

seeking-wholeness Explorer

Richard,

Right now this is just circumstancial evidence, but I recently ate a very simple meal of Bell & Evans chicken and vegetables and developed a migraine immediately afterward. This is one of my possible reactions to gluten, and it was also the first time I had ever eaten this brand of chicken. I also remember someone posting here on the board that "minimally processed" poultry is often soaked in a solution that contains gluten, so I won't trust Eberly's poultry until I have gotten a response from them regarding gluten.

I believe it was on the old board that someone posted the warning that Wal-Mart's store brand of chicken is NOT gluten-free.

lovegrov Collaborator

I guess any product could have contamination, but the Bell & Evans, of all brands, is most certainly gluten-free.

I've never checked on the Walmart brand but I have checked on Perdue, Tyson, Kroger, Food Lion, Wampler, Bell & Evans, and at least two others I can't think of now and none have had gluten. Perdue has a very long list of gluten-free items, including all of their plain chicken. Call 1-800-473-7383 and they'll send it to you. Not only is Tyson plain chicken gluten-free, but so is their precooked chicken (at least as of a few weeks ago).

I've never found a turkey with gluten and I've checked nearly every major brand here in the East. I've never found plain, unmarinated beef with gluten. And I'm pretty certain I've never found pork -- except a glazed or honey ham -- with gluten. Sterling Silver, a large pork producer, puts "natural flavor" in their pork but the natural flavor is ..... pork. No gluten.

I still call manufacturers but my experience tells me that meat is one of the safest things -- at least as far as gluten. Of course you might not want the enhancers and stuff they put in there for other reasons.

richard

njlawtonuk Newbie

hello

i'm a member of coeliacs uk and every year they send me a food and drink directory listing brand named foods and supermarket branded foods that are safe and do not contain gluten. each month we get up dates and ammendments to the directory.

isn't there a US version of this? it makes life alot easier. i do still contact manufactorures but as the directory is so detailed and contains so many foods i hardy need to.

search the internet for a local group also as they can offer lots of good advise and its nice to meet others with a similar problem.

hope this helps, nic.

Cait6799 Rookie

The "hidden" gotchas that I have trouble sorting through are artificial flavorings, caramel coloring, Modified Food Starch (some are gluten-free some aren't). Vanilla, HVP - Hydrolyzed Vegetable Protein, vinegar and annatto (yellow coloring in cheese) are among the most frequent ones that I see. The biggest issues that I have with meat are when dealing with cold cuts. I know that Oscar Meyer All Beef Bologna has worked for my daughter while pretty much ANY brand that my local store offers at the deli is guarenteed to cause a reaction. I hope this helps!

lovegrov Collaborator

Annatto does not have gluten. Because of distilling, vinegar shouldn't be a problem unless it's malt vinegar (yes, I know, some people still dispute this). Caramel coloring is either never or virtually never a problem. I've heard there's some slight chance of gluten if it's made outisde the U.S. Maybe there is artificial flavoring with gluten but it would be very rare. I can't think of a product offhand.

Deli meat sliced at the counter is indeed a potential problem, but there are many, many packaged meats that are gluten-free. I think all of Hillshire Farm are gluten-free but if you call them they'll tell you. All Carl Buddig meats are gluten-free. Virtually all Oscar Meyer ones (maybe all) are and you don't even have to call them. Because they are a Kraft company, all you have to do is read the ingredients. Virtually all Sara Lee ones are gluten-free but there are a few to avoid so you'd have to call the company. And all but either two or three Boar's Head meats are gluten-free. There are many, many, many more gluten-free meats than ones with gluten.

richard

flagbabyds Collaborator

HALLS COUGH DROPS ARENOTgluten-free

gf4life Enthusiast

I checked out that link above that Richard (lovegrov) posted about the FDA and their definition of natural flavoring. It was interesting. I don't worry so much about the natural flavorings as much as I do about the added broth. There are many meats soaked in broth that DO contain gluten. I am luck that the brand of chicken I buy says gluten free on the package because ALL the brands at the store contain broth.

I recently ate a very simple meal of Bell & Evans chicken and vegetables and developed a migraine immediately afterward. This is one of my possible reactions to gluten, and it was also the first time I had ever eaten this brand of chicken.

Sarah,

If you haven't already checked that link mentioned above you might want to. Read the part about the link between hydrolyzed proteins and MSG. I know I am sensitive to MSG, and it says that when they hydrolyze the meat and dairy proteins they break apart and form MSG. It won't be listed as MSG on the package, because MSG was not added to the meat, it was created in the processing. So maybe that is the reaction you are having and it is not from gluten after all. Just a thought.

God bless,

Mariann

seeking-wholeness Explorer

Mariann, thanks for that suggestion! I think I'll start tracking my response to MSG, although I don't think I eat very much of it to begin with anymore. I guess that must mean my diet is pretty whole-foods based, finally!

angel-jd1 Community Regular

The Sugar Free ones are gluten-free, but not the regular Halls.

