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Anyone Not Able To Work Because Of Celiac Disease And Related Conditions?

GlutenGuy36

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GlutenGuy36 Contributor
GlutenGuy36
Posted

Just wanting to know if anyone has been feeling rough like me.

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mysecretcurse Contributor
mysecretcurse
Posted

There have definitely been times it has effected my work or made me not be able to work. This was all before I even knew I was celiac though and was still eating gluten every day and being deathly ill.

cmom Contributor
cmom
Posted

The job I have now as a teaching assistant ijs perfectly suited for me. If I have any intestinal flareups, I can excuse myself and tend to them. However, there are without a doubt, some jobs I could never hold such as assembly line worker, cashier in a busy store, highway worker, etc. I must have a job where I can hit the restoom if necessary. They did put me on a special needs bus for a short time but I started having problems and feeling ill and had to request to be taken off that duty. The ride was 1 1/2-2 hrs. long out throught the country where there were no public restrooms. Thank goodness my principal was so understanding. I was in line to check out a famous chain store one time, and the cashier was begging the supervisor to let her go toe restroom, and the supervisor refused. I thought this was absolutely horrible. (If there are alot of mistakes in this post, I apologize....I'm only wearing one contact!) :huh:

lovegrov Collaborator
lovegrov
Posted

Couldn't work for 10 weeks and after that only half time for a while. If my job had been more a physical one, it would have been even longer.

richard

JillianLindsay Enthusiast
JillianLindsay
Posted

I've been off work for 3 months after suffering seizures and extreme fatigue, dizziness, etc.

I was only diagnosed earlier this month and am hoping to go back to work in August.

I am slowly starting to feel better, but it has been a very rough journey. I've basically been sick for 7 months with no reprieve and it took them 6 months to figure out why.

Thankfully we've figured it out and I can hopefully start to get better. I hope you do as well.

Just wanting to know if anyone has been feeling rough like me.

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    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
    • RMJ
      ttg iga high (646 mg/dl) other results are normal

      By RMJ · Posted

      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      Vegetarians and vegans with celiac disease

      By kpf · Posted

      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
    • trents
      Fiber Supplement

      By trents · Posted

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
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      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
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