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New Member To The Glueton Free Life

Stiffy

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Stiffy Newbie
Stiffy
Posted

Hey I just got back from the VA (veterans affairs) hospital and they got the results back from a upper endosocpy that tested positive for celiac disease. I am a Iraq vet with no history of this in my family, or any symptoms. If anyone could give me some help on anything and everything that would be awesome of you thanks.

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Krysten Newbie
Krysten
Posted

I would get elisabeth Hasselbeck's book on the gluten-free Diet because she talks about how to grocery shop & things to watch out for so you don't get sick in restaurants and how to avoid getting sick from cross contamination (like if you put your gluten-free toast in a toaster that has wheat crumbs in it). Basically the book gave me info that drs didn't tell me when I 1st found out I had celiac. I wrote a review on it & basically I felt that if I had that book when I 1st got diagnosed, it would have saved me a lot of grief.

CeliacAlli Apprentice
CeliacAlli
Posted

Elizabeth Hasselback's book really does have some great information on celiac disease. It explains basically everything you need to know and should help you a lot!

If you have any questions feel free to ask!

OptimisticMom42 Apprentice
OptimisticMom42
Posted

Celiacs Disease:A Hidden Epidemic was very helpful. It really explains what is happening inside your body. I'm stubborn, I always follow the rules if I know why I have to! Being military you are probably less rebellious than I am but it's still good to know why the diet works and why you can not cheat.

tarnalberry Community Regular
tarnalberry
Posted

I encourage you to spend a little time around here reading everything you can.

I'm not really sure where to direct any help.

Do you have an idea of what foods you should and shouldn't eat?

Do you have an idea of how you're going to change what you have in your home?

Do you know about cross-contamination in your kitchen, and in other foods?

Do you know how you're going to handle this with friends/family?

Do you have special considerations (a job with travel, etc.) that complicate things?

  • 2 months later...
Paul Jackson Rookie
Paul Jackson
Posted

A new, online support group serves communities along I-105, including Norwalk, California. In response to your request, "Stiffy," I'd like to invite you to visit, and to consider joining this group:

Open Original Shared Link

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    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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      Supplements for those Diagnosed with Celiac Disease

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