Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Did I Get Glutened?


hrly169

Recommended Posts

hrly169 Apprentice

I have been gluten free for about 2 years now. I am extremely careful about cross contamination and always check ingredients and check with manufacturers. I also can tell immediately when I have been glutened, my symptoms are always the same and always come in the same order. I always get migraines when I get glutened.

So heres' my question. Yesterday I did two things differently. I had a morning meeting and there was a box of fresh bagels in the room, I hate the smell of baked stuff like that now. The other thing I did differently was I bought a new bottle of Boulder Hot Sauce. I always eat this hot sauce and have never reacted. I wrote them an email and to my understanding as of right now they have not changed their ingredients or processing at all.

Is it possible to have a gluten reaction from breathing around gluten containing foods. This may be a silly question but I am trying to figure out what happened. I did not get near the bagels, I did not touch crumbs, in fact I didn't even touch the table they were on, I washed my hands immediately after the meeting and before I ate.

Any thoughts would be great.

Thanks so much


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Were any papers passed out during the meeting? When I was working in the school system I was constantly being glutened no matter how careful I was. The only possibility I could figure out was that when I was collecting papers after the kids would have their lunch that maybe there was some residue from the gluten they ate on their hands that transferred to the papers. I never knew for sure if that was it and in the end had to stop working at the schools because I was constantly getting CC'd no matter how hard I tried not to.

lovegrov Collaborator

You certainly did not get glutened from breathing the aroma of a baked item. MAYBE if you had been in a room with tons of flour in the air, but not a baked item.

richard

RideAllWays Enthusiast

This happened to me yesterday! I have no idea what got me, but I was throwing up like crazy all night and this morning I have a huge migraine. I didn't do anything differently yesterday and I'm very careful about contamination..

Does anybody else ever experience a reaction and have no idea what it was from?

blancasagro Newbie

I've been just weeks in a gluten free diet, on Fridays at my work they always buy fresh bread and make sandwiches for everybody, and they buy doughnuts. The smell is good, but sometimes I get migraines too and believe me I don't eat a crumb of it. Maybe is a mental reaction, but I understand you

ravenwoodglass Mentor
This happened to me yesterday! I have no idea what got me, but I was throwing up like crazy all night and this morning I have a huge migraine. I didn't do anything differently yesterday and I'm very careful about contamination..

Does anybody else ever experience a reaction and have no idea what it was from?

Gluten reactions can be delayed reactions and that can make it hard to figure out where we were 'got'. You need to look at not only what you ate right before you got sick but also for 2 or 3 days before. Keeping a food journal can help with this process.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Product Labeling Regulations
      2

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    2. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      nothing has changed

    3. - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is it gluten?

    4. - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,350
    • Most Online (within 30 mins)
      7,748

    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.