Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recovering From Endoscopy

beth67

By beth67
in Coping with Celiac Disease

Recommended Posts

beth67 Rookie
beth67
Posted

I had an endoscopy done last Tuesday so I ate gluten on Saturday, Sunday, and Monday. Had bad cramps of course. It is now Thursday and I still feel cruddy. Not so many cramps just dizzy, can't think straight, can't think of words to say. I had been gluten free for two months prior to eating gluten last weekend when I found out I had it in July. My stomach is a little painful from where I'm guessing the biopsy was done. I think it's the after effects of eating the gluten and slowly but surely I'll start to feel better again. Maybe I forgot how bad it used to be on the gluten. If anyone else has had an endoscopy, did your stomach hurt from the biopsy or do you think it was the eating gluten that made your stomach hurt.

Beth

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


boysmom Explorer
boysmom
Posted

I hadn't eaten gluten for about 3 months before my biopsy. My doctor assured me he had just done biopsies on 2 women who had been gluten-free for 12 and 18 months and it was still very plain, so since gluten causes me to have esophageal spasms I was willing to take the chance. I was still sore afterward and assumed, as you did, that it was soreness at the biopsy site(s). It took me about 2 weeks to start to feel really good again.

Luanne

Tim-n-VA Contributor
Tim-n-VA
Posted

I was mostly symptom free prior to being tested for Celiac so I was eating my normal, gluten-filled diet up to the biopsy. I did not have any internal pain from the biopsy. For a second endoscopy, I did have some minor sore throat which I attribute to irritation from the scope.

ravenwoodglass Mentor
ravenwoodglass
Posted

Hi Beth, Try taking some Pepto Bismal Liquid and see if that helps a bit. The pain is likely from damage from eating the gluten. It may take a few more days back on the diet for it to resolve. Do not go back to eating gluten if the biopsies are negative. You may have healed on the diet, I am assuming that you were getting some symptom relief gluten free. Challenges are usually a few weeks not a few days. If you were diagnosed by positive blood work in July your doctor should have told you to keep on gluten until the biopsies were done. If the pain is severe and or you are running a fever give your GI doctor a call to be on the safe side. I hope you feel better soon.

beth67 Rookie
beth67
Posted
  • Author

Thanks for the advice everyone. I think I will call my dr. just to let him know whats going on.

Beth

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,203
    • Most Online (within 30 mins)
      7,748
    Sarahmegan
    Newest Member
    Sarahmegan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.