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New Member To The Glueton Free Life

Stiffy

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Stiffy Newbie
Stiffy
Posted

Hey I just got back from the VA (veterans affairs) hospital and they got the results back from a upper endosocpy that tested positive for celiac disease. I am a Iraq vet with no history of this in my family, or any symptoms. If anyone could give me some help on anything and everything that would be awesome of you thanks.

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Krysten Newbie
Krysten
Posted

I would get elisabeth Hasselbeck's book on the gluten-free Diet because she talks about how to grocery shop & things to watch out for so you don't get sick in restaurants and how to avoid getting sick from cross contamination (like if you put your gluten-free toast in a toaster that has wheat crumbs in it). Basically the book gave me info that drs didn't tell me when I 1st found out I had celiac. I wrote a review on it & basically I felt that if I had that book when I 1st got diagnosed, it would have saved me a lot of grief.

CeliacAlli Apprentice
CeliacAlli
Posted

Elizabeth Hasselback's book really does have some great information on celiac disease. It explains basically everything you need to know and should help you a lot!

If you have any questions feel free to ask!

OptimisticMom42 Apprentice
OptimisticMom42
Posted

Celiacs Disease:A Hidden Epidemic was very helpful. It really explains what is happening inside your body. I'm stubborn, I always follow the rules if I know why I have to! Being military you are probably less rebellious than I am but it's still good to know why the diet works and why you can not cheat.

tarnalberry Community Regular
tarnalberry
Posted

I encourage you to spend a little time around here reading everything you can.

I'm not really sure where to direct any help.

Do you have an idea of what foods you should and shouldn't eat?

Do you have an idea of how you're going to change what you have in your home?

Do you know about cross-contamination in your kitchen, and in other foods?

Do you know how you're going to handle this with friends/family?

Do you have special considerations (a job with travel, etc.) that complicate things?

  • 2 months later...
Paul Jackson Rookie
Paul Jackson
Posted

A new, online support group serves communities along I-105, including Norwalk, California. In response to your request, "Stiffy," I'd like to invite you to visit, and to consider joining this group:

Open Original Shared Link

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  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
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