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Sad/disappointed

JillianLindsay

By JillianLindsay
in Coping with Celiac Disease

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JillianLindsay Enthusiast
JillianLindsay
Posted

Just throwing a little pity party for myself, feel free to join in! There will be a lot of whining in this post, so read at your own discretion...

So, back in March I suffered a seizure and my driver's license was suspended for 6 months. I had a suspected petit mal in January but prior to that had no history of seizures and no family history of epilepsy. My EEG and CT were clear. After being diagnosed with celiac disease and going gluten-free, my health problems improved and I had no more seizures!

As of September 6th I will be seizure-free for 6 months! :) I had made an appointment with my GP for today because I thought he could sign the insurance forms and I could get my license back right away....

It turns out that the forms have to be signed by a neurologist. My neuro appointment is in December and they can't get me in any sooner, which means I have to wait until then to get my license back :(

Over the past 6 months I have purchased bus passes and gotten around fairly easily that way. But I play soccer and ice hockey and my husband and teammates have had to chauffeur me to the games. My job is also a 45-minute commute, so I've had to rely on a co-worker who lives nearby to car pool with me and can only pick up shifts when that co-worker is working too.

I have always been a very independent and self-sufficient (ok, also stubborn) person and am finding it difficult to rely on (and inconvenience) others so much. This fall & winter I will be playing indoor soccer AND ice hockey, working part time and attending school full time. It's a busy schedule and I would be fine if I could drive myself to all my committments, but now I can't until December. My husband likes coming to my games when he can, but also has his own indoor soccer and sometimes is tired after work and would like an evening at home, rather than driving me around. Not to mention I need to work in order to pay my bills.

*sigh* Ok, pity party over. :unsure:

The plus side of not having my license is that I've saved $200+/month on car insurance, gas, maintenance, parking, etc. and I've been more environmentally friendly by walking, biking, car pooling or bussing everywhere. I've also become closer with some of my teammates after spending so much time in the car with them :) lol

Now, time to dry my eyes, have a glass of wine, and get packing. I am spending the weekend at the cottage with my husband and his family and it's going to be a lot of fun :) I am on my neurologist's cancellation list, so I will just have to hope that an earlier appointment comes up.

I'm grateful this forum is here for venting and support! Has anyone else suffered seizures due to untreated celiac disease? I wonder if I'm not alone on this one...

Thanks,

Jillian

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GeishaGirl Newbie
GeishaGirl
Posted

I feel for you -- and your coworkers! (joke :)) My best friend is epileptic and she's ALWAYS counting the months she's controlled, until she gets her license back. She works within walking distance to my house, so I often take her home if her fiance or parents aren't available. I don't mind it at all, but I see how hard it is for her to be at the mercy of everyone else's schedule.

Don't despair -- but do nag :) Call the office every few days to see if they have a cancellation you can take. Bug the crap out of them.

JillianLindsay Enthusiast
JillianLindsay
Posted
  • Author

Thanks :) That's exactly how I got into my GI in a reasonable time -- had to call every 2 days to see if they had my appointment yet lol

I feel for you -- and your coworkers! (joke :)) My best friend is epileptic and she's ALWAYS counting the months she's controlled, until she gets her license back. She works within walking distance to my house, so I often take her home if her fiance or parents aren't available. I don't mind it at all, but I see how hard it is for her to be at the mercy of everyone else's schedule.

Don't despair -- but do nag :) Call the office every few days to see if they have a cancellation you can take. Bug the crap out of them.

Gemini Experienced
Gemini
Posted
Just throwing a little pity party for myself, feel free to join in! There will be a lot of whining in this post, so read at your own discretion...

So, back in March I suffered a seizure and my driver's license was suspended for 6 months. I had a suspected petit mal in January but prior to that had no history of seizures and no family history of epilepsy. My EEG and CT were clear. After being diagnosed with celiac disease and going gluten-free, my health problems improved and I had no more seizures!

As of September 6th I will be seizure-free for 6 months! :) I had made an appointment with my GP for today because I thought he could sign the insurance forms and I could get my license back right away....

It turns out that the forms have to be signed by a neurologist. My neuro appointment is in December and they can't get me in any sooner, which means I have to wait until then to get my license back :(

Over the past 6 months I have purchased bus passes and gotten around fairly easily that way. But I play soccer and ice hockey and my husband and teammates have had to chauffeur me to the games. My job is also a 45-minute commute, so I've had to rely on a co-worker who lives nearby to car pool with me and can only pick up shifts when that co-worker is working too.

I have always been a very independent and self-sufficient (ok, also stubborn) person and am finding it difficult to rely on (and inconvenience) others so much. This fall & winter I will be playing indoor soccer AND ice hockey, working part time and attending school full time. It's a busy schedule and I would be fine if I could drive myself to all my committments, but now I can't until December. My husband likes coming to my games when he can, but also has his own indoor soccer and sometimes is tired after work and would like an evening at home, rather than driving me around. Not to mention I need to work in order to pay my bills.

*sigh* Ok, pity party over. :unsure:

The plus side of not having my license is that I've saved $200+/month on car insurance, gas, maintenance, parking, etc. and I've been more environmentally friendly by walking, biking, car pooling or bussing everywhere. I've also become closer with some of my teammates after spending so much time in the car with them :) lol

Now, time to dry my eyes, have a glass of wine, and get packing. I am spending the weekend at the cottage with my husband and his family and it's going to be a lot of fun :) I am on my neurologist's cancellation list, so I will just have to hope that an earlier appointment comes up.

I'm grateful this forum is here for venting and support! Has anyone else suffered seizures due to untreated celiac disease? I wonder if I'm not alone on this one...

Thanks,

Jillian

In my state we have huge problems with illegal aliens driving around with no license, insurance or respect for our laws and country. Yet, as I read this, here we have someone who actually obeys this stupid law requiring a seizure victim to wait until the neurologist has an open appointment! :angry: As a totally independent woman who has worked her entire life and can't imagine being restricted from driving, I applaud your attitude. :D It must be incredibly hard and inconvenient to have to wait and I hope they can squeeze you in much sooner so you can have your independence back! Keep well stocked with the vino!

I have never had a seizure but from all I have read, there is a definite connection with untreated Celiac Disease. It affects the brain in many ways so a seizure would not be totally surprising when you were ingesting gluten. I'm betting you won't have another one!

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