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Gi Bleeding With Cc

ravenwoodglass

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ravenwoodglass Mentor
ravenwoodglass
Posted

I have been gluten free now for 7 years but still the occasional slip up. Now it only happens once or twice a year, thank goodness. However now when I get glutened I bleed. I got glutened a week or so ago and I was passing clots and mucous (sorry for the TMI) for 3 days. I called my GI doctors office for help and the woman who answered the phone told me 'to eat gluten free', DUH and wouldn't even give me an appointment to talk with the doctor about it.

How common is it to literally bleed when you get glutened? Does this happen to anyone else? Everytime it happens it seems to last longer, when I was first diagnosed I would only bleed for about 3 hours after the D stopped now it is 3 days. Does anyone know what I can do, other than worry that one day I will hemmorage.

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sylviaann Apprentice
sylviaann
Posted

I would really be concerned about this. Have you had a colonscopy recently??

I was diagnosed with ulcerative colitis twelve years ago and the hallmark symptoms are rectal bleeding and mucus. Your GI doctor should not take this lightly. Some Celiacs have UC and Celiac Disease. They should also be ruling out a possible bacterial infection. I would be searching for a new GI doctor if they don't seem to be concerned.

If I can help in any way, please feel free to contact me.

Sylviaann

UC since 1997

No formal celiac Diagnosis..but my celiac Specialist is highly suspicious I have celiac due to my numerous symptoms (GI, neuro, weight loss).... family history of pancreactic cancer and Chrone's Disease. Truly Gluten Free since April 2009 (after my six month education).

NicoleAJ Enthusiast
NicoleAJ
Posted

I get severe bleeding, clots, mucous, occasional black stools after I've been glutened, but I also get these symptoms at random times when I know for certain that I have not been exposed to anything glutenous. I will generally bleed for weeks or months at a time, and then it will go away as mysteriously as it appeared. Every time I go to a new GI, they say, this is probably Crohn's--they do the blood tests that show low folate, they do the rectal exam to see that there is a presence of blood, they do the tests that show occult bleeding, and then they do a colonoscopy and find absolutely nothing wrong there and figure it's coming from the ilium. Unfortunately, every time I get a CT or barium X-ray, they are completely unable to visualize the ilium, and though they've tried capsule endoscopies, they cannot biopsy with a capsule endoscopy.

Rectal bleeding can be very serious and a sign of a worse condition. For me, it's become a norm, and I just live with it, but only because the doctors have done everything possible to find the source of the bleeding, and it doesn't seem to be an ulcer, cancer, etc. I would call the doctor again in hopes of getting a different receptionist or just say that you are having severe GI symptoms and you need to schedule an appointment. I'm sure the doctor wouldn't be as flippant or dismissive as his clearly uneducated receptionist would be about rectal bleeding.

ravenwoodglass Mentor
ravenwoodglass
Posted
  • Author

Thanks for the replies. I just had a colonoscopy a month or so ago and they don't schedule follow-up appointments just say if I don't hear from them that everythings fine.

I think perhaps I should not have mentioned the glutening or that I am celiac to the receptionist and I will try to get another appointment just saying I am having GI bleeding. I am so tired and distrustful of doctors but I am glad others agree that I shouldn't ignore this. I never bled with a glutening until my last GI ordered a second gluten challenge, now it happens whenever I get glutened. My family wonders why I get so paranoid about CC but this is scarey when it happens especially since I live alone.

sylviaann Apprentice
sylviaann
Posted
Thanks for the replies. I just had a colonoscopy a month or so ago and they don't schedule follow-up appointments just say if I don't hear from them that everythings fine.

I think perhaps I should not have mentioned the glutening or that I am celiac to the receptionist and I will try to get another appointment just saying I am having GI bleeding. I am so tired and distrustful of doctors but I am glad others agree that I shouldn't ignore this. I never bleed with a glutening until my last GI ordered a second gluten challenge, now it happens whenever I get glutened. My family wonders why I get so paranoid about CC but this is scarey when it happens especially since I live alone.

Did you get a copy of your Pathology report after your recent colonoscopy? Even if the doctor's report looked clean (when he actually examined you), the pathology report is what you really want to see and keep a copy of. Last year. my doctor's advised me that everything looked good on the day of my colonoscopy but the pathology report revealed my diagnosed condition.

Sylviaann

ravenwoodglass Mentor
ravenwoodglass
Posted
  • Author
Did you get a copy of your Pathology report after your recent colonoscopy? Even if the doctor's report looked clean (when he actually examined you), the pathology report is what you really want to see and keep a copy of. Last year. my doctor's advised me that everything looked good on the day of my colonoscopy but the pathology report revealed my diagnosed condition.

Sylviaann

Thanks for the reminder, I always tell others to do that too.....but didn't do it yet for myself. I am going to make sure I get copies of that and also of the blood work he had done before the test. I really do want to see the report on that polyp he removed also. I have been seriously braindrained the last month between hurting teeth, and the glutening and other junk going on. I will call his office tommorrow. Sometimes it seems I take better care of the others in my world than I do of myself, common for Moms I think.

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