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Anyone Think I'm Celiac?


Dagwood

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Dagwood Newbie

Hi all, I could use some help determining if I am doing the right thing based upon my last two years of symptoms. My symptoms began with rectal issues. After bowel movements, it seemed that I could use an entire roll of toilet paper and not be completely clean. Extremely frustrating. Then, I began to have rectal itching that would occur at night, for the most part, and progressed to extreme rectal itching. Went to GI docs and they said I had a fissure. Ok. but the itching never stopped to this day. I then began having strange skin issues on the buttocks and hand, Derm doc said I have the most stubborn eczema he has ever seen....still have them and it has been about 6-8 months. I decided to go gluten free and have been very strict for 2-3 months. My waist size has gone down a pants size and I feel really good..most of the time. I still have the rectal itching and skin problems. the rectal itching has decreased somewhat but is still there. Thank you to anyone that may respond.


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Dagwood Newbie

Just wanted to add that I do realize that wheat gives me acid, and I have not had to take Tums since going gluten free.

positivenrgfairy Apprentice

Hi there. I'm also new to this board and recently wrote a similar post. I just wanted to say that it continues to blow my mind that I've been sick for 30 years and not knowing why.

from what I can understand, a lot of people on this board don't have an actual doctor's diagnosis (bc it sounds like a right pain in the ass to get one) BUT they've experienced that cutting gluten out of their diet has made them feel better, so that naturally leads to some self diagnosing... I'm in the middle of my own testing now too.

Just wanted to say good luck and I hope you find out whats wrong and do whats best for your body.

The Fluffy Assassin Enthusiast
Hi all, I could use some help determining if I am doing the right thing based upon my last two years of symptoms. My symptoms began with rectal issues. After bowel movements, it seemed that I could use an entire roll of toilet paper and not be completely clean. Extremely frustrating. Then, I began to have rectal itching that would occur at night, for the most part, and progressed to extreme rectal itching. Went to GI docs and they said I had a fissure. Ok. but the itching never stopped to this day. I then began having strange skin issues on the buttocks and hand, Derm doc said I have the most stubborn eczema he has ever seen....still have them and it has been about 6-8 months. I decided to go gluten free and have been very strict for 2-3 months. My waist size has gone down a pants size and I feel really good..most of the time. I still have the rectal itching and skin problems. the rectal itching has decreased somewhat but is still there. Thank you to anyone that may respond.

There was a thread about this not too many months ago. I'll be back momentarily with a link.

Edit: Maybe not exactly about this, but related: https://www.celiac.com/gluten-free/index.php?showtopic=57584

nora-n Rookie

I was sore too before going gluten-free, and it comes back when I am glutened. Even some tiny tiny amounts of blood on the toilet paper.

And the skin where the ear meets the scalp was/is raw and sore too at the same time.

nora

Wenmin Enthusiast

Not quite sure of your gender, but when I wear a panty liner or maxi pad for any extended amount of time, I get really irritated in the private area. I am guessing it is the glue used to make the pads. They must have gluten in them. I also cannot wear tampons. I tend to get really bad headaches when I wear them. I also attribute this to the glue used to make them. This really puts me in a bad place when "that time of the month" comes around.

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    • trents
      As Plumbago mentioned, bleeding in the upper end of the GI track tends not to show up as bright red in color because it gets acted upon by the digestion process and more thoroughly mixed in with food residues that are passing through the intestines.
    • plumbago
      @Bronwyn W Working with your medical provider, you could do a complete blood count test. If you were bleeding say from an ulcer in the stomach (and let's hope not), your red blood cells could be low and your hemoglobin low as well. Your stools may show up as the proverbial "dark and tarry," indicative of a bleeding site further away from the anus. Basically, you may be anemic. Your heart may be beating extra fast as a way to compensate for the decreased number of blood cells, your oxygen saturation may be lower than normal on a pulse oximeter, and so on. But talk to your doctor.
    • Bronwyn W
      Thank you for this insight. I have had rectal bleeding after glutening and subsequent constipation (+ IBS-C) and always attributed it to internal hemorrhoids (diagnosed). What I wasn't aware of is the possibility of bleeding further up the digestive tract. Please can you elaborate on the causes and symptoms to watch for?
    • Scott Adams
      Be sure to be eating gluten daily until all of your celiac disease tests are completed (at least 2 slices worth of wheat bread per day for at least 6-8 weeks before any blood tests, and 2 weeks before an endoscopy).
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      @maylynn, No, I took over the counter thiamine supplements, thiamine hydrochloride, Benfotiamine, and TTFD (tetrahydrofurfuryl disulfide).  My doctors were not very knowledgeable about nutrition and vitamins, and they missed my symptoms being connected to vitamin deficiencies.  I studied nutrition before earning a degree in Microbiology because I wanted to know what vitamins were doing inside the body.  My doctors just prescribed pharmaceuticals to cover the symptoms of poor health due to malabsorption of nutrients. We need more thiamine when we're physically ill, physically active, emotionally stressed and work outside in hot weather.  Thiamine works in concert with the other B vitamins, so all should be supplemented together.  Vitamin D needs to be activated by thiamine.  Vitamin D helps regulate the immune system.   Don't take Thiamine Mononitrate because it is not bioavailable.  The body has difficulty absorbing and utilizing it.   Do keep us posted on your progress!
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