Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutening Myself Again For Biopsy


Guest BERNESES

Recommended Posts

Guest BERNESES

Hi Everyone- This board is wonderful, first of all and has been so much help. I hope that when things settle down for me, I can add more.

I had the blood test for Celiac's 9 weeks ago (and went gluten-free immediately) and showed a weak positive in my Anti Gliadin (22.7. Above 20 is considered weak positive acc. to my lab). Had multiple tests (won't even go there!) and my first GI discovered gall stones. Before going gluten-free ( about 9 weeks now) I had the smelly gas, the soft stools, nausea, cold intolerance and basically felt like I had stomach flu all the time. After going gluten-free all that disappeared.

Got a second opinion, GI. thinks it may definitely be Celiac's so he is going to do biopsy next Fri. the 15th. He told me to start eating gluten again (not happy about it but had an accident and figured I'd just go with it). Some of my symptoms have returned (that stomach flu feeling) but it's up and down. For example, last night I had three big pieces of pizza (I was terrified) and this morning, I expected to wake up sick as a dog. So far, it's 10:30 am and all I am having is the soft stools, cramps and gas. Should I expect to get sicker? How long does it take for being "glutened" to show up? I've heard the range is anywhere from immediately to 2-3 days. I'm just surprised I don't feel sicker. Thanks for all your help, Beverly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

The fact that you are experiencing anything at all should be a sign that your body is not handling gluten. You may or may not get worse. Some people don't even get symptoms when eating gluten but it still does the damage. How long have you been gluten free. They usually recommend being on gluten for 3 months before testing because if you were gluten free healing would take place and could cause a false reading.

Guest BERNESES

Hi Kaiti- I've been gluten-free so for 2 months so I'm not expecting it to show up in the biopsy- if it does it's a bonus. I took moderately positive bloodwork to be like moderately pregnant- you either are or your not! He's going to do the upper endoscopy anyway because he thinks my acid reflux (which decreased significantly on gluten-free diet) has been severely undertreated. I am content, regardless of what the test results say, to consider myself a Celiac and be gluten-free forever! If it shows up in the test, that's great, if not I will still return to gluten-free after biopsy. Dr. warned me if I had been doing a good job of being gluten-free, it might not show up. That's fine. Thanks for your answer- it was very helpful because this whole process has been so confusing and frustarting and scary! I really appreciate you post. :) have a great day, Beverly

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kathleen Mostek replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      26

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      dairy? gluten in chocolates?? calcium?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      dairy? gluten in chocolates?? calcium?

    4. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      dairy? gluten in chocolates?? calcium?

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      15

      Related issues

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,484
    • Most Online (within 30 mins)
      7,748

    Brian bower
    Newest Member
    Brian bower
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Kathleen Mostek
      I have had low Vit D for years before my Celiac diagnosis. I recommend Nature Made, it’s everywhere. GET THE TABLET, not the oil based capsule. The soy oil in the capsules give me diarrhea!
    • catnapt
      ack!! seriously???  just googled all the different things I ate Milky Way: Contains barley malt and is not gluten-free. Krackel: Contains barley malt.   good grief 
    • catnapt
      oh I forgot I also had some Doritos (those are corn chips aren't they?)
    • catnapt
      I'm not yet diagnosed, seeing a GI March 4th I'm keeping a food diary and yesterday I went to play cards at a friends house and ate things I don't ordinarily eat- mainly a bunch of those mini chocolates that ppl typically give out at Halloween (hershey kisses, mr goodbar. milkway, snickers) I ate er... too many.  also had a tiny bit of some kind of creamy salad dressing on raw veggies.  I had SOO much pain last night in my feet- burning, numbness and pain in my feet and ankles, and a bit less so in my knees. Lasted for hours, kept me up half the night at the same time, the trouble with constipation that I've had ever since being put on the chlorthalidone, has started to improve but then gets worse again...and I can't figure out what is making it worse and what is helping it   it is like my entire digestive tract just shuts down.   Before finding out that I may have a renal calcium leak, I did not use fortified plant milks and did not consume dairy. Since being told to consume 1000-1200 mgs of calcium from food per day- I switched to fortified soy and almond milk and added some non fat or low fat plain yogurt (It is very hard to get that much  calcium from other sources without eating an enormous amt of food- I'm 70 and just can't eat that much. I'm already seeing my weight creep up which is disturbing)   I am seeing that ppl with celiac can have issues with dairy- what would those issues be? Did I get glutened yesterday unknowingly or does chocolate or that tiny bit of salad dressing I had have gluten in it?   My feet are fine this morning! thank goodness but the pain was excruciating last night.   I don't know what to do.  I am thinking that I should ditch the dairy  (which I never really wanted to consume in the first place) and maybe anything with calcium carbonate in it (that is very constipating for me) not only has my GI system slowed down, my stools are strange-  round and often float. This so so different from what used to be my normal (on the Bristol stool score it was in the ideal range) I will go several times a day - these meatball sized round floaters I don't know if I'm still dealing with the after affects of the chlorthalidone (which has a very long half life- my last dose of that was Feb 9th or 11th - I'll have to look that up but I think it's been almost a week.   I just want all this pain and discomfort to stop. but I don't know where it's coming from. those 12 days on gluten have just wrecked my whole system it seems.   any ideas what I might do to help things get back to normal?
    • Jmartes71
      No they just said stop all supplements two weeks before.Its so frustrating im not at all happy with my "care team",because im not being seen for my sibo infact my appointment was dropped, I even asked about it and they said Dr prescribed you meds and I stated yes but I again had a reaction.I feel bothersome. I need to find another gi but its useless because its going to be same thing around here.i just feel lost and in tbe medical file they are writing what ever and its really not ok. In fact i dont want to go unless they record the conversation. Yes its that bad.im only having  care and concern for my ms whose Not part of the same health association that pcp and gi are with.I will have to look into changing to another. Mayo clinic is great but its the celiac, sibo, ect and all related issues that need addressed but current " careteam says call when needed. No plans of scheduled dates
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.