Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From Vancouver Island?

River*

Recommended Posts

River* Contributor
River*
Posted

I have never met another Celiac in real life, anyone from Vancouver Island?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RideAllWays Enthusiast
RideAllWays
Posted

I'm from white rock, I take the ferry over pretty often. A whole bunch of my friends are going to uvic, so if I'm ever going over I'll let you know ;)

Northern Celiac Newbie
Northern Celiac
Posted

I'm from Fort Nelson here,but planning on going to cumberland for the big music fest. If you make it up island, I'll buy us a rum and coke(we're allowed B)

cheers

  • 2 weeks later...
mypath48 Newbie
mypath48
Posted

I am from Victoria,was diagnosed in 85 still here against some of the odds I was given in those days when not much help was available.

Patrick

:)

  • 2 weeks later...
River* Contributor
River*
Posted
  • Author
I am from Victoria,was diagnosed in 85 still here against some of the odds I was given in those days when not much help was available.

Patrick

:)

Hi! In 85..wow. How old are you now?

I remember a gluten free grocery store in Victoria between London drugs and Market on Yates? Is it still there?

River* Contributor
River*
Posted
  • Author
I'm from Fort Nelson here,but planning on going to cumberland for the big music fest. If you make it up island, I'll buy us a rum and coke(we're allowed B)

cheers

Hi, thanks! That sounds really nice but, I probably won't make it up there though. I hope you have a good time!

River

River* Contributor
River*
Posted
  • Author
I'm from white rock, I take the ferry over pretty often. A whole bunch of my friends are going to uvic, so if I'm ever going over I'll let you know ;)

Hi, that sounds great!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mypath48 Newbie
mypath48
Posted

:) I am 69,in those daysI had a melanoma which was rare and written up in a few american journals,sort of 1 in a thousand type of occurence being malignant.

The store you mention you I am not aware of on Yates street,a lot has changed. :)

Patrick

  • 2 weeks later...
River* Contributor
River*
Posted
  • Author
:) I am 69,in those daysI had a melanoma which was rare and written up in a few american journals,sort of 1 in a thousand type of occurence being malignant.

The store you mention you I am not aware of on Yates street,a lot has changed. :)

Patrick

Hi Patrick, in 69 years have you found you have a problem with other grains as well as gluten grains?

mypath48 Newbie
mypath48
Posted
Hi Patrick, in 69 years have you found you have a problem with other grains as well as gluten grains?

:D:)

Not really have not experimented with exotic grains,grains from Asia are questionable.

I practise zero tolerance best I can,but get flare-ups with foods in restaurants the odd time.

Reading labels is a challenge as to ingredients as well.

I stick to brown rice flour mostly.

Some countries like Australia consider 20ppm ok as safe for celiacs,however one of the flour millers I spoke to in Ontario recently strive for 5ppm.

As you know reactions are very diferentwith some celiacs.

regards mypath48 Patrick

  • 5 months later...
sandiz Apprentice
sandiz
Posted

I have never met another Celiac in real life, anyone from Vancouver Island?

Chemainus, the little town that did

dilettantesteph Collaborator
dilettantesteph
Posted

I lived in Vancouver for 17 years, sister went to UVic and I went to the Island and various Islands a lot. I really miss it.

  • 1 month later...
sandiz Apprentice
sandiz
Posted

Hi! In 85..wow. How old are you now?

I remember a gluten free grocery store in Victoria between London drugs and Market on Yates? Is it still there?

Look up Planet Organic. Great place. They have a celiac tour every month from the president of the Vancouver Island Celiac Association. It is an awesome place to shop, very helpful staff.

  • 2 weeks later...
BCgal Newbie
BCgal
Posted

I'm from the Comox valley. I seem to meet Celiacs everywhere now that I am diagnosed. It would be cool if there were enough of us to organize some kind of gluten-free meet up. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.