Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Bloating Is So Bad! Please Reply Anyone


Raynee

Recommended Posts

Raynee Rookie

I posted recently with my symptoms but for those who did not see it. For 8+ years I have basically looked pregnant but am not. The bloating is so bad and uncomfortable. The gas is horrible at night. I have tried every diet excpet gluten free. I see a doctor next week. I also have eczema, migraines, FATIGUE!!!!, stomach aches constantly, not much diarrhea, but loose stools. I had terrible neurological problems about ten years ago. I also have muscle weakness (upper body), ocular migraines, back pain, etc, etc. My question - it seems the last week my stomach has grown even more (if that is possible). I am uncomfortable standing, sitting, laying - just being awake. Should I try to get in earlier to the doctor even though I only have a week. I mean it has been going on for years now what is another week right. Maybe I am just getting anxious to get there. I am terrified the tests are going to be negative and everyone (family and friends) will think I am exaggerating - Oh, I am 39 years old and tried to get pregnant for 15 years with all the drugs and procedures. Never did and they have no idea why - my husband was tested and fine. Too old now! That would break my heart more than anything to find out if I had just stopped eating gluten I could have had a baby!

DO YOU THINK I AM CELIAC? IF NOT WHAT????? THIS IS MAKING ME CRAZY!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Twiggy Rookie

Hi,sorry i dont have any advice for you but i couldnt red and not post.I am sorry you havent been able to concieve a baby,it would be heartbraking to think it could have been diferent with a diagnosis of coeliac :( i wish you well and hope you get to the bottom of your problems/symptoms (((((hugs to you))))))

ang1e0251 Contributor

I posted recently with my symptoms but for those who did not see it. For 8+ years I have basically looked pregnant but am not. The bloating is so bad and uncomfortable. The gas is horrible at night. I have tried every diet excpet gluten free. I see a doctor next week. I also have eczema, migraines, FATIGUE!!!!, stomach aches constantly, not much diarrhea, but loose stools. I had terrible neurological problems about ten years ago. I also have muscle weakness (upper body), ocular migraines, back pain, etc, etc. My question - it seems the last week my stomach has grown even more (if that is possible). I am uncomfortable standing, sitting, laying - just being awake.

These can all be symptoms of celiac disease or GI. That doesn't mean that is your dx, it means it is a possibility.

Should I try to get in earlier to the doctor even though I only have a week. I mean it has been going on for years now what is another week right. Maybe I am just getting anxious to get there.

If it will give you peace of mind, do try to get into the dr sooner. Insist that they run a full celiac panel. It's a blood test and they can draw bood right away. Try to get your dr to schedule you for an endoscopy with a GI dr. It's not necesary to wait for the blood results to schedule the procedure when you are suffering. If the tests are negative you still need to find out what is wrong. Your dr might not want to do this before the test results are in, but ask anyway, you never know.

I am terrified the tests are going to be negative and everyone (family and friends) will think I am exaggerating -

Even with positive test results, your family may have a hard time with it. But a real dx should give you a lot of peace of mind and put you on the road to recovery.

DO YOU THINK I AM CELIAC? IF NOT WHAT????? THIS IS MAKING ME CRAZY!

You are NOT crazy. You are sick. You may have celiac disease or gluten intolerance. But no matter what, your symptoms are real and are like many I have had. Keep writing and telling us how you are doing. We will always listen to you and reply to your questions.

GFinDC Veteran

While you are waiting for the Dr, you could try eliminating all sugar and dairy from your diet. That might help cut down on the gas and bloating. I sometimes eat salty olives when gassed up and it helps a bit. And simethecone (Gas-x, Phazyme) helps some too. A pro-biotic might or might not help, not sure on that. Stretching excerizes can help too.

Salax Contributor

I would recommend Gas-X as well. I feel for ya. Perhaps eating lighter meals (eggs, soup, etc) without the dairy and sugar as someone sugested would help? I also use vernors ginger ale. Ginger is soothing to the stomach. Peppermint pills are another soother.

Best of luck to you.

strawberrynin Newbie
I would recommend Gas-X as well. I feel for ya. Perhaps eating lighter meals (eggs, soup, etc) without the dairy and sugar as someone sugested would help? I also use vernors ginger ale. Ginger is soothing to the stomach. Peppermint pills are another soother.

Best of luck to you.

Along with all of these great solutions...one thing that always helped me feel a little more comfortable with gas pains was to lay on my right side and curl up. It helps move food/gas along the tract more efficiently.

GFinDC Veteran
Along with all of these great solutions...one thing that always helped me feel a little more comfortable with gas pains was to lay on my right side and curl up. It helps move food/gas along the tract more efficiently.

I used to do that too! I'd lay on my left side for 15 minutes, then right side for 15 minutes, back, and forth, sometimes all night. That and stretching bending any way at all too. It' s strange way to get food moving through gut but better than nothing. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SLB5757 Enthusiast

I know that water makes gas pains feel worse - but it would get the food moving out of your body a little quicker. I always had more severe pain when I layed on my left side so I always sleep on my right side. Walking/any movement will help with the gas pains. If it's bloating you are talking about you almost have to wait until the food passes through your body. I was always unable to pass gas so it made my gas pains terrible. If I took a tums - even though I didn't have severe acid issues - it always made me "pass gas" within about 10-15 minutes which was what I needed to do to feel better. Gas-X may be a better alternative to tums - but tums always made me pass gas instead of only belching.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,056
    • Most Online (within 30 mins)
      7,748

    Paul 777
    Newest Member
    Paul 777
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
    • RMJ
      When you say the endoscopy showed potential flattening and atrophic villi, Is that the visual result and you’re still waiting for the pathology report on the biopsies? It is quite possible to have the endoscopy look ok and the biopsies show celiac damage. That happened at my last endoscopy. It is also quite possible to only have damage in some areas. Hopefully her doctor took biopsies from the areas with potential flattening and atrophy. 
×
×
  • Create New...