Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fibromyalgia And Food/proton Pump Inhib


Ivy

Recommended Posts

Ivy Rookie

I've been gluten-free for 3 years. Am about to be labelled with Fibromyalgia. Have had restless leg on and off for years so it wouldn't surprise me. Recently pain that seems to move around causing different parts of my body (shoulder, arm, hands, a hip) to hurt or go numb, or just not work right for a day or two, or three, has been worsening. I haven't had any of the drugs to treat any of this before and am really hesitant. So, I am wondering if anyone else with FM symptoms has been able to relate worsening of symptoms with anything they ingest whether it's food, some chemical in food, or even a medicine (OTC or otherwise). Also I was wondering what long term effects anyone has noticed from proton pump inhibitors as my Dr put me on one before my celiac disease dx and has left me on it.

Thanks any and everyone,

Ivy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I generally notice a fibro flare if I'm not "eating well". It's not a particular food that's the issue for me, it's an overall balance of fresh foods (and not too carby ;) ). Of course, not taking my supplements makes it worse too. :P

sixtytwo Apprentice

Although I still have flares occasionally, it is much better since being gluten-free and even better when I am eating a proper diet. It just occured to me when I was reading the most former post that a proper diet could make a difference as well as going gluten-free. I take Lyrica, only a smaller dosage, and that could be helping too, probably is. There are lots of side effects to all medications and Lyrica has them big-time, however, the problem seems to come when you get into high dosages of things. I also take something for cholesterol, but that is a very low dosage too and has no side effects in that range. I feel fortunates that the lower dosages of these medications is enough to solve the problems.

Barbara

AliB Enthusiast

I picked up this article by Scott that may be of interest to anyone with Fibromyalgia.

My Husband has been a lot better since going gluten-free. I have just started him on an elimination type diet and am interested to see if it will make any difference.

https://www.celiac.com/articles/118/1/Elimi...lgia/Page1.html

trents Grand Master

I have been taking a proton pump inhibitor for about 5 years now to control GERD. I take Protonix 40mg daily. It works very well to control the GERD. I do not notice any side effects. My concern, however, is that it will have a negagive effect on calcium absorption because of raising stomach PH. Calcim, iron and some other minerals need an acid environment (low PH) to be absorbed properly. Recently I went off the Protonix for about 3 months because of this concern and started developing esophagial pain. I had an endoscopy done and my esophagus had started to look like raw hamburger. Sacred me. I went back on the Protonix and the pain is gone. It's the lesswer of evils for me.

Ivy Rookie

I understand the lesser of evils and GERD, teaching myself to sleep on a wedge . The only thing I know long term on proton pump inhibitors is that it can lead to more food sensitivities. I didn't know if anyone else knew of anything else.

I read the article AliB, thanks. I did a lot of thinking about what exactly could have changed and I think it's corn. I've been letting corn creep back into the diet. Hard not to. I guess that would increase carbs wouldn't it? Oh well. So I'll start there. Logic just told me that with celiac disease being immunological that FM could be susceptible to foods causing greater inflammation.

...Just so long as it's not chocolate ;)

AliB Enthusiast

Whilst some settle down after removing gluten and are perfectly ok, there are many for whom gluten alone is not the answer.

Whilst other foods can cause reactions, often they typically are other carbohydrates, like corn or soy products.

I believe that when you remove one carb source, like wheat and other gluten-grains, for some, certain bacteria within the gut will turn their attention to another one and so it goes on. Carbohydrates, and particularly processed and refined ones are the foods that feed the beasties, and as our Western diet is so carb-heavy it is not surprising.

If you analyse the diets of healthy indigenous cultures they all eat protein in some form, a good supply of fats and oils - even saturated ones, but what they don't eat is anything like the quantity of carbs that we do and certainly nothing processed or refined or sugar-laden. Some cultures eat virtually no carbs at all, yet they are fit and healthy.

As a gluten-intolerant diabetic I am currently eating low-carb and higher fat. I have been doing this now for about 10 days and have not had to have any insulin for the last week. My blood sugars have been virtually normal. Carbs drive blood sugar, blood sugar drives insulin and insulin is the fat-laying hormone. An excess of carbs will encourage weight gain in some (and even weight loss in others). You don't have to be diabetic to be affected by insulin imbalances.

I was eating fairly low-carb anyway but have reigned it in even tighter, have upped my fat intake (good fats, butter, coconut oil, flaxseed oil, cod liver oil and olive oil) and am now losing weight (which I need to - 7lbs so far). I am now getting more vitamin D and A as a result too, and a lot more essential fatty acids.

It will be interesting to see if I can make any difference to my husband's Fibro if I can get him to take more fats and oils in his diet. We live in the UK and a shortage of vitamin D can be a problem.

Since I have been low-carbing I don't have any problems with acid reflux either.

Oh, and you know what? Since I have been taking the higher fat consumption I no longer crave chocolate - or have any compunction to nibble in the evenings when watching the TV (that was a big problem). Wonderful. Makes me wonder if it wasn't actually the chocolate I wanted, but the fat content in it! food for thought..............


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748

    Dorfor
    Newest Member
    Dorfor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.