Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scope Coming Up Really Nervous

ravenwoodglass

Recommended Posts

ravenwoodglass Mentor
ravenwoodglass
Posted

I have to have the colonoscopy that they couldn't complete a few years ago due to inadaquate anesthesia and a twisted colon. Not something I can put off any longer as my 'lumpy gut' has traveled and although I have no digestive symptoms things are getting uncomfortable. Anyway my last experience was horrible. I had a reaction to the prep and the twilight drug they gave me didn't work. The whole thing was a nightmare.

This time there will be an anesthesiologist there and they are putting me completely out.

My questions are these:

I plan on going on a liquid diet for 3 days before hand, the doctor only said 1 but I think the prep will be easier if I have less solid food in my gut. I am not worried about getting hungrey, I almost never do, but I am wondering if anyone knows of a gluten and soy free meal replacement? I am not a big juice drinker but if I have to I will go with just juice and broth but the first 2 days I'd like to have a protein source.

Also has anyone ever taken Moviprep? This doctor said it requires less liquid to be drunk and will be easier on my system than the GoLightly and Dulcolax combo the other doctor gave me. A nurse suggested I put a packet of Crystal Light in it, does anyone know if that is gluten free?

One last off topic note- this new GI doctor seems really knowledgable about celiac. He is the only doctor I have ever talked to who would admit that the testing leaves much to be desired and stated that he reccommends a trial on the diet for people even if blood and biopsy are negative if they have celiac related symptoms. He also said he diagnoses a lot of celiacs. My last Gi stated he almost never saw any. Boy am I glad I switched to this doctor.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


leadmeastray88 Contributor
leadmeastray88
Posted

Hi!

I don't know anything about the prep part because I've never had a colonoscopy before...however I think the 3 day liquid diet is a good idea, makes sense!

Crystal Light, to my most recent knowledge, is gluten free. It's a Kraft brand and they will clearly state ingredients so you should be okay with that...it IS yummy stuff! :)

Good luck with your scope!! :)

GFinDC Veteran
GFinDC
Posted

Hi Ravenwood,

I never done did that colonscopy thing, but my sister did not long ago. She seemed to think it was not too big a deal. She did both the endo and colon the same day. My sister isn't a member on the board though.

Here is recent thread about the juice that might help.

Preparing My Self For Movi-prep..... Poop Juice...

https://www.celiac.com/gluten-free/index.php?showtopic=57647

I hope it goes well for you. Sis said she just had a little soreness in the throat afterwards.

nutralady2001 Newbie
nutralady2001
Posted

I've had both scopes done, can't help you with prep as am in Australia and can't remember the names

The whole thing though wasn't as "scary" as I thought it would be, neither the preparation nor the actual procedures. One minute I was awake in the room they were doing the scopes in, the next I was waking up back in recovery LOL

Lisa Mentor
Lisa
Posted

Smart Water from Glaceau it really good. It's vapor distilled water plus electrolytes which might be helpful.

I wish you well and hope that things go smoothly. Mine was a breeze, but the prep was BLA.

TrillumHunter Enthusiast
TrillumHunter
Posted

The Special K20 protein water is gluten-free. Maybe you could try that?

The prep is very unpleasant. I think the liquid diet is a great idea beforehand. If you can stand it, you might go low residue the week before as well. Also, my dr said once what's coming out looks the same as what went in, you can stop. As far as the procedure, it's one of those things that SHOULDN'T be complicated.

Best wishes for your good health!

ravenwoodglass Mentor
ravenwoodglass
Posted
  • Author

Thanks for the replies. I'll get some of the waters that were mentioned and give them a try. This will be my third scope. The first was a breeze, the second was a nightmare. I do so hope that this one goes as smoothly as the first one. I noticed when I got the records from the doctor that did the first two that he failed to include the dulcolax in the records, although I have the original prep papers that said I had to take it. I am hoping the reaction I had was to the dulcolax, pretty sure it was as I wan't sick for weeks after the first one.

I am off to look for info on low residue foods and at this point I am really thankful for the alprazolam, I don't think I could even consider this without it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Puddy Explorer
Puddy
Posted

The actual test itself was no problem for me. I was out like a light. But I did have a pretty scary reaction to the prep the night before. I thought my husband was going to have to take me to the emergency room. I had to take Miralax and Dulcolax. When I told the doctor the next day she said some of her other patients had a bad reaction to the Dulcolax. Since then, my friend had her colonoscopy with the same doctor I used and said that they had switched over to the MoviePrep Same thing with my sister and her doctor. She used the Dulcolax method the first time and the 2nd time, they had her take MoviePrep. I'm sure you'll be fine now that you don't have to take the Dulcolax. Good Luck!

JNBunnie1 Community Regular
JNBunnie1
Posted

I only have one suggestion. If you're going to be on a liquid diet for that long, I would purchase some whey protein and use that, not any premade shakes. Much more 'food-like' than most of that other stuff. Oh, and you may want to buy some desitin, because with all the liquid your 'output' will be very acidic, and you'll want something.... soothing.

If it makes you feel any better, I was awake for my colonoscopy. The nurses thought I was hilarious. Seriously lovely drugs.....

kerds Newbie
kerds
Posted
I only have one suggestion. If you're going to be on a liquid diet for that long, I would purchase some whey protein and use that, not any premade shakes. Much more 'food-like' than most of that other stuff. Oh, and you may want to buy some desitin, because with all the liquid your 'output' will be very acidic, and you'll want something.... soothing.

If it makes you feel any better, I was awake for my colonoscopy. The nurses thought I was hilarious. Seriously lovely drugs.....

Are you a young person? Have you done without solid food that long and not gotten weak? maybe my concerns are coming from my last colonoscopy prep weakness. Of course I had been having much BIG D!! Just concerned for you. Rots o Ruck...kerds

ravenwoodglass Mentor
ravenwoodglass
Posted
  • Author

Thanks for the replies. I ended up just eating very lightly and low residue foods rather than a full fast. Although the Moviprep was expensive I do not seem to have had any nasty reactions to it, well other than what it is supposed to do. :D I had the procedure today and they used an anesthesiologist and put me out this time. The hardest part was waiting for the procedure to be done, they had an emergency with the person right before me so it wasn't anything that could be prevented but by the time they get the IV line in and your on the gurney time just seems to drag. I am glad I stopped putting it off as they did find and remove a polyp (which is at the lab of course) and the longer those things are growing the higher chance of developing colon cancer.

Puddy Explorer
Puddy
Posted

Glad everything went well and you don't have to worry about that anymore!

Lisa Mentor
Lisa
Posted

Also glad everything went well. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested...
    2. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing...
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    4. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    5. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,876
    • Most Online (within 30 mins)
      7,748
    pilber309
    Newest Member
    pilber309
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.