Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Terrible Back/kidney Pain After Being Glutened. Why?

NOT-IN-2gluten

Recommended Posts

NOT-IN-2gluten Rookie
NOT-IN-2gluten
Posted

Hello,

I am newbee so I hope this is the right are for my question.

I am self diagnosed gluten intolerant at this point. Gluten free for 6 weeks. (But still learning and have been glutened several times!)

I ate in a restaurant two days ago and I could tell immediately that I had been glutened. I don't have the major stomach issues that so many people mention here, but I have terrible foot pain and pain in the kidney area. Within 20 minutes of eating spinach artichoke dip, my feet were aching and my back pain was so bad I could barely sit in the car on the way home. It has been two days. The back pain is still persistant and I don't understand it. Could it be kidneys, adrenals, gall bladder? I have no idea but it so uncomfortable. I had this symptom often if not all of the time (for years) before trying a gluten free diet.

It has been so much better and almost nonexistant since eating gluten free. I would appreicate any comments on this. Also, is it weird that I have terrible foot pain? That also seems so much better when gluten-free. Thanks for any replies!

Sandra

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dadoffiveboys Rookie
dadoffiveboys
Posted
Hello,

I am newbee so I hope this is the right are for my question.

I am self diagnosed gluten intolerant at this point. Gluten free for 6 weeks. (But still learning and have been glutened several times!)

I ate in a restaurant two days ago and I could tell immediately that I had been glutened. I don't have the major stomach issues that so many people mention here, but I have terrible foot pain and pain in the kidney area. Within 20 minutes of eating spinach artichoke dip, my feet were aching and my back pain was so bad I could barely sit in the car on the way home. It has been two days. The back pain is still persistant and I don't understand it. Could it be kidneys, adrenals, gall bladder? I have no idea but it so uncomfortable. I had this symptom often if not all of the time (for years) before trying a gluten free diet.

It has been so much better and almost nonexistant since eating gluten free. I would appreicate any comments on this. Also, is it weird that I have terrible foot pain? That also seems so much better when gluten-free. Thanks for any replies!

Sandra

No that was the primary reason I stopped eating gluten - severe back pain. As a note, my dad (who has also stopped eating gluten) was diagnosed with Focal Segmental Glomerial Sclerosis (spelling?) (FSGS) and he was getting nearer to needed a kidney transplant. He went off gluten and his kidney numbers improved to the point where he may NEVER need the transplant!! I assume my back pain may be involved with the Kidney. Gluten can affect any part of the body and my only sign was an abnormal IgA Anti-gliadin blood test and gastritis in my endoscopy. After being gluten free for 2 years now I haven't had any back pain UNLESS I get cross-contaminated and I notice it almost immediately. If you are feeling better gluten free you are intolerant.

BTW I had the gene test and came up as a DQ8 celiac gene (which is not the typical DQ2). Hope this helps!

ravenwoodglass Mentor
ravenwoodglass
Posted

Count me in to for the kidney issues. My reasoning is that since our bodies react to gluten as a toxin and the kidneys help with clearing toxins from the body it is not surprising that this would be an effect of gluten injestion.

Mother of Jibril Enthusiast
Mother of Jibril
Posted

If you think the pain is centered in your kidneys you should get that checked out!! CKD (chronic kidney disease) is a lot more common than you might think. Ask a primary care doctor for a urinalysis... the presence of protein and/or blood will tell you if you have any damage. It's cheap and very easy.

BTW... although CKD is most common in people with diabetes and/or high blood pressure, it's not necessary to have either one. I don't.

NOT-IN-2gluten Rookie
NOT-IN-2gluten
Posted
  • Author

If you think the pain is centered in your kidneys you should get that checked out!! CKD (chronic kidney disease) is a lot more common than you might think. Ask a primary care doctor for a urinalysis... the presence of protein and/or blood will tell you if you have any damage. It's cheap and very easy.

BTW... although CKD is most common in people with diabetes and/or high blood pressure, it's not necessary to have either one. I don't.

[/quote

Thank you. I will have it checked. I have had some simple blood work where most things look fine.

But no doctor has tested for protien/blood in a few years. I certainly can't get much help for my local doctors. If I specifically ask, they will test for it. Thank you, I greatly appreciate the reply!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area. I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who had real pain when she turned her torso in a certain...
    2. emzie
      - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body...
    3. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac

      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain. That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral. It does lessen the symptoms. If it is in your eyes, see an ophthalmologist. They have...
    4. Scott Adams
      0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

      until
      Exciting news for parents and caregivers of children with celiac disease. NCA Tennessee has partnered with our friends at Vanderbilt Celiac Center to create a peer-to-peer support group geared towards helping you connect with other...
    5. Scott Adams
      0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

      until
      Exciting news for parents and caregivers of children with celiac disease. NCA Tennessee has partnered with our friends at Vanderbilt Celiac Center to create a peer-to-peer support group geared towards helping you connect with other...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,451
    • Most Online (within 30 mins)
      7,748
    emzie
    Newest Member
    emzie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):

  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Stomach hurts with movement

      By cristiana · Posted

      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Stomach hurts with movement

      By emzie · Posted

      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      celiac disease and braces

      By Scott Adams · Posted

      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
    • Scott Adams
      Fiber Supplement

      By Scott Adams · Posted

      This is an older article, but still helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.