Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having An Endescopy. Celiac Test. Does It Hurt? Risks? What Do They Do? How Long Is It For?... Etc?


domoboy

Recommended Posts

domoboy Newbie

I havent had any symptoms, however the blood test went back posotive.

On the letter, it does not say it is an endescopy just a 'operation/biopsy'

Does it hurt? Risks? What do they do? How long is it for? Is it uncomfortable? What do they give me?

And any tips.

I am also a Type 1 diabetic.

Cheers


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JillianLindsay Enthusiast

Hi domoboy and welcome,

Your GI doc certainly should have gone through the process with you. You will be given a light anesthetic and the DR will put a very small scope down your throat (it's about as wide as a pinky finger) and into your small bowel. Depending on how much and what kind of drug they give you (I only had a teeny amount of valium, not enough in my and my sister-in-law who is a DR's opinion) you shouldn't feel much and shouldn't remember much of the procedure afterwards. Some people gag a little bit (they will spray the back of your throat to numb it so your gag reflex will be temporarily blocked).

You will have to stick around afterwards to make sure the numbness goes away in the back of your throat and you shouldn't eat until it is completely gone (I think they told me an hour?). You will probably have a sore throat afterwards and bloating/gas. They have to blow air into your belly/small bowel to see properly so you'll need to burp to try and get it back out. You shouldn't feel any pain from the biopsies, but some have reported a bit of discomfort in their stomach afterwards too.

They'll probably monitor you even more carefully because of your diabetes, so you should get the best treatment :) You should definitely ask lots of questions until you feel comfortable with the procedure. For most people it doesn't take long (I've heard as quick as 5 minutes and mine took 30 minutes) and they don't remember much of it. The risks are low and include bleeding from the biopsy site (they're very teeny biopsies so it shouldn't be a concern) and choking if you try to eat while your throat is still numb (they should make sure the numbness is gone before you leave the hospital).

I remember the entire thing so I'm happy to answer any questions you may have :) But I am not a DR and you should definitely talk to your GI to make sure you get an expert's advice. It's definitely worth getting it done to find out if you have celiac disease and also to rule out any other problems that your DR will check for while looking in you stomach and small bowel.

Good luck :)

Jillian

I havent had any symptoms, however the blood test went back posotive.

On the letter, it does not say it is an endescopy just a 'operation/biopsy'

Does it hurt? Risks? What do they do? How long is it for? Is it uncomfortable? What do they give me?

And any tips.

I am also a Type 1 diabetic.

Cheers

DingoGirl Enthusiast

hmmm...I had a totally different experience than Jillian, but was also having a colonoscopy......

they put me completely out and I LOVED IT!!!!!!!!!!!!!!!!!!! :ph34r: It took me to my Magic Place, and for many hours afterward.....best nap of my life!! (and last day I ate real fried chicken :( )

There was no pain whatsoever......was given a drip........tranquilizer name escapes me now......but it was so painless. Don't worry! You'll be fine, no matter what they give you, you won't feel a thing!

:)

Let us know the results.

JillianLindsay Enthusiast

Yes, having read others' posts about their experiences, it seems my negative experience was a very unique one (lucky me <_< ). For most people it's a breeze, and I'm sure it will be for you :)

HouseKat Apprentice
hmmm...I had a totally different experience than Jillian, but was also having a colonoscopy......

they put me completely out and I LOVED IT!!!!!!!!!!!!!!!!!!! :ph34r: It took me to my Magic Place, and for many hours afterward.....best nap of my life!! (and last day I ate real fried chicken :( )

There was no pain whatsoever......was given a drip........tranquilizer name escapes me now......but it was so painless. Don't worry! You'll be fine, no matter what they give you, you won't feel a thing!

:)

Let us know the results.

I just had my second endoscopy on Friday and like the first time the worst part was when they put in my IV. After that they wheeled me in, did the throat spray, then knocked me out. They used Demerol and something else on me for the sedation.

Kate

cyberprof Enthusiast

Most people report no pain and are out the whole time. The procedure (endo only) takes about 20 minutes...some docs do 10 a day easy.

For me, they gave me an IV (that's the only hard part). I wore stretchy pants and a tee-shirt, didn't have to get undressed. They walked me in, laid down on the table. They sprayed the back of my throat with the numbing stuff. That's when they increased the drug in the IV and I was out. I felt a little pressure on my throat but otherwise don't remember anything. Woke up in the recovery room. Didn't feel too woozzy but had a driver to drive me home. Had wheat pasta (they had no idea I had celiac- they were checking for an ulcer) for lunch and took a long nap. No side effects, not even a sore throat. Easy.

Even with diabetes you should have an easy time. Good luck and don't stress.

  • 2 weeks later...
domoboy Newbie

Thanks everyone.

Having it done on tuesday, going in tommorow.

I shall let you know how i got on


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pewpewlasers Rookie

Has anyone ever been awake to watch on the screen?

I'm getting one on the 13th and I am curious to see what it looks like in there. I heard some people don't get completely knocked out and they can watch, but haven't had anyone say so personally.

jkr Apprentice

I've had two and never was awake to watch on the screen. I was showed a picture after I woke up. I don't think I could do that. The thought of something going down my throat makes me want to gag!

I didn't have any problems during the procedure. The only thing I experienced was a little discomfort in my stomach for a few days. Pepto Bismol helped that.

kelseypink15 Newbie

Hey! I am new, so here goes my first post :D

I have had stomach pain, bloating, and cramping for almost a year now, and I went through about a million and six different tests to find out what was wrong with me (I had also lost a lot of weight). So, after a while I was finally referred to a gastroenterologist, who diagnosed me with IBS. Well, he gave me an anti-spasmodic for that, but I still had symptoms... So eventually we went to a different gastro, who agreed to do the endoscopy. My blood tests came back negative for celiac, but the genetic test said I had a high risk... So i just had my endoscopy on Friday, and we are awaiting the biopsy results!

Anyways, I had my procedure done at a children's hospital because I am under 18. So for my procedure, they had a bunch of different people come explain to me EXACTLY what was going to happen. Then they gave me the option of getting the I.V. first, then the mask, or the mask and then the I.V. Needless to say, I was all for the "let me pass out and THEN stick me with a needle" option! Lucky me! :D So then they had me take some deep breaths in the mask, and then the nest thing I knew, it was about 20 minutes later and I was all done! I got to see the pictures that they took while they were in my body! That was really cool, and they even let me keep them hahaha :P

Overall, it was a very good experience, and they took really good care of me. I only have a little bit of stomach pain and a sore throat from the procedure, but definitely NOT bad!

Sorry this post is so long!

Kelsey :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.