Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whole Foods Cya?


Ivy

Recommended Posts

Ivy Rookie

It had been a couple of years since I went to the Whole Foods site and read their gluten free information. Recently I purchased some of their 365 brand, packaged - as they do not recommend we (celiacs) use the "bin food". The labeling was lacking a bit, it had declared allergen info, but nothing on gluten really, so I went to their site. Sifting through the double-speak of fine print they state "Whole Foods Market Private Label does not gather shared equipment information, because it is the manufacturer's legal right to change equipment used for production (as long as GMPs are used). We do gather shared allergens in a manufacturing facility, and this information is reflected on the label." What exactly does this mean? Isn't that pretty well a blanket CYA for us on food not labeled gluten-free? In another section, they have a cross contamination disclaimer, very CYA.

I should add that I have a problem with trace amount accumulation, meaning it may not hit me the first day or the second, but after a week...it's like a slow slide back to being glutened instead of an immediate reaction. Does anyone else have this happen?

Anyway, we aren't entirely covered by allergen labeling are we? I mean just because there's no wheat doesn't mean there isn't gluten does it? Being sensitive, have I hit that point where unless it is labeled gluten-free AND "Processed in a dedicated facility" I have to worry about if it's safe? GMP just means maybe ok, and if they don't have to list other sources of gluten because they're not on the allergen list, where are we?

Thanks to anyone who can input on this.

Ivy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mrs.Doyle Newbie

Wow, that is disturbing. I wish I had an answer for you more than my two cents: Send an email saying how lousy that is and cast your vote for a different company that does provide that info by voting with your money and buying their product. Send the good companies emails saying how much you appreciate their efforts to help with the growing population of gluten sensitive people's food choices. Sometimes you get coupons for free products :D Amy's is a great company for sending fabulous coupons for their products.

Sorry that wasn't the best answer, I'm with you on the being disgruntled about companies lawyering-up to protect their butts at the cost of our health. The way you can ever truly know for sure is to make your own foods, which isn't always an option. Even when something is labeled properly, their is always the off chance that something went wrong and the product gets recalled by the FDA and most of the time it's too late then because you already ate it. Our food industry needs a complete and total overhaul and it is going to takes years to happen, but if we all start voting with our dollars, voicing our disappointments and praising those who do well, we are at least contributing to making it better...

lizard00 Enthusiast
Anyway, we aren't entirely covered by allergen labeling are we? I mean just because there's no wheat doesn't mean there isn't gluten does it? Being sensitive, have I hit that point where unless it is labeled gluten-free AND "Processed in a dedicated facility" I have to worry about if it's safe? GMP just means maybe ok, and if they don't have to list other sources of gluten because they're not on the allergen list, where are we?

Thanks to anyone who can input on this.

Ivy

Basically, what this statement is to me is definitely CYA. BUT, it also helps me make an informed decision. So, while I may not like it, at least it's there. You can call some of the companies and ask what processes are in place, the time difference between when the allergen in question and the 'safe' food is processed... because this statement can also apply if you have other food problems. I see this warning often concerning peanuts/tree nuts with no mention of wheat.

So, to answer your question... yes, just because it's wheat free doesn't mean it's gluten free. For a couple of reasons: something can be wheat free but contain barley or rye, it could be gluten-free, but be contaminated during processing. Everyone has a sensitivity level, however, so what you may or not be able to tolerate could be completely different from the level that I can tolerate. Generally speaking, I have a very high sensitivity to gluten and soy. Some things I do fine with from a shared facility, others make me sick. Cereals, breads, etc. from a shared facility don't work for me. But, I've had hummus made in a shared facility and it didn't bother me at all. It's all trial and error, unfortunately.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.