-Jessica :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      8

      1 Year Elimination Diet journey

    2. - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Pain in the right side of abdomen

    3. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Pain in the right side of abdomen

    4. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      8

      1 Year Elimination Diet journey

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      8

      1 Year Elimination Diet journey

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,056
    • Most Online (within 30 mins)
      10,442

    Faiga
    Newest Member
    Faiga
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      The basic seems more like oatmeal. You can also add yogurt banana to it like oatmeal right. I see rinsing as first step in basic recipes like this one https://busycooks.com/how-to-cook-toasted-buckwheat-groats-kasha/ I don't understand why since kasha is toasted and not raw. What about buckwheat flake cereal or is this better to go with. 
    • Scott Adams
      Celiac disease can have neurological associations, but the better-described ones include gluten ataxia, peripheral neuropathy, headaches or migraine, seizures, cognitive symptoms, and, rarely, cerebral calcifications or white-matter changes. Some studies and case reports describe brain white-matter lesions in people with celiac disease, but these are not specific to celiac disease and can have many other explanations. A frontal lobe lesion could mean many different things depending on the exact wording of the report: a white-matter spot, inflammation, demyelination, a small old stroke, migraine-related change, infection, trauma, vascular change, seizure-related change, tumor-like lesion, artifact, or something that resolved on repeat imaging. The word “transient” usually means it changed or disappeared, which can happen with some inflammatory, seizure-related, migraine-related, vascular, or imaging-artifact situations.  Hopefully they will find nothing serious.
    • knitty kitty
      @Heatherisle, I would feel much less worried if you would insist that the doctors administer high dose thiamine hydrochloride (500mg x 3 daily) for several days, with a banana bag (all eight B vitamins, riboflavin makes it yellow like bananas).  Electrolytes may become unbalanced, so monitoring is needed as well.  Just to rule out Thiamine deficiency, high dose thiamine should be administered for several days.  If no health improvement, look for something else. The symptoms your daughter is showing are seen in Wernickes Encephalopathy caused by Thiamine deficiency.  White spots in the brain including on the frontal lobe are seen in Wernickes Encephalopathy.  Blurred vision, balance problems, changed gait (wider stance to compensate for imbalance), tingling in hands and feet, ascending neuropathy, lower back pain, kidney pain, abdominal pain are all symptoms I have experienced when I had Wernickes.  The damage becomes permanent if not corrected quickly.  Korsakoff Syndrome follows with brain damage that cannot be reversed, and death following.   Doctors are not trained in Nutrition.  Doctors are taught Wernickes Encephalopathy only happens in Alcoholism.  My doctors did not recognize Wernickes Encephalopathy because I did not drink alcohol.  If it walks like a duck... Doctors do not realize that Malabsorption from Celiac Disease can result in severe nutritional deficiency diseases, including Wernickes.  Malabsorption of Celiac Disease affects all the essential nutrients, vitamins and minerals, our bodies need to function properly.  It's rare to have a deficiency in just one vitamin.  B12 Deficiency and Thiamine deficiency go hand in hand.   I had symptoms of deficiencies in many vitamins and minerals because my Celiac Disease was still undiagnosed at that time.  They laughed when I asked to be checked for Celiac Disease.  I was overweight (high calorie malnutrition).  I didn't match their " in the box" thinking.  I didn't match their concept of the wasting away, skin and bones stereotype of Celiac Disease.  My doctors wrote me off as "depressed".  I could feel myself dying.  I trusted what I learned at university about how vitamins work inside the body.  I recognized the symptoms of Wernickes and other nutritional deficiency diseases.  At home, I took 500 mg over the counter thiamine hydrochloride and had health improvement within twenty minutes.  I continued supplementing for months, with thiamine and B vitamins and electrolytes.  I continued to have health improvements.  I did suffer some permanent brain damage.  I have permanent vision problems and optic nerve damage.  Computer screens cause migraines.  I struggle through them to help others.   Ask for Thiamine and an Erythrocyte Transketolace Activity Assay.  This test is more accurate than a blood test for Thiamine level, but both tests take time, during which time permanent damage can be done.  The World Health Organization recommends thiamine administration before test results come back in order to prevent permanent damage.   Trying thiamine hydrochloride is simple and cheap and safe and nontoxic.  If high dose thiamine doesn't work, there's no harm done.  Try thiamine supplementation if only to rule out Thiamine deficiency....while there's still time. References: Thiamine Deficiency and Brain Injury: Neuroanatomical Changes in the Wernicke-Korsakoff Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC12535404/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Please have ears to hear.
    • Aretaeus Cappadocia
      I don't know about this. Here's how I make kasha: boil water in a pot add the kasha, stir to mix, turn heat down to a gentle simmer for ~10 min, maybe 15, until tender remove from heat and serve There are lots of variations if you wish, like adding salt and butter. One variation that is really tasty, but kind of a pain, is to mix the dry kasha with a beaten raw egg, heat the dry kasha/egg mixture in the pot for a couple of minutes (to coat the kasha and cook the egg), then add boiling water and finish like the "basic" recipe above. I seldom have the patience to do all of that, though.
    • xxnonamexx
      What's the reasoning of washing and rinsing kasha buckwheat for 12 hrs
×
×
  • Create New...