Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Soon Do You See A Reaction?


positivenrgfairy

Recommended Posts

positivenrgfairy Apprentice

I have been slowly cutting out gluten for the last several weeks and I cheated last night and I'm feeling pretty crummy today. There's no way one cheesy biscuit could possibly be making me feel so bloated and depressed this soon.

...is there?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Some react immediately. Others take hours before symptoms begin. After a significant ingestion, my symptoms develop in about 12 hours and are serious for a few days then decline and are gone in about a week.

When I say a significant ingestion, I am not referring to CC, but something like eating the wrong cookie by mistake.

I don't suppose that was what you were hoping to hear...

positivenrgfairy Apprentice
Some react immediately. Others take hours before symptoms begin. After a significant ingestion, my symptoms develop in about 12 hours and are serious for a few days then decline and are gone in about a week.

When I say a significant ingestion, I am not referring to CC, but something like eating the wrong cookie by mistake.

I don't suppose that was what you were hoping to hear...

So you have a reaction if you eat ONE cookie?

JillianLindsay Enthusiast

I have a reaction if someone uses the same fork for something with gluten and then I use it. Yes, even trace amounts make celiacs sick.

It's recommended that people go off gluten "cold turkey" and not slowly wean off of it becasue of the harm that even crumbs can do, although it is completely your personal choice to make, and tapering off may be better if it makes it easier for you and will help you stick to the diet in the future.

If I even have one little crumb of bread (or anything gluteny) I am sick for 4-5 days (FATIGUED AND MOODY big time, sometimes GI problems, stomach pain, bloating, etc. also) and it takes a full 7-10 days for me to be back to 100%.

On the plus side, you can take control of your health :) The gluten-free diet can be a healthier, more adventurous diet and you will feel SO much better once you commit to it 100%! Keep coming here for advice and support, talking to your DR, getting educated and you will do great.

Good luck,

Jillian

So you have a reaction if you eat ONE cookie?
positivenrgfairy Apprentice
I have a reaction if someone uses the same fork for something with gluten and then I use it. Yes, even trace amounts make celiacs sick.

It's recommended that people go off gluten "cold turkey" and not slowly wean off of it becasue of the harm that even crumbs can do, although it is completely your personal choice to make, and tapering off may be better if it makes it easier for you and will help you stick to the diet in the future.

If I even have one little crumb of bread (or anything gluteny) I am sick for 4-5 days (FATIGUED AND MOODY big time, sometimes GI problems, stomach pain, bloating, etc. also) and it takes a full 7-10 days for me to be back to 100%.

On the plus side, you can take control of your health :) The gluten-free diet can be a healthier, more adventurous diet and you will feel SO much better once you commit to it 100%! Keep coming here for advice and support, talking to your DR, getting educated and you will do great.

Good luck,

Jillian

Are all celiacs like this? it seems that I've been finding people have a gluten sensitivity on many various levels. I'm very new to all of this. thank you for your help.

psawyer Proficient
So you have a reaction if you eat ONE cookie?

Yes, I do. I haven't had an incident in a long time, so it is hard to be sure, but in terms of an autoimmune trigger, one typical cookie contains a large amount of gluten.

emcmaster Collaborator
Are all celiacs like this? it seems that I've been finding people have a gluten sensitivity on many various levels. I'm very new to all of this. thank you for your help.

Yes, all Celiacs have sensitivity to the smallest amounts of gluten. The difference between Celiacs is whether you have symptoms at all levels of ingestion. 1/48th of a slice of bread is enough to cause villi damage - so ONE cookie is most definitely going to cause problems for you, even if you don't have a visible reaction.

I react within 2 hours if it is serious ingestion (like eating a piece of bread) and within 24-48 hours if it is cross contamination. My symptoms gradually decrease over a week and then will sometimes pop up for randomly and last shortly for the next week or so.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
I have been slowly cutting out gluten for the last several weeks and I cheated last night and I'm feeling pretty crummy today. There's no way one cheesy biscuit could possibly be making me feel so bloated and depressed this soon.

...is there?

ABSOLUTELY! "One" cheesy biscuit has a whole crapton of gluten, and you only need a TINY amount (crumbs), in order to start the immune reaction that damages the gut and causes the symptoms of celiac disease. Removal of gluten needs to be as close to 100% as you can do.

I tend to react somewhere between 30 minutes and 12 hours, depending on the level of contamination. I can't imagine how incredibly awful I would feel if I ate a whole bite of gluten-containing food. /urp

ang1e0251 Contributor

The autoimmune system in your body is microscopic so it can react to microscopic amounts of gluten.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.