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Back From The Allergist


mom2my3girls

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mom2my3girls Newbie

I just got back from the allergist with my 9 mo dd. They did 2 panels of testing (we have to go back for 2 more next month) and those panels included milk (which her GI thought she was allergic to), oats and wheat, among other things. She tested negative for everything. He then sent her for a blood test to test for allergies to wheat, oats, milk and soy. I asked if she needed to ingest those things before the blood test for it to show up positive and he said no....which is different from what I have read.

He said that both the panels and the blood test could have false negatives though....

Anyone had a similar situation?


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psawyer Proficient

Testing for celiac disease is different from testing for an allergy to one or more of the gluten proteins.

The test for celiac relies on detecting antibodies, which are only produced as a reaction to gluten, so for that you must be consuming gluten. But I'm not sure about allergy tests. Most allergy testing is done on the skin, and measures the reaction to an amount of the suspected allergen.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
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    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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