Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Sensitivities

fran641

By fran641
in Coping with Celiac Disease

Recommended Posts

fran641 Contributor
fran641
Posted

Something still has me baffled. I have been gluten free since Dec. 08 and it seems the longer I'm away from gluten I'm becoming hypersensitive. I am definitely feeling better gut wise but these itches and rashes keep popping up. Shouldn't I be healthier, thus less prone to allergies as I improve my eating? When I would be accidentally glutened I would know it because of nausea. Lately it was a rash from grits, then extreme itching from McCormick's Old Bay. (both products I used frequently without problems for months) I just had dinner out and now I am itching from head to toe. Probably a cross contamination issue at the restaurant but this symptom is new to me. I feel like I'm freaky about everything I put in my mouth lately. Not a great place to live especially since I am so happy with my gut issues being resolved with the gluten free diet. Thanks for any information anyone can give me......I'll go away now and scratch these itches all over my body. :o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jackie927 Rookie
Jackie927
Posted

You are too funny. I am having some of the same issues but I have not been gluten free as long as you. I hope you get some answers so I can read them. I wish you no more itches......and me too. I'm all bruised up.

glutenfreeinaz Newbie
glutenfreeinaz
Posted

Fran,

Have you tried increasing the amount of yogurt or probiotics? They are supposed to help with digestion and with immunity.

Shauna

fran641 Contributor
fran641
Posted
  • Author
Fran,

Have you tried increasing the amount of yogurt or probiotics? They are supposed to help with digestion and with immunity.

Shauna

[]Yes, I do eat yogurt every other day and take probiotics everyday. The funny thing is that I seem to be digesting my meals fine, no d, gas or bloating. I feel better after eating than I have in many years. It is the external symptoms that concern me. Could damage be occuring in my intestines without my knowing it if these external symptoms are going on?

mushroom Proficient
mushroom
Posted

I can offer words of condolence, but not much enlightenment. I am 20 months down the gluten free road, and still chasing itchies. I am very much afraid that they do come from additional intolerances/sensitivites, of which we were previously unaware. For me they have been, successively, soy, citric acid, potato starch. I have not stopped itching yet since going gluten free, but think I am finally getting a handle on it. Hope to goodness nothing else shows up, and that I can stop scratching soon :D:D

Good luck with finding out what is doing it for you.

Liveenjoylife Apprentice
Liveenjoylife
Posted

It sucks, I know, lol. New things will pop up, but I have found that over time it will all diminish. It took me 4 months but am better under control with reactions to foods. I am sure it will turn that way for you too. Just patience, it takes time and yes it is a hard road.

fran641 Contributor
fran641
Posted
  • Author

I hate all the itching that I have but it is only occasionally and external. My poor sister has internal colon itching, it's truly an itch that can't be scratched! When I was diagnosed in Dec. she decided to try going gluten free (didn't get tested until after quiting gluten so her test was negative). After getting off the gluten the itching quit. But she isn't very committed to staying off gluten and the symptoms return. She has been to lots of specialist about this problem and they could not find a thing wrong or a solution to the itching. Obviously they didn't check for celiac..

Thanks for mentioning the soy, citric acid...I'll watch those too.

Glad you are doing so well after 4 months Liveenjoylife. It's been 7 months for me but these new allergies are just beginning. Hopefully this too shall pass....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jackie927 Rookie
Jackie927
Posted

Wow! Now I know why after going gluten free for a month and not having hardly any symptoms to having many symptoms after eating normal foods again. I didn't know you become more sensitive after being gluten free for a period. OH NO! And OH the itches! I also think the Soy is a NO NO for me. All of you are so kind and understanding and I didn't even ask the question. ANGELS in my pc. Thank you for all of the answers.........that everyone can read and learn and try to help ourselves.

lizard00 Enthusiast
lizard00
Posted

Have you been tested for food allergies? It's different from celiac testing because whether you have or haven't been eating specific foods before the test doesn't matter. It might shed some light on what foods are causing you to itch.

ang1e0251 Contributor
ang1e0251
Posted

I would agree that this sounds like a histamine reaction or an allergy. Sometimes they lay in wait until our gluten issues are in hand then jump out and make us itch. Do you think you might have a problem with MSG? What ingrediants are in the two foods you most suspect?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,165
    • Most Online (within 30 mins)
      7,748
    melindakathleen
    Newest Member
    melindakathleen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...