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Embarrassing Question


needtobebetter

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needtobebetter Apprentice

Hello,

Ive not been well a few years now but got worse two years ago with right sided spasm on my body.

Ive had biopsy, 7 blood tests but have been on and off the diet..However, I also have a low TSH, Low t3 and low t4, they have just found i have high androsteninone (male hormone), Low tesosterone (but cysts on ovaries), low DHEA, Low Estrogen

I also have big probelms with food and normally follow gluten free, fruit free, low gi veggies, candida type diet but find i do best with hardly any carbs..

Ive been down as sick of waiting Iam being investigated for cushings, thyroid scan and pituitary stuff..

So, Cheated agin on diet ate toast last night and sugar puffs.

Today feel like have hangover, very moody swollen hard belly (always got belly fat) all my normal symoptoms..but what i wanted to ask about is:

When i do cheat i notice Iam very dry down below, when i got aroused it was very painful and ive had this everytime ive eaten wrong!! I dont have a libido oftern any way but it felt as though my bits down tehre were trying to work but its was causing really bad pain inside around the bone of vagina..can this be something from gluten or do you think its candidas from my hormone stuff

:( Thanks for listening Iam worried


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mindwiped Rookie

I hate to throw another autoimmune condition at you, but your bloodwork and cysts sound like PCOS. You might read up about it, and see what your doctor thinks. This wouldn't rule out celiacs, but a lot of cysters also have trouble with carbs and grains, and a low card diet helps treat the symptoms of PCOS. A good site is soulcysters(dot)net. I wrote it out so that the spam warning bot won't take the site away. Good Luck!

tarnalberry Community Regular

oh yes, if you haven't seen an ob/gyn to discuss PCOS, absolutely do!

needtobebetter Apprentice

Hi,

Thanks for your replies. I dont have PCOS. I do have cysts on my ovaries but have been tol dI dont have it and also my tesosterone is low, estrogen low, dhea low..my skin isnt greasy its dehydrated, thin I do get spots / boils but not greasy skin.

So, it just dont add up..

Barts have mentioned Cushings food induced or maybe cycling cushings also need thyroid scan and parathyroid tests or something..

I just wondered if any one on here knows what could cause High Androsteninone (male steroid hormone)..

Maybe my food problems are just all hormonal then i know it upsets the balance..maybe my problem is more candidas..

:blink:

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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