Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused About Thyroid Test Results

mamasaidso

By mamasaidso
in Related Issues & Disorders

Recommended Posts

mamasaidso Apprentice
mamasaidso
Posted

I'm really wondering what's going on with thyroid and what to do next, if anything. Have had tightness in throat and thyroid feels like it's pulsing most of the time. Had ultrasound, which indicated a large thyroid, but nothing else out of the norm. Blood work came back normal, except for elevated antibodies. Have had increasing fatigue and weight gain and just feel terrible. Doctor wants to recheck levels in six months. He also tested for cortisol and did dexamethasone suppression test which was normal. AM cortisol was high, but other testing okay. Have raised area over left collarbone which appeared in last six months, so he wanted to rule out Cushings. Diagnosed celiac in Feb last year. I really thought I would feel better by now. It's a little depressing. Anyone have similar experience with this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


georgie Enthusiast
georgie
Posted

An enlarged thyroid and elevated Antibodies is not 'normal'. This sounds a lot like autoimmune thyroid disease. Do you have your results to post ? I can only suggest you need to see another Dr that knows more about thyroid disease... Adrenal fatigue is common with thyroid disease and often shows with fluctuating levels of cortisol. High can mean low in reality... Have you had a saliva test with 4 samples during the day ? You can order your own.....

Aroostook Newbie
Aroostook
Posted
An enlarged thyroid and elevated Antibodies is not 'normal'. This sounds a lot like autoimmune thyroid disease. Do you have your results to post ? I can only suggest you need to see another Dr that knows more about thyroid disease... Adrenal fatigue is common with thyroid disease and often shows with fluctuating levels of cortisol. High can mean low in reality... Have you had a saliva test with 4 samples during the day ? You can order your own.....

Sounds to me like Hashimotos thyroiditis. That needs to be treated. What thyroid med are you on. Synthroid if you have allergies to trees will do you no good, because it contains an inactive ingredient that will agrivate that allergy and make your numbers fluxuate. Get yourself to another doctor who knows how to treat auto immune disease. My rhumatologist treats mine. Good luck!

Gemini Experienced
Gemini
Posted
I'm really wondering what's going on with thyroid and what to do next, if anything. Have had tightness in throat and thyroid feels like it's pulsing most of the time. Had ultrasound, which indicated a large thyroid, but nothing else out of the norm. Blood work came back normal, except for elevated antibodies. Have had increasing fatigue and weight gain and just feel terrible. Doctor wants to recheck levels in six months. He also tested for cortisol and did dexamethasone suppression test which was normal. AM cortisol was high, but other testing okay. Have raised area over left collarbone which appeared in last six months, so he wanted to rule out Cushings. Diagnosed celiac in Feb last year. I really thought I would feel better by now. It's a little depressing. Anyone have similar experience with this?

Elevated antibodies and the symptoms you are having are indicative of Hashimoto's thyroid disease. I have this myself and have learned a tremendous amount over the past 15 years in how best to treat this problem. If your TSH level is over 2.5, you are hypothyroid. There are many doctors who do not keep current on this disease and still go by the old levels on the lab work, which are higher than what is practiced today by those who know how to treat Hashi's.

You need a doctor who will always do a COMPLETE thyroid panel and who pays close attention to not only your TSH level but your free T3 and free T4 levels.

This is the amount of usable, circulating hormone that is available for use by your body. Most people do best when the T3 and T4 are in the upper ranges of normal. It's called the "optimal" range. It is also important to INCLUDE your symptoms as part of figuring out dosage and not just dose by lab numbers....it just doesn't work that way.

I am going through another round of adjustment and am actually switching meds and will be dosing every 12 hours. When you have autoimmune thyroid disease, it can be difficult to keep levels stable, especially if you are under stress. That's what messed me up recently and I am currently hypo-thyroid again! :huh:

The statement you made about this being a little depressing.....that's another symptom of low thyroid, being depressed. It's a viscous cycle! :(

mamasaidso Apprentice
mamasaidso
Posted
  • Author

Thanks for responding. When I receive blood test results in mail I will post them. My TSH runs around 2.058 and I'm not taking any medication. Nurse didn't tell me how elevated antibody test was, but I'm really wondering. I've been so dizzy the last couple months. Thought my B12 was low again, but it's okay. Had a bacterial infection that lasted seven weeks and was really run down after that. Got a dark brown staining on my tongue after recovering from the infection, and it's still lingering, but not as dark. Now that's kind've strange. That same week I almost passed out and pushed my endocrinologist to see me and to have labs done. I thought for sure it would be adrenal related. Will look into the saliva testing for sure.

Thanks again,everyone.

Gemini Experienced
Gemini
Posted
Thanks for responding. When I receive blood test results in mail I will post them. My TSH runs around 2.058 and I'm not taking any medication. Nurse didn't tell me how elevated antibody test was, but I'm really wondering. I've been so dizzy the last couple months. Thought my B12 was low again, but it's okay. Had a bacterial infection that lasted seven weeks and was really run down after that. Got a dark brown staining on my tongue after recovering from the infection, and it's still lingering, but not as dark. Now that's kind've strange. That same week I almost passed out and pushed my endocrinologist to see me and to have labs done. I thought for sure it would be adrenal related. Will look into the saliva testing for sure.

Thanks again,everyone.

You still may be hypo with a TSH of 2. It all depends on what your other numbers are and what you symptoms are. Many people are sub-clinically low thyroid which will give you symptoms even though your numbers look OK. They fall in that gray area no doctor will take anyone seriously in!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,098
    • Most Online (within 30 mins)
      7,748
    Baxter6
    Newest Member
    Baxter6
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      As I said, I do not have any vitamin deficiency. I was already tested.
    • Wheatwacked
      High DGP-A with normal IGA

      By Wheatwacked · Posted

      Talk to your  Talk to your provider about testing for vitamin and mineral deficiency.  celiac disease causes malabsorption and eventually malnutrition.  Especially vitamin D. Having the gallbladder removed seems to be a common step on the way to a Celiac Disease Diagnosis,  Gallbladder is a sympton of deficient Choline. Eggs and red meat are the primary source..Choline makes up a majority of the bile salts.  The bile gets thick, doesn't get enough into intestine to digest fats well.  Can eventually back up into gallbladder, cause gallstones.  Without bile, bowel movements can become hard. Try to avoid all processed foods while you are healing, The gluten-free foods are not fortified with vitamins and use various ingredients to mimic fat that bothers many Celiacs.  Choose vegatables with low omega 6.  Optimum omega 6 to omega 3 ratio is less than 3:1.  Wheat flour is 22:1.  Grass fed milk is 1:1.   Commercial Dairies milk is 5:1.  They feed wheat, rye and barley Gluten as part of the food mix.  
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.