Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Risk Of Going Gluen Free .....help?


DVjorge

Recommended Posts

DVjorge Apprentice

Hi everybdody,

Thanks to all you for your time and help. I am wondering if going gluten free can become me intolerant in case I don't have Celiac. I don't know if there is some risk of going gluten free for a while??????. I went gluten free after my biopsia and got a lot better. The biopsia came back negative and my dr told me to try gluten. I did and everything turned back again. I don't know if it means I am intolerant or if been gluten free for a month affected me. Please, any help.

Thanks,

George.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sugarsue Enthusiast
Hi everybdody,

Thanks to all you for your time and help. I am wondering if going gluten free can become me intolerant in case I don't have Celiac. I don't know if there is some risk of going gluten free for a while??????. I went gluten free after my biopsia and got a lot better. The biopsia came back negative and my dr told me to try gluten. I did and everything turned back again. I don't know if it means I am intolerant or if been gluten free for a month affected me. Please, any help.

Thanks,

George.

Hi, I'm sorry, I have not been around lately so you may have already answered these questions.... I assume you had a Celiac panel blood work done? What were your results? You can be non-celiac gluten intolerant and suffer as much as if you were diagnosed with Celiac. Many doctors don't get this. Also, I imagine you could still have Celiac with a negative biopsy.

Good luck to you!

Susan

ravenwoodglass Mentor
Hi everybdody,

Thanks to all you for your time and help. I am wondering if going gluten free can become me intolerant in case I don't have Celiac. I don't know if there is some risk of going gluten free for a while??????. I went gluten free after my biopsia and got a lot better. The biopsia came back negative and my dr told me to try gluten. I did and everything turned back again. I don't know if it means I am intolerant or if been gluten free for a month affected me. Please, any help.

Thanks,

George.

What you did was a challenge and your body gave you the answer as to whether or not you should eat gluten. You should let your doctor know what happened. A challenge can be part of the diagnostic process and an important one. If your body feels better without gluten that is, in my opinion, the most important thing.

CGally81 Enthusiast
Hi everybdody,

Thanks to all you for your time and help. I am wondering if going gluten free can become me intolerant in case I don't have Celiac. I don't know if there is some risk of going gluten free for a while??????. I went gluten free after my biopsia and got a lot better. The biopsia came back negative and my dr told me to try gluten. I did and everything turned back again. I don't know if it means I am intolerant or if been gluten free for a month affected me. Please, any help.

Thanks,

George.

I'd read in the book "Going Gluten-Free For Dummies", and MANY places online, that there is a strong chance of a false negative when it comes to tests for gluten intolerance. Furthermore, the longer you'd been going gluten-free before taking the test, the greater the chance of it turning up negative, especially if it's a gastroenterologist's test rather than, say, a genetic test or something else.

So I'd say you have Celiac/GI, but the test was wrong. I'd recommend avoiding gluten, period. If your doctor doesn't believe you, well, lots of people said they had the same problem.

ang1e0251 Contributor

Eating gluten free for a time does not make you gluten intolerant. You probably eat certain foods for holidays or special events that you don't eat at other times of the year. Do you react to those foods? No, because not eating them all year does not make you intolerant to them. If you are reacting to gluten you body is telling you, that you cannot tolerate it. Listen to you body, don't eat gluten.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748

    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.