Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Cleveland/akron/canton?


Curly8

Recommended Posts

Curly8 Newbie

Hi, wondering if anyone was in Cleveland to chat and share restuarants and grocery ideas?

Kim

Stow, OH


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Hi Kim

There is a group from that area. Mike Eberhart has a gluten-free blog & he is a cookbook author as well. He just moved from the Cleveland area.....

We go to this area about four times a year to shop.

I love the Raisin Rack in Canton or Columbus. Canton has more gluten-free...

mamaw

Chuck8268 Rookie
Hi, wondering if anyone was in Cleveland to chat and share restuarants and grocery ideas?

Kim

Stow, OH

Nope,but down the pike in Pittsburgh

chasbari Apprentice

Raisin Rack in Canton has a celiac support group that meets regularly. Just around the corner and down the street for me but I seldom make it there because I am usually too busy. Good people and shopping there though. Giant Eagle has a gluten-free section as does Acme... sort of.

Chuck

Oh, I just remembered, BAM Cuisine here in North Canton started a gluten-free menu this past year. I still haven't tried them out as I am quite happy on my paleo routine. My son keeps saying I should open a paleo restaurant.

CS

jjc Contributor

HI - I live in North Royalton and have been to a few meetings around.....there is the Northeast Ohio Celiac group ( www.geocities.com/clevelandceliac ) and also the Great Cleveland Celiac Association ( www.clevelandceliac.webs.com ).

I liked the Raisin Rack in Canton, but I LOVED the Raisin Rack in Westerville by Columbus. That store was the best I've ever seen. Huge gluten free area and brands I've never seen before. Definitely a place to take a field trip to.

Where do you live? I'd love to talk to people around here about the restaurants they go to. We always seem to have restaurant problems!

Does anyone have tried and true places they go to?

mamaw Community Regular

The Man-Chu Restaurant is wonderful & has a gluten-free menu. We had the best general Tso's chicken there....

Denise is the buyer at the Raisin Rack in Canton & also the group leader there. SHe is very knowledgeable on gluten-free ....

I used to like the Columbus store better but since they moved across the street I think Canton is way better....

Chuck, where are you in Pittsburgh? I'm the founder of an independent gluten-free ministry in BUtler. We do alot . We also have a mini co-op for gluten-free. I test market gluten-free new products as well. We have over 100 registered members of course all don't attend every month. We also have a beginners group where it is more one on one. How long have you been gluten-free? Do you know we will be having a gluten-free seminar in Oct 09? You can send me a private message if you want more info.

mamaw

ranger Enthusiast

Hi. I live in Canton and have found several safe restaurant to eat in. I've been to the meetings at the Raison Rack, but mornings are bad for me. I shop there all the time. There's also the Mustard Seed Market near Akron, but R Rack has the best seletion of gluten-free stuff. Several mainstream groceries also offer gluten-free stuff, and there are small ethnic places that do to (for cheap!). Let me know if you need specific info - I'll do what I can, but don't eat out often.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chasbari Apprentice
The Man-Chu Restaurant is wonderful & has a gluten-free menu. We had the best general Tso's chicken there....

Denise is the buyer at the Raisin Rack in Canton & also the group leader there. SHe is very knowledgeable on gluten-free ....

I used to like the Columbus store better but since they moved across the street I think Canton is way better....

Chuck, where are you in Pittsburgh? I'm the founder of an independent gluten-free ministry in BUtler. We do alot . We also have a mini co-op for gluten-free. I test market gluten-free new products as well. We have over 100 registered members of course all don't attend every month. We also have a beginners group where it is more one on one. How long have you been gluten-free? Do you know we will be having a gluten-free seminar in Oct 09? You can send me a private message if you want more info.

mamaw

Sorry about the misunderstanding. I am actually in North Canton, Ohio. I have been to Pittsburgh... and much to my dismay never made it to Primanti's before my diagnosis. That was the one place I wanted to go... Now, uh, I think I shall never set foot in the place as I am pretty sure finding gluten-free food there would be highly unlikely. Been gluten-free since November 2008 when we begin to suspect celiac and Diane at Raisin Rack recommended the GP I now go to. She was a blessing, indeed!

