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Are These Celiac Symptoms?


Mirt

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Mirt Newbie

My daughter, age 22, was diagnosed with Dermatitis Herpetiformis nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, as well as stomach pain and "queasiness" after eating wheat products. Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?


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nu-to-no-glu Apprentice
My daughter, age 22, was diagnosed with Dermatitis Herpetiformis nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, as well as stomach pain and "queasiness" after eating wheat products. Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?

Yes, definitely sounds like it could be celiac, especially with your daughter having the same condition. I have both types of reactions...sometimes instant and sometimes within hours or days. If you search around on here, you'll see that everyone's reactions to gluten are very different and unique, even within families. I hope you find health and answers :)

runningcrazy Contributor
My daughter, age 22, was diagnosed with Dermatitis Herpetiformis :CELIAC CAN RUN IN A FAMILY nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, joint pain is a common symptomas well as stomach pain and "queasiness" after eating wheat products.this as well Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.gas is common

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.diarrhea is very common

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.vitamin deficiencys are very common among celiacs

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?

Everyone is different, although im not confirmed celiac, i feel better of wheat and dairy.

My main problem was constipation. I was losing weight, about 20 lbs under weight(i am 13, 5'4.5, and i got down to 80lbs) I was having stomach pains, and low iron and daily headaches

Other people have diarrhea, weight gain, joint pain, some people have no symptoms at al! But you definately fit in with closer to the "standard" symptoms with diarrhea and joint pain. Gas and stomach pain as well. Vitamin D deficiency,is also very common.

redsidekick Apprentice

I think it would be worth it getting the celiac blood work. What you described (stomach issues after eating wheat) were the beginning of the symptoms for me. I didnt think anything of it until things got worse.

JillianLindsay Enthusiast

Everyone has very different symptoms, and you seem to be aware of the genetic component of celiac disease :) My DR recommended family members get tested at the silghtest symptom because celiac disease is highly genetic. Before making any diet changes it certainly doesn't hurt to get the blood test.

If I were to eat a pretzel I would probably have immediate stomach pains and upset stomach, then fatigue and brain fog for 3-4 days following.

Vitamin deficiency is also a symptom and it's worth getting checked out because of the health risks related to vitamin deficiencies.

Good luck,

Jillian

My daughter, age 22, was diagnosed with Dermatitis Herpetiformis nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, as well as stomach pain and "queasiness" after eating wheat products. Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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