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Anyone Think I'm Celiac?

Dagwood

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Dagwood Newbie
Dagwood
Posted

Hi all, I could use some help determining if I am doing the right thing based upon my last two years of symptoms. My symptoms began with rectal issues. After bowel movements, it seemed that I could use an entire roll of toilet paper and not be completely clean. Extremely frustrating. Then, I began to have rectal itching that would occur at night, for the most part, and progressed to extreme rectal itching. Went to GI docs and they said I had a fissure. Ok. but the itching never stopped to this day. I then began having strange skin issues on the buttocks and hand, Derm doc said I have the most stubborn eczema he has ever seen....still have them and it has been about 6-8 months. I decided to go gluten free and have been very strict for 2-3 months. My waist size has gone down a pants size and I feel really good..most of the time. I still have the rectal itching and skin problems. the rectal itching has decreased somewhat but is still there. Thank you to anyone that may respond.

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Dagwood Newbie
Dagwood
Posted
  • Author

Just wanted to add that I do realize that wheat gives me acid, and I have not had to take Tums since going gluten free.

positivenrgfairy Apprentice
positivenrgfairy
Posted

Hi there. I'm also new to this board and recently wrote a similar post. I just wanted to say that it continues to blow my mind that I've been sick for 30 years and not knowing why.

from what I can understand, a lot of people on this board don't have an actual doctor's diagnosis (bc it sounds like a right pain in the ass to get one) BUT they've experienced that cutting gluten out of their diet has made them feel better, so that naturally leads to some self diagnosing... I'm in the middle of my own testing now too.

Just wanted to say good luck and I hope you find out whats wrong and do whats best for your body.

The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
Hi all, I could use some help determining if I am doing the right thing based upon my last two years of symptoms. My symptoms began with rectal issues. After bowel movements, it seemed that I could use an entire roll of toilet paper and not be completely clean. Extremely frustrating. Then, I began to have rectal itching that would occur at night, for the most part, and progressed to extreme rectal itching. Went to GI docs and they said I had a fissure. Ok. but the itching never stopped to this day. I then began having strange skin issues on the buttocks and hand, Derm doc said I have the most stubborn eczema he has ever seen....still have them and it has been about 6-8 months. I decided to go gluten free and have been very strict for 2-3 months. My waist size has gone down a pants size and I feel really good..most of the time. I still have the rectal itching and skin problems. the rectal itching has decreased somewhat but is still there. Thank you to anyone that may respond.

There was a thread about this not too many months ago. I'll be back momentarily with a link.

Edit: Maybe not exactly about this, but related: https://www.celiac.com/gluten-free/index.php?showtopic=57584

nora-n Rookie
nora-n
Posted

I was sore too before going gluten-free, and it comes back when I am glutened. Even some tiny tiny amounts of blood on the toilet paper.

And the skin where the ear meets the scalp was/is raw and sore too at the same time.

nora

Wenmin Enthusiast
Wenmin
Posted

Not quite sure of your gender, but when I wear a panty liner or maxi pad for any extended amount of time, I get really irritated in the private area. I am guessing it is the glue used to make the pads. They must have gluten in them. I also cannot wear tampons. I tend to get really bad headaches when I wear them. I also attribute this to the glue used to make them. This really puts me in a bad place when "that time of the month" comes around.

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    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

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    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
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