Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My List Of Ailments Has Just Increased..again


jasonD2

Recommended Posts

jasonD2 Experienced

I am going to an oral pathologist next week because i think i have lichen planus. 2 weeks ago i had a bad stinging pain which i thought was just a canker sore, but it later turned into a much larger inflammation and it hasnt gotten better, even though the pain has subsided. If i am diagnosed with this now i have to worry about developing oral cancer because from what i hear its like chrohn's disease of the mouth. so here's my list:

1. IBS-C

2. Food sensitivities

3. gluten/lactose intolerance

4. weak bladder/prostate problems

5. anal fissure

6. anal fistula

7. hemmorhoid

8. Dry mouth

9. compressed disc in lower back

10. anxiety (because of all of the above)

Im only 34 years old and I now have to live with all of this. I'm falling apart and if im lucky maybe ill make it to 40 before a new ailment arises.

I feel so helpless and confused as to why i keep developing new problems. this isnt the life i wanted for myself

sorry for sounding like a wuss & thanx for allowing me to vent


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mysecretcurse Contributor

I hear you. It's okay, don't feel like a wuss.

I have a huge list of problems as well, and it seems like the only way I can keep them under control is by living the strictest life ever. SO many things bother me or make me sick it's ridiculous. I definitely feel your frustration. Just keep trying to heal, it's all we can do. *hug*

Mother of Jibril Enthusiast

Hi Jason,

Numbers 1, 2, 3, 4, and 8 could all be related to a mast cell problem. Have you ever heard of interstitial cystitis? It's when you constantly have to go (or at least feel like you need to go)... and it's caused by an overabundance of mast cells in your urinary system.

Open Original Shared Link

Numbers 5, 6, and 7 are probably caused by the constipation :( Have you ever seen a GI doctor? I had an endoscopy on Tuesday to check for "mastocytic enterocolitis"

Open Original Shared Link

This condition is often associated with diarrhea, but it can also go the other way into constipation (which is my problem). I thought for sure the gastroenterologist was going to say "IBS."

I can't say anything about the compressed disc ;) but maybe your other symptoms have something in common... and can be treated by the same means (like antihistamines). I was really surprised when I started taking antihistamines on a daily basis that my dry mouth, dry eyes, and abdominal pain actually improved... especially with the H2 antihistamine (Pepcid, Zantac, Tagamet, etc...). You might even want to contact Scot Lewey about it... his information is towards the bottom of the second link.

Raynee Rookie
I am going to an oral pathologist next week because i think i have lichen planus. 2 weeks ago i had a bad stinging pain which i thought was just a canker sore, but it later turned into a much larger inflammation and it hasnt gotten better, even though the pain has subsided. If i am diagnosed with this now i have to worry about developing oral cancer because from what i hear its like chrohn's disease of the mouth. so here's my list:

1. IBS-C

2. Food sensitivities

3. gluten/lactose intolerance

4. weak bladder/prostate problems

5. anal fissure

6. anal fistula

7. hemmorhoid

8. Dry mouth

9. compressed disc in lower back

10. anxiety (because of all of the above)

Im only 34 years old and I now have to live with all of this. I'm falling apart and if im lucky maybe ill make it to 40 before a new ailment arises.

I feel so helpless and confused as to why i keep developing new problems. this isnt the life i wanted for myself

sorry for sounding like a wuss & thanx for allowing me to vent

My sister and mother both had lichen planus a few years ago. It is usually a rash red and bumpy, very itchy, on the lower legs. It also affects the feet - peeling and redness. It normally resolves after it runs its course. You can get lichen planus affecting the mouth as well. Sometimes but not often it can be related to hepatitis. Neither had that and rash has been gone and never returned for a few years now. I hope that makes you feel a little better.

jasonD2 Experienced

Ive heard a few people mention that pepcid ac helps with a variety of symptoms - is that really true? can it help with constipation? seems like if you're inhibiting acid then you are further compromising your digestion

Mother of Jibril Enthusiast
Ive heard a few people mention that pepcid ac helps with a variety of symptoms - is that really true? can it help with constipation? seems like if you're inhibiting acid then you are further compromising your digestion

Just my personal experience here... I've been taking the maximum OTC dose every day for about two months (sometimes an extra 20mg in the afternoon).

Pepcid AC helps a lot with my abdominal pain. I can tell when the dose is wearing off. I can't really say that it helps the constipation, but it doesn't make it worse either! I was worried about that.

Histamine is what tells your stomach to produce acid, so the way Pepcid (and the other H2 blockers) work is by blocking the histamine receptors in your GI system. But... too much histamine can cause nasty side effects like abdominal pain, diarrhea, heartburn, and ulcers. WAY too much histamine can do even worse things like causing chronic hives (internally/externally) and anaphylaxis.

It might be worth a quick try. Generic Pepcid (famotidine) is really cheap. I noticed a difference within the first few days after I started taking it. BTW... I wouldn't go the "fiber" route :ph34r: (the pressure in your intestines might cause even more pain) but have you tried magnesium or vitamin C?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,173
    • Most Online (within 30 mins)
      7,748

    Mel12
    Newest Member
    Mel12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.