Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Villi Atrophy But Do Have Inflamation

srthomas21

Recommended Posts

srthomas21 Explorer
srthomas21
Posted

I still have not got blood test back but the biopsy came back with inflamation in the small intestine but no villi atrophy.

Anybody know what that could mean?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
I still have not got blood test back but the biopsy came back with inflamation in the small intestine but no villi atrophy.

Anybody know what that could mean?

It means you probably don't have celiac sprue and that you're probably about to get a diagnosis of Crohn's disease: Open Original Shared Link

Mind you, I'm not a doctor nor a diagnostician of any kind; wait a bit and the doctors and diagnosticians you're already seeing will have a much more confident answer for you (hopefully).

JennyC Enthusiast
JennyC
Posted

You really need your blood work results. It is possible to have positive blood work and a negative biopsy and still be diagnosed with celiac disease. You may want to give the doctor a call to see if your results are in! ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

Celiac can also cause inflammation before the villi are destroyed. I would give the diet a shot even if the blood work is negative. Below is a quote from the article that you were given a link to. Since it is considered an immune system problem it sure couldn't hurt to give the diet a try.

"Several theories exist about what causes Crohn’s disease, but none have been proven. The human immune system is made from cells and different proteins that protect people from infection. The most popular theory is that the body’s immune system reacts abnormally in people with Crohn’s disease, mistaking bacteria, foods, and other substances for being foreign. The immune system’s response is to attack these “invaders.” During this process, white blood cells accumulate in the lining of the intestines, producing chronic inflammation, which leads to ulcerations and bowel injury."

nora-n Rookie
nora-n
Posted

In the old days one had to have villous atrophy, meaning no villi, to get a diagnosis for celiac.

Now they have graded the biopsies according to the Marsh scale (google it)

If you read the charts, it says increased intraepitelial lymphocytes or something like that.

maybe your answer meant that.

Some symptomatic patietns have asked for a second opinion, and sent their slides to the U of maryland, who give a diagnosis of celiac based on symptoms and increased IEL's.

See also thefooddoc blog, Dr- Lewey's webiste , there are also some articles and interviews with him here on the celiac.com website.

nora

Gfresh404 Enthusiast
Gfresh404
Posted

That's funny. That's the exact same thing my biopsy showed - no atrophy, but minor inflammation. Turned out to be gluten sensitivity. My GI ruled out Crohn's I believe with some kind of a marker test, I forget if it was blood or what.

darkhorse Apprentice
darkhorse
Posted

My results showed the same thing. I tested negative for a bunch of other tests (don't remember hearing about Crohns) including IBD, Barrett's esophagus, H pylori, ulcers and a bunch of other things. I did have elevated mast cells that indicated an immune response of some kind. I had a positive response to the diet and all my pain and stomach problems went away. The Dr told me that if the diet worked for me, then I should stick with it since there was no other obvious cause for my symptoms.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gfresh404 Enthusiast
Gfresh404
Posted
The Dr told me that if the diet worked for me, then I should stick with it since there was no other obvious cause for my symptoms.

It's good to hear another Doctor actually listening to and trusting their patients. I have heard so many stories of doctors saying; "Gluten can't be the issue, you tested negative for Celiac, it is perfectly fine for you to consume gluten." This just really bothers me. When doctors themselves are not educated about these issues. There is so much we still don't understand about the human body. If it works go with it.

srthomas21 Explorer
srthomas21
Posted
  • Author
It's good to hear another Doctor actually listening to and trusting their patients. I have heard so many stories of doctors saying; "Gluten can't be the issue, you tested negative for Celiac, it is perfectly fine for you to consume gluten." This just really bothers me. When doctors themselves are not educated about these issues. There is so much we still don't understand about the human body. If it works go with it.

Thanks for your replies. The Dr. said I did not have Crohns . I do have Ulcerative Colits which I had my colon removed because of it.

The blood tests are in. They want me to come in and talk with the Doc. I think that means they were positive. Could this be the last day for Gluten? If so I will miss you :)

  • 1 month later...
HKWW Newbie
HKWW
Posted

same thing here - biopsy results showed no villi atrophy but only inflammation. and doctor told me to relax and eat as normal, it may just be in my brain. he has also ruled out blood tests because he said blood tests are inconclusive and can give false (+) / (-) results anyway. i happened to be chinese and funny he also said chinese people don't have celiac. but when in the 2 weeks that i waited for my biopsy results, i went gluten-free anyway (or tried to), and when i went really gluten-free, i felt that my GI has improved and never once did i have bloated stomach again, but for those times that i didn't come cleanly gluten free (i.e. had meat marinaded with gluten-containing marinades), my stomach went bloated like i have a 5-month pregnancy... anyway, i am trusted my senses more than these doctors and will go gluten-free whenever i could now, afterall, it's my body and i should know my body best.

ravenwoodglass Mentor
ravenwoodglass
Posted
same thing here - biopsy results showed no villi atrophy but only inflammation. and doctor told me to relax and eat as normal, it may just be in my brain. he has also ruled out blood tests because he said blood tests are inconclusive and can give false (+) / (-) results anyway. i happened to be chinese and funny he also said chinese people don't have celiac. but when in the 2 weeks that i waited for my biopsy results, i went gluten-free anyway (or tried to), and when i went really gluten-free, i felt that my GI has improved and never once did i have bloated stomach again, but for those times that i didn't come cleanly gluten free (i.e. had meat marinaded with gluten-containing marinades), my stomach went bloated like i have a 5-month pregnancy... anyway, i am trusted my senses more than these doctors and will go gluten-free whenever i could now, afterall, it's my body and i should know my body best.

Please go gluten free all the time not just whenever you can. Also there are lots of false negatives but not false postives with blood testing. If you had a postive blood test, even just a little positive it is a positive test. In addition the genetic testing leaves a lot to be desired. If I had been gene tested before diagnosis I would have been told that I don't have the genes and couldn't be celiac. Doctors negated my celiac daughters diagnosis when she had her genes tested even though she had positive bloods and biopsy. It turns out our celiac genes are uncommon genes in the Caucasian population. They are 'Asian' genes and when I did a bit of research it did turn out that they are recognized celiac genes in the Middle East and Far Eastern populations. There is a great deal that is not known about celiac but your body has given you the answer.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Why Celiac Diagnosis Still Takes Years—and How to Change That

    2. JoJo0611
      - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.
    3. cristiana
      - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area. I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who had real pain when she turned her torso in a certain...
    4. emzie
      - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body...
    5. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac

      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain. That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral. It does lessen the symptoms. If it is in your eyes, see an ophthalmologist. They have...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748
    jscal6
    Newest Member
    jscal6
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):

  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • JoJo0611
      Awaiting Biopsy results

      By JoJo0611 · Posted

      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Stomach hurts with movement

      By cristiana · Posted

      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Stomach hurts with movement

      By emzie · Posted

      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      celiac disease and braces

      By Scott Adams · Posted

      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.