Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab

bevjen

Recommended Posts

bevjen Newbie
bevjen
Posted

Just wondering if this is really all old news or does anyone use this lab?

I read a lot of old posts where the lab was controversial. I see it is still in operation, and I did have some tests run by them, now I don't know how to present it to my doctor as I don't think he'll be very receptive to the results?

Any suggestions or new feelings on the legitamacy of this particular lab?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bevjen Newbie
bevjen
Posted
  • Author

I guess I should say that is the antigliadin stool sample tests that I am questioning, not the genetic testing.

Lisa Mentor
Lisa
Posted

If you have read some of the threads here, you know tht it's a frequent topic here.

Many people here have used Enterolab after their Celiac Panel and Endoscopy exams were inconclusive. For some, it's a piece of the puzzle.

If you are looking for a diagnosis for Celiac, that's not what they do. Some here, are please with their results for food sensitivity.

I, personally, have never seen an independent study as to the accuracy of their stool testing.

Dr. Fine's research has yet to be submitted for peer review, so can't tell ya.

Were you statisfied with your results?

ravenwoodglass Mentor
ravenwoodglass
Posted
Just wondering if this is really all old news or does anyone use this lab?

I read a lot of old posts where the lab was controversial. I see it is still in operation, and I did have some tests run by them, now I don't know how to present it to my doctor as I don't think he'll be very receptive to the results?

Any suggestions or new feelings on the legitamacy of this particular lab?

Go ahead and give the results to your doctor. Some are becoming more accepting of stool testing. If your tests were postive for antibodies and the diet helps you the doctor may go ahead and give you a 'diagnosis' of celiac or gluten intolerance.

Crimson Rookie
Crimson
Posted

My doctor accepted the gene and stool test, along with positive response to gluten-free diet. I just gave her the printed pages and told her that these were the tests that I had done with an independent lab. She may have been more accepting of this due to my lack of insurance and knowing that I'm paying for everything out of pocket. Not sure. But she did accept them.

She seemed quite impressed with all my research.

I'm guessing it depends on the doctor and how you approach them.

bevjen Newbie
bevjen
Posted
  • Author

Well, I did take the test to my daughter's neurologist. She has some neurological issues as well and since there seems to be an obvious connection between celiac and some specific related neuro things, I thought he may be interested.

NOT!

He refused to even talk to me about it, he told me that there is no connection whatsoever between the two and that I was driving him crazy.

I don't know now if I should even bother with the gastroenterologist. I think I should just go gluten-free and forget about the doctors. It would help for school thought if I could have a document from a doctor saying she cannot be given gluten.

Needless to say, I am seeing a new neuro as well, already have a scheduled appt. in Dec. Hopefully he won't be so uninformed.

ravenwoodglass Mentor
ravenwoodglass
Posted
Well, I did take the test to my daughter's neurologist. She has some neurological issues as well and since there seems to be an obvious connection between celiac and some specific related neuro things, I thought he may be interested.

NOT!

He refused to even talk to me about it, he told me that there is no connection whatsoever between the two and that I was driving him crazy.

I don't know now if I should even bother with the gastroenterologist. I think I should just go gluten-free and forget about the doctors. It would help for school thought if I could have a document from a doctor saying she cannot be given gluten.

Needless to say, I am seeing a new neuro as well, already have a scheduled appt. in Dec. Hopefully he won't be so uninformed.

It might help if you do a search using the words neurological and celiac. There is definately neuro impact for some celiacs, gluten ataxia is only one example. Do print out peer reviewed articles not stuff off of someplace like Wikipedia. Here is a link to one good one

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bevjen Newbie
bevjen
Posted
  • Author

Yeah, I only took actual pub med journals, as well as Dr. Fines's patent information. He is just

an almost retired doc who doesn't want to bother with us.

Amyleigh0007 Enthusiast
Amyleigh0007
Posted

My doctor accepted my enterolab gene test results. He brushed me off a year ago when my blood test was negative but when I recently went back to him with my enterolab report he was fascinated. He said he would diagnose me based on the gene results, a positive response to the diet, and the fact my son has biopsy proven Celiac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748
    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.