Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Non-caucasians On Here?


zeta-lilly

Recommended Posts

zeta-lilly Apprentice

I spotted a website about celiac disease and it actually had a lot of good information on it, but it also had the statement that it was mainly a disease of people of caucasian descent and if you aren't caucasian, you probably don't have it. I didn't think that was the case and I haven't seen it mentioned elsewhere. Anyway, I was just wondering if there was any truth to that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rissmeek Newbie
I spotted a website about celiac disease and it actually had a lot of good information on it, but it also had the statement that it was mainly a disease of people of caucasian descent and if you aren't caucasian, you probably don't have it. I didn't think that was the case and I haven't seen it mentioned elsewhere. Anyway, I was just wondering if there was any truth to that.

My best friend is non-Caucasian and has Celiac. At one time there was a belief that only certain Caucasians could/would get it. I have not seen that kind of information in a very long time though.

Fiddle-Faddle Community Regular

I have met Chinese, Indian, and African-Americans with celiac disease.

Perhaps this might be useful:

From Open Original Shared Link

"HLA typing and Celiac Disease

Some people have had the notion that Celiac was almost totally absent in African-American and Asian populations, however clinical observations and some studies of immigrants who have added gluten-containing foods have shown surprising rates of Celiac. Therefore it is unclear if the historical low reported rates of celiac disease were due to lack of gluten, lack of proper diagnosis, or lower genetic susceptibility.

Additional information on celiac disease in these populations can be found at:

(a) Brueton & al Coeliac disease in Asian children in United Kingdom: in McConnell RB (ed): The Genetics of Coeliac Disease. Lancaster, MTB Press, 1981, pp. 103-108

(B) Sher & al. High risk of coeliac disease in Punjabis. Epidemiological study in the South Asian and European Populations of Leicestershire. Digestion 1993; 54: 178-182).

© Boudraa et al. Epidemiology of gluten intolerance in North Africa. In: Common Food Intolerances. I.: Epidemiology of Celiac disease. Dyn. Nutr. Res., Basel, 1992. vol.2, pp 64-70."

FMcGee Explorer

It's just patently untrue that only Caucasians get celiac. Proportionally, my understanding is that it occurs at the same or similar rates amongst all groups of people all over the world, with the exception of a lower incidence in Japan.

The internet is full of bad information on celiac (and in general) so be careful! Gluten Free Living just did a good article on myth busting for this very reason. I'd recommend it.

daphniela Explorer

I am half Mexican and I beleive I inherited Celiac from my Mexican side of the family. My grandmother had many symptoms and I beleive she died because of undiagnosed Celiac. She was morbidly obese and tried many diets but could never lose the weight. She also had some brain tumors removed and cronic migraines and TMJ. I have a cousin who just died a few months ago of a rare brain tumor which I also beleive was 'cause of undiagnosed Celiac.

I have been wondering the same thing. Are there any other Mexicans here?

StrongLikeBull Newbie

I'm African-American and gluten intolerant. But somewhere far, far down my bloodline I have German and French ancestors from which I may have gotten this predisposition. Maybe not. But in the great melting pot that is the United States, you can never be too sure what someone's lineage is, even if they're categorized as belonging to a particular race.

OptimisticMom42 Apprentice

I just had this conversation with a woman who adopted two Korean children. She has been useing the SCD and was considering a gluten challenge for her adopted son. We were in agreement that Celiacs being a "white thing" had to be a bit of arrogance.

I still think it's only happens to people with charm and wit! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zeta-lilly Apprentice

It's really sad that there's so much misinformation floating around out there. I'm a nurse and I try to give my patients the best information I can about celiac and other diseases and I've had several who had multiple autoimmune diseases plus tons of symptoms and then they are told by their doctor that celiac disease isn't possible because they are overweight or don't have diarrhea. One lady told me that her doctor said that she couldn't possibly have celiac disease because she wasn't in severe pain every time she ate gluten. That was his idea of celiac disease, that when you eat gluten, you are in severe pain and then have diarrhea. It's really disgusting that physicians aren't more up to date on the disease. I'll have to see if I can find that site again and email the administrator. I don't think I bookmarked it though.

Hmm, I wonder if lower rates in Japan are due to their diet? I've never been to Japan, but I would imagine they would eat less gluten than we do here.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    5. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,374
    • Most Online (within 30 mins)
      7,748

    Lynt
    Newest Member
    Lynt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.