Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Time For Exhaustion To Go Away


Knoppie

Recommended Posts

Knoppie Apprentice

When I first went off gluten, my stomach stopped bloating after about 5 days, but I felt much less tired after about 2.

Now I'm tired again and I've been off gluten for about a month now. Is this normal? I've tried to see if there's any way gluten might still be sneaking into my diet. I read that it can be in teabags but I still used those when I first felt better. The bloating has stopped but I can't seem to rid myself of the exhaustion.

Does anyone have an explanation or advice? and how long does it take then to start feeling less tired?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Have you had your B12 tested? Or your iron level? Most people with a gluten intolerance also have low levels of B12. Do you take vitamins?

The fatigue never went away for me. I didn't realize how bad it was until my neuro diagnosed sleep apnea. I thought the way I felt was "just me". I have been gluten free for 9 years, and have been searching for years for a reason why I feel the way I do.

Get your B12 tested, and let us know what the level is. Most doctors will tell you a level of 200 is good, but it isn't, it's too low. They tell me my level is wonderful, but if I stop taking my B12 for even 3 days, I can tell. My level is 1018, and I take more B12 now than I did 3 years ago when my level was 1237. I will have to take B12 forever.

OptimisticMom42 Apprentice

I've been gluten free (not counting learning curve mistakes) for five months. I've just started seeing a difference. I'm getting more work done and sleeping a lot less. I even stay up and watch a movie with my teenagers now and then. :rolleyes:

Everybody is different so........ Good Luck, I hope you are feeling chipper soon!

OptimisticMom42 Apprentice

Are there other signs that it's a B12 issue? I've been thinking about adding some but I'm not going to another dr., barring an emergency, until the bills have all been paid.

Thanks RA

Knoppie Apprentice
Have you had your B12 tested? Or your iron level? Most people with a gluten intolerance also have low levels of B12. Do you take vitamins?

The fatigue never went away for me. I didn't realize how bad it was until my neuro diagnosed sleep apnea. I thought the way I felt was "just me". I have been gluten free for 9 years, and have been searching for years for a reason why I feel the way I do.

Get your B12 tested, and let us know what the level is. Most doctors will tell you a level of 200 is good, but it isn't, it's too low. They tell me my level is wonderful, but if I stop taking my B12 for even 3 days, I can tell. My level is 1018, and I take more B12 now than I did 3 years ago when my level was 1237. I will have to take B12 forever.

Both my iron and B12 levels are low. I started taking injections for B12 which I used to take but stopped. I also started taking an iron supplement again which i stopped because I was afraid it might have gluten in it, I can't find out if it's in medication in Egypt. The others are way too expensive. If I get my iron up how soon should I start feeling better? Will my iron levels stay up or will I have to keep on taking iron like I always had to do?

tarnalberry Community Regular
Both my iron and B12 levels are low. I started taking injections for B12 which I used to take but stopped. I also started taking an iron supplement again which i stopped because I was afraid it might have gluten in it, I can't find out if it's in medication in Egypt. The others are way too expensive. If I get my iron up how soon should I start feeling better? Will my iron levels stay up or will I have to keep on taking iron like I always had to do?

B-12 and iron levels being low will certainly make you tired. Do try to find out if there's any iron supplement you can take, or consider getting one shipped from overseas. You can also start cooking with a cast iron pan in order to get more iron (particularly if cooking acidic foods).

Whether levels will stay up or not depends on why the levels were down in the first place. You may not need to, but you might. Generally, low iron is not a 'cause' all of its own, something is causing the body to either not store, or use up, too much iron. (Though, the cause can just be diet related, it can also be a physiological process.)

ang1e0251 Contributor

I didn't see a dr to take sublingual B12 (methyl type). You can't overdose on it, extra just flushes out of your system. I tried it and I feel so much better. If I skip, forget, a couple of days, I'm draggin' my tail again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    2. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    3. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    4. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    5. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.