Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rash On Lips, Itchy Mouth And Swollen Throat


luciddream928

Recommended Posts

luciddream928 Explorer

I know I got glutened a few weeks ago and it's actually taken me about that long to get over it. I moved to a new city and ate out while moving, though I tried to be careful we all know how THAT one goes.

Last week I went to a dinner party and had three questionable items: Falafel (host said there was no wheat in it), tapioca (same), and hummus. I asked about all these things and the host said they had no flour so I assumed it was safe. Probably a dumb move on my part, but I did.

I've had strange symptoms crop up since then. Predictable D, C, alternating (which has NOT been fun), excessive sleeping, mood swings, aches, and the same rash I always get on the joints of my fingers and now on one elbow. The strange symptom is on my mouth - I got what started out as a crack in the sides of my mouth. I've had this on an off since childhood every once in a while, but this time it was accompanied by tiny bumps, itching, and a feeling of the inside of my mouth coated (or swollen, I can't really tell). My throat was swollen on and off, and I felt a tingling in my mouth and on my lips. This tingling is not constant, it comes and goes. I thought the sore throat might be a cold because I seem to be stuffy in the morning, but it goes away and I'm not the rest of the day. Low immune system, or am I just crazy?

Oddly enough, these are the same symptoms I get from eating mangoes as I'm allergic to them. I haven't had any of those, of course, so I'm wondering if this weird mouth-thing is gluten related? I've read about cheilosis and cheilitis and it seems to fit but no one says much about the itching and tingling inside their mouth or a swollen throat.

Anyone know anything about this? Thank you in advance. It's driving me nuts.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

I can't believe you said mangos! I'm allergic to mangos too! In fact, I pulled up your thread because the symptoms you listed are what I get if I eat domestic mangos (strangely, I can eat mangos in Colombia with no problems).

OK, now I'm calm. I have read another poster who had that kind of reaction to MSG. Is that a possibility for you?

luciddream928 Explorer
I can't believe you said mangos! I'm allergic to mangos too! In fact, I pulled up your thread because the symptoms you listed are what I get if I eat domestic mangos (strangely, I can eat mangos in Colombia with no problems).

OK, now I'm calm. I have read another poster who had that kind of reaction to MSG. Is that a possibility for you?

Oh yes I've heard that - people with a mango allergy can eat them from other regions. They are a distant cousin to poison oak, and it's the skin that bothers me but there's no real way to get away from the oil on the skin, and I don't even want to try. I wonder if I can eat mangos from other places but I'm too afraid to try because my reaction is so severe and prolonged.

MSG is a possibility but I can't imagine how I would have been in contact with it. I don't buy processed food unless it's organic or unless I read the entire label. I'll check though, I didn't think of MSG - thank you for your post!

ang1e0251 Contributor

Do you chew gum? MSG can be in gum too.

Mtndog Collaborator

What about the falafel? Falafel usually has flour in it (it SHOULD be chickpea flour but isn't always). I've had a hard time finding gluten-free falafel.

That's so interesting about mangoes, regions they come from and poison oak.

I am having similar symptoms right now but it came after (apparently) REALLY burning my mouth on tacos. The symptoms are no fun- hope you feel better!

CMG Rookie

I have the same strange symptoms after getting glutened. I thought it was just me. Not the cracking in the corners of my mouth, but blisters inside my lips and the whole roof of my mouth feels swollen or coated in something. Just not normal feeling. Unfortunately, it seems to last for a couple of weeks. All my other symptoms resolve in a few days.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    2. - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    3. - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    4. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    5. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,000
    • Most Online (within 30 mins)
      7,748

    bonniebeebe143
    Newest Member
    bonniebeebe143
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal.  Were any other antibody tests run?  
    • Russ H
      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.