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Cured?


Best Kiwi

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Best Kiwi Newbie

I was diagnosed with Celiac as a child and subsequently deemed "cured". Is this possible? I lived on a very restricted diet for years but the restrictions were later lifted.


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Darn210 Enthusiast

There is no cure for Celiac. There can be periods of time where you may be asymptomatic. This seems to be (but not restricted to) the teen years and was therefore thought that you could "outgrow" Celiac like some kids outgrow allergies. However, now we know different. Celiac is a life long diagnosis.

By the way, welcome to the forum . . . tis a wonderful and helpful community.

ravenwoodglass Mentor

No you were not 'cured' what happened is you healed. Sometimes after children are gluten free for a few years they 'seem' to be able to eat gluten again and doctors thought they were cured. Now we know that is not the case although in some it can take some time for celiac damage to be obvious again. In some instances also the antibodies will choose to first attack another organ rather than the gut first, which can make things even more confusing for doctors.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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