Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Is Your Abdominal Pain?


mindyandy420

Recommended Posts

mindyandy420 Apprentice

I am not looking for a diagnosis just opinons. I am not able to get tested till my medical kicks in. So I'm just researching.

When I get abdominal pain I usually have to make a BM right then and there. IBS?

Where is your abdminal pain located and could you please describe what sensation you feel?

Above the belly button, below, left, right?

Thank you so much for the input. I do appreciate all you guys


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hannahp57 Contributor

do you mean before we got diagnosed where did it hurt?

if that is what you mean there wasn't one spot for me...it was like i could feel it in different places in order. first would be right under my ribcage on the right side, a slightly sharp feeling. next would be about an inch above my belly button and to the left, that was the worst, a kind of ache only every few minutes it would feel like someone was squeezing and twisting. then would be my lower abs and that would be the moment like you said "i had to go right then and there"

my doctor firs said "oh that is acid reflux" and gave me nexium. absolutely no help whatsoever! so i went back and re-explained te different places it hurt...and he said give it a while longer and gave me something else.. still nothing. then one day he called me in and said he had gone to a seminar and heard something that made him think of me and handed me a packet of info briefly described what was going to happen. then voila! i was diagnosed. nothing official.. but with the diet change in two months i had gained back 5 of the 30+ pounds i had lost

i hope this helps even a little

Korwyn Explorer
I am not looking for a diagnosis just opinons. I am not able to get tested till my medical kicks in. So I'm just researching.

When I get abdominal pain I usually have to make a BM right then and there. IBS?

Where is your abdminal pain located and could you please describe what sensation you feel?

Above the belly button, below, left, right?

Thank you so much for the input. I do appreciate all you guys

Before I was diagnosed, it hurt all over at different times and places.

Lower right (below bellybutton) - usually a dull ache, sometimes throbbing, sometimes a sharper ache. This often (about 50% of the time) preceded an urgent BM.

Middle low (below bellybutton) general discomfort, bloated, "icky" feeling.

Left low/mid (below bellybutton and across from) much sharper pains, more stabbing/piercing pains.

Mid/Upper abdominal - heartburn (bad), overly full feeling, sometimes nausea, general stomachache.

Lots of gas and diarrhea which did or did not necessarily help relieve the pain.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - daniellelawson2011 replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    2. - trents replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    3. - daniellelawson2011 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    4. - Joe R replied to Joe R's topic in Related Issues & Disorders
      2

      Immunologist Referral if IgA Deficient

    5. - nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Help needed


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,695
    • Most Online (within 30 mins)
      7,748

    NeonCrest1
    Newest Member
    NeonCrest1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • daniellelawson2011
      Thank you for the welcome and reply. The first test was tissue transglutaminase IGA and it was normal. The second test just simply says IGA and it was 638. You definitely answered my question, it sounds like im negative for celiac since the 1st test was normal, and that another condition has caused the abnormal result of the IGA. That's exactly what I was wondering. Im almost positive I have MS and I've read results are higher like that with early onset. Or it could be IBS. Hopefully the visit with the neurologist will give me even more answers and point to a final diagnosis. I really appreciate you taking the time to reply and for helping. Thank you so much!
    • trents
      Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check for iga deficiency. If you are iga deficient, then the ttg-iga and other iga tests that are specific for celiac disease will be abnormally low and this would potentially produce false negatives. You are not iga deficient but, rather, your total iga is abnormally high. This can suggest underlying health conditions, some of them can be serious in nature.  https://labs.selfdecode.com/blog/high-iga/ "High IgA usually points to chronic infections or inflammation, though many disorders can raise its levels. High IgA does not cause symptoms. People show symptoms from their underlying health problem." One thing I might add and that is you must have been eating normal amounts of gluten for weeks/months prior to the blood draw for antibody testing. Testing while on a gluten free or gluten reduced diet will not yield valid results. Also, here is a primer outlining the various antibody tests that can be ordered to check for celiac disease:  
    • daniellelawson2011
      After struggling with many different symptoms for years with no diagnosis, I decided to do my own research and I stumbled upon an article about celiac disease. I asked my PCP to order a ttg and iga. The results: the iga was high at 638. The ttg was negative. Of course I will discuss with my doctor, but i would like to hear from people that have went through the process of diagnosis to maybe give me some insight on what this means and where to go from here. Also of note, i had a brain mri which showed white lesions which arent typical at 44 years old. I have many MS symptoms. I go to the neurologist on Tuesday, but just curious if anyone knows if there is a correlation between iga and MS. I appreciate any help! Thanks!
    • Joe R
      Thank you for your advice. I appreciate the help. 
    • nanny marley
      Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which if not on the diet I would have to avoid anyways has I don't tolerate many fruit juices so I'm sure I've done the right thing I did try to contact the department on my letter but weirdly enough it was ringing but then after a while saying wrong number 🤷 but again I'm positive I've done the right thing I'm going to take today very lightly too with low portions and more liquids so yes thankyou for that advise I am very nervous but I have had time to think and read other peoples experiences and not all are bad there is some good advise and reassuring information from people who do these all the time so I'm trying my best to be positive so I can at least settle my mind knowing im doing this to help my own health has this year has been a rollercoaster for me cutting out gluten and lactose was a good idea but I still get flare ups and other symptoms so it definitely is worth a check like you said it was the calprotein that prompted the doctor to refer me again thankyou for your reply it's means a lot for someone to take the time to listen and respond and give uplifting advise  especially to me just now has I'm a bundle of nerves inside getting closer to tomorrow prep so thankyou for that 🙏
×
×
  • Create New...