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celiac disease Conventions

twe0708

By twe0708
in Introduce Yourself / Share Stuff

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twe0708 Community Regular
twe0708
Posted

Does anyone know where the top celiac disease conventions are? Looking for a convention so I can go and sample recipes and gluten free food. I am getting discouraged very quickly because I can't find any gluten free foods I like. :huh:

Tampa, FL area or any area around. If the convention is big enough I would be willing to fly.

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Becci Enthusiast
Becci
Posted

I'd love to know this as well... :)

mamaw Community Regular
mamaw
Posted

National CSA in Erie Pa Nov 1,2... --- Atanta vendor fair Oct 17 09..

Children's Hospital. COlumbus, Ohio

NOv 7th.

There are conferences & seminars happening all over .

If you google you will find many. Sorry I don't have time now to post exact ones.....

Lisa Mentor
Lisa
Posted

There is also a calendar with special events at the bottom of the home page celiac.com

LDJofDenver Apprentice
LDJofDenver
Posted

I do know what you're saying, I think I've tried 15 different breads till I found one that was a keeper. Aside from finding more possibilities of specialized "gluten free" food products, there are many mainstream groceries that are (already) gluten free (Stagg, Progresso, Heinz, Hormel, Kraft...).

You can find some gluten-free product lists online, or email the maker (Hormel, etc.) many now have gluten free lists. But the biggest tool I came across is the Gluten-Free Grocery Shopping Guides. I wish someone had told me about them when I was diagnosed. I hated going to the store, it took forever, reading labels, being uncertain of an ingredient...

Here are links to two of them. There's another out that can also be downloaded to your PDA device, etc., by Clan Thompson, and also a new online service Open Original Shared Link (don't remember what the monthly cost of that one is).

Open Original Shared Link

Open Original Shared Link

I bought the Cecilas guide, it was about $25 and worth every dollar. Put an end to standing in the aisle and reading packages!

There are also restaurant guides out there, too.

Good luck, but the good news is there are so many resources now.

happygirl Collaborator
happygirl
Posted

Two national groups that hold events:

www.gluten.net Open Original Shared Link

www.celiac.org Open Original Shared Link

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    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

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    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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