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When I'm Suppose To Feel Better


blancasagro

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blancasagro Newbie

I was diagnosed with Celiac on Monday, I've been 3 days without gluten, today I woke up today not feeling well. Had a lot of pain, cramps. I was feeling much better since today. When should I start to feel ok not perfect but ok


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Mother of Jibril Enthusiast

Welcome to the group!

A lot depends on how quickly your body can heal (it gets slower as you age) and how much damage there was. Did you have an endoscopy? If your villi were completely destroyed (category IV) then it could take a long time to heal... as long as one or two years... but you should feel better and better as you go along on the gluten-free diet. Some people also find that they need to restrict other foods--especially dairy, soy, corn, nightshades, citrus, and/or grains in general--either because of an intolerance that was unmasked by the gluten-free diet, or because their weakened digestive system can't handle it.

In the meantime... you might want to ask your doctor about taking Tylenol or an H2 antihistamine (Pepcid, Levsin, Zantac) for the abdominal pain... or you could try an herbal remedy. Actually, if you poke around there are lots of posts about how to soothe your digestive system while you're healing.

Foxfire62 Newbie

I have been on a gluten-free diet since August 2008, and I'm still not 100%. Although I am now able to tolerate yogurts, I still have some problems with lactose. I am also having problems digesting protein right now, which is causing me constipation. My intestinal damage went to severe blunting to mild blunting. I'm improving, but I'm not there yet.

It can take anywhere from 1-2 years to heal. I know that's not fun to hear, but it's the truth, and I am amongst many to prove it. You will get better, but depending on your age, it may take awhile. If you're younger, more power to you, as it will not take as long.

My GI doctor told me I would feel better immediately. HA!

Anyway, I am currently on short-term disability because of problems digesting protein, which I need right now because I lost so much weight until I understood why I was so severely backed up (protein...that's why). Still working on getting better but hope to get there soon.

Good luck to you, and I hope it doesn't take you as long to heal as it does me.

blancasagro Newbie

I had an endoscopy yesterday the doctor didn't say much, just that I needed to go to the nutritionist, and I have an appointment in two weeks for the result of the biopsy The paper said i have non erosive esophagitis and gastrtitis, and I've been taking Prevacid for a while. I'm 26... that's young enough to heal fast? ;) Well I hope so. I had diarrhea constantly for one month, and I feel exhausted. Have an appointment on Monday with the nutritionist I'm just praying to God that she can give me good advice, now I know that I can't eat any gluten but I have my doubts about other foods. I just lost like 12 pounds, that doesn't sound so bad when you hear other stories, now I weigh 98 pounds I just hope to keep there for the moment.

ceyannuzzi Newbie

Hello.

I just got diagnosed last Thursday. I'm still a little achey myself but hopeful & doing really well so far. I really don't see myself cheating---knowingly anyway. It's seeming to be very hard to learn what to eat & not eat, but i'm getting the hang of it. Good luck to you.

I was diagnosed with Celiac on Monday, I've been 3 days without gluten, today I woke up today not feeling well. Had a lot of pain, cramps. I was feeling much better since today. When should I start to feel ok not perfect but ok
lovegrov Collaborator

It took me months to feel "normal" again. I S-L-O-W-L-Y started feeling better after several days, but it was an up and down battle for many weeks.

richard

blancasagro Newbie

I can say that I've been better, is really a slowly recovery, but now I see that every day is getting a bit better. I went today to the nutritionist, and I'm very motivated with her advice. I bet in a couple of weeks I will be OK. The forum has helped me so much, I was lost, but I know I'm in the right direction


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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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