Chuck

  • 4 weeks later...
Melanie1330 Newbie
Raisin Rack in Canton has a celiac support group that meets regularly. Just around the corner and down the street for me but I seldom make it there because I am usually too busy. Good people and shopping there though. Giant Eagle has a gluten-free section as does Acme... sort of.

Chuck

Oh, I just remembered, BAM Cuisine here in North Canton started a gluten-free menu this past year. I still haven't tried them out as I am quite happy on my paleo routine. My son keeps saying I should open a paleo restaurant.

CS

I just went to BAM for the first time last week. I loved it! I had a fantastic gluten-free pizza! It was the first one that I have enjoyed since being diagnosed. :D

  • 3 months later...
MagpieWrites Rookie

Been a bit since you posted this, but since I just joined..... :lol: I'm in the Akron/Goodyear Heights area myself.

Have you tried the pizza place in Stow called Alterri's? Gluten free pizza (pretty tasty in fact), and gluten free baked pasta - as well as twice a week they do gluten-free fried chicken and jo-jo's. I don't eat out often since the diagnosis, but it was great to find an option or two for when I'm out and about.

As for groceries, there is an amazing Asian market in Cuyahoga Falls that has proved to be a lifesaver for gluten free foods. I get huge packs of tapioca starch, potato starch, rice noodles, etc worlds cheaper than at the health food stores! If anyone wants the address I'll look it up.

  • 1 month later...
ECRO6 Newbie

Hi, wondering if anyone was in Cleveland to chat and share restuarants and grocery ideas?

Kim

Stow, OH

ECRO6 Newbie

I live in Lorain, Ohio. I go to the Heines grocery store in Avon, Ohio and they have a dietician that will take a person through the store and help with the gluten free items. They also stock the gluten free beers. You should have an appointment so she is not busy. She will take her time with you also.

halfrunner Apprentice

I live in Akron. We get most of DH's gluten-free items at Mustard Seed Market in Fairlawn. There is also a Mustard Seed Market in Solon. As someone mentioned above, Giant Eagle has some gluten free foods, and there is a natural foods market called Seven Grains in Tallmadge (a small city bordering Akron on the north side). Raisin Rack is a 40-45 minute drive from us, so I haven't ever been there. There is a Whole Foods and a Trader Joe's near Cleveland that I'm dying to hit, but it's too far for regular grocery shopping.

Mustard Seed has a cafe at the fairlawn location, and they have a nice gluten-free menu, which changes frequently. They promise to do their best in avoiding cross contamination, but can't guarantee 100%. We have also found good gluten-free options at PF Chang, apparently Cracker Barrel has a gluten-free menu, and have managed to find workable options at our favorite mexican place (a small local dive). Quaker Steak and Lube has a gluten free menu, but you really have to keep on them if you go. They've screwed up DH's meals three of 5 of our last visits (croutons on salad, pita with the boneless wings, etc.).

Since DH isn't much for eating out, he usually only worries about it when we have family outings (my family does almost all holidays out now). His family is slowly coming around to how to deal with the gluten free eating.

  • 2 weeks later...
Kim44 Newbie

Hi, wondering if anyone was in Cleveland to chat and share restuarants and grocery ideas?

Kim

Stow, OH

Hey Kim I live right next door to you in Munroe Falls, I grew up in Stow. I was just diagnosed with celiac in Nov. 2009 so I'm very new to this.

Kim

  • 5 months later...
Roxygirl303 Newbie

Hey Kim I live right next door to you in Munroe Falls, I grew up in Stow. I was just diagnosed with celiac in Nov. 2009 so I'm very new to this.

Kim

Hi Kim,

I live in Cuyahoga Falls, not sure if you have a sweet tooth and like bakery or not but have you tried mrs. P's gluten free bakery? Her treats are amazing, and she's in Stow too. I get all my cookies from her. Check out her website the treats are great :). Www.mrspsglutenfreebakery.com

Enjoy!

Stephanie